lbartley
06-02-2018, 07:22 AM
Hello Everyone! I have not been able to be on here since my original post. I tried to thank everyone for their very warm and caring welcome. If I missed anyone, I am sorry. You guys are the best! Since it has been a while from my original post, I am having a little trouble navigating the site. You know...I've slept too much since then. :ohmy: So, If I have this in the wrong place, please let me know.
My husband is still struggling! The dr has been decreasing his prednisone and increasing his celcept. And, on top of all of that, he has sinus infection! I believe it is a flare, but we are still trying to determine.
I am checking today to see if anyone on here is from our general area. We live in the very northeast corner of Oklahoma. We are currently looking for a Rheumatologist with any experience treating patients with Wegener's. We do currently see one, but feel it would be in our best interest to locate a different dr. Because of our location, we could see a dr in Oklahoma, Missouri, SW Arkansas or even Kansas. Long story short...does anyone know a good Rheumy with wegener's experience in our neck of the woods? Thank so much!
Lynette
My husband is still struggling! The dr has been decreasing his prednisone and increasing his celcept. And, on top of all of that, he has sinus infection! I believe it is a flare, but we are still trying to determine.
I am checking today to see if anyone on here is from our general area. We live in the very northeast corner of Oklahoma. We are currently looking for a Rheumatologist with any experience treating patients with Wegener's. We do currently see one, but feel it would be in our best interest to locate a different dr. Because of our location, we could see a dr in Oklahoma, Missouri, SW Arkansas or even Kansas. Long story short...does anyone know a good Rheumy with wegener's experience in our neck of the woods? Thank so much!
Lynette