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mater
04-15-2019, 10:33 AM
I'm looking for a name of an ENT who knows the hearing and sinus related issues of GPA well so that our ENT could consult with that doctor.

Thank you,

Pete
04-15-2019, 11:01 AM
Possibility at Mayo/Phoenix: https://www.vasculitisfoundation.org/event/phoenix-vasculitis-regional-conference/

Dirty Don
04-16-2019, 04:15 AM
Dr. Devyani Lal, ENT at Mayo/Phx is excellent. She even showed me the inside of my sinuses as to where the disease did damage...in COLOR! What!? Anyway, she knows Wegs, and will do what one needs. She tried a 'new' procedure in right Eustachian tube, it didn't work, but she was way ahead of the curve of most docs. Also, she repaired a deviated septum with a 'no bleed' (well mostly!) procedure...was up & running next day! So, yes, she knows WG & is willing to try newer procedures to fix problems. Best of luck.