PDA

View Full Version : Nine years



Jaha
04-25-2019, 09:02 AM
​Nine years ago today, (4/24/2010), I had a left lung resection, they took 38 grams, for a better biopsy, prior to that I had an unsuccessful needle biospy. I had been sick for a long while, with one thing or another.They were trying to solve the puzzle of what all the cavitated masses were in my lungs. I had a rash, pneumonia, my feet grew, my joints and they were acting up in 2008. I was coughing up piles of mucus and was starting to get really exhausted.I also had jaw pain, joint pain, hearing loss,and high fever kept creeping up. It finally took a friend making me go to Cleveland clinic and get evaluated. They sent for my biospies, took their own scans, bloodwork and a team of docs to analyze the data. They called me at work to set me up with an appointment with to meet my Rheumy. In Sept.2010
I was dx'd with Wegener's and started my treatment plan. I was ANCA negative, so it was the Scans and the biospies( from a local hospital) that finished that puzzle. I am still here!!💜

Pete
04-25-2019, 09:09 AM
Jaha

Glad you’re still with us and doing better!!

Alysia
04-25-2019, 02:24 PM
Thanks for sharing your story, and thank you for being with us. Happy Anniversary. How are you doing these days ?

gilders
04-25-2019, 06:59 PM
Jana, happy anniversary ,we're all happy you're here.
Biopsies are the most accurate way of diagnosing vasculitis.

Hoping you're well at the moment and good health continues.

mishb
04-25-2019, 09:58 PM
Happy Survivor'versary my dear

Such and ordeal, and I'm also glad you are still here

vdub
04-28-2019, 02:24 AM
I forgot all about mentioning my anniversary, because it was the same day my Dad died and I was somewhat distracted. 21Apr2010 was the day they removed and biopsied my pituitary. Things changed a bit after that....

drz
04-30-2019, 10:52 AM
April 2010 I was trying to wake up from intubation and learn to try breath again on my own. Must have been a bad month for Wegs for at least three of us so far on this thread.