High calcium in urine

[Alysia]

Hi.

I hope everyone is doing good. It is too quiet around here and I miss you, my friends.

I got higher then the normal - calcium in urine of 24 hours. The normal is under 250 and mine is 306. Does anyone else have it ?


I read a long list of possible reasons, one is steroids. I am on both pred 5mg and budezon 6mg. Can it be related ?

(I dont eat that much calcium).

Can it be related to wg ?

Other reasons in the list are not so nice... is there anything else that I need to check now ?

I sent an email to my endocrinologist but didnt get any answer from him. Yet ?


Thank you.

[NatriceRomeo]

Hi.

I hope everyone is doing good. It is too quiet around here and I miss you, my friends.

I got higher then the normal - calcium in urine of 24 hours. The normal is under 250 and mine is 306. Does anyone else have it ?


I read a long list of possible reasons, one is steroids. I am on both pred 5mg and budezon 6mg. Can it be related ?

(I dont eat that much calcium).

Can it be related to wg ?

Other reasons in the list are not so nice... is there anything else that I need to check now ?

I sent an email to my endocrinologist but didnt get any answer from him. Yet ?


Thank you.

I wonder are you developing kidney stones?


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[whatthewhat]

The medicine angle rings a faint bell, but I am sorry I don't remember specifics, and I don't have my notes anymore. While you wait for the doc to get back to you, what about your water intake? Has it been hotter lately where you are? Just thoughts. (& best wishes & hugs!)

[Alysia]

Thanks Natti and WTW. I drink colder lately but maybe we have too much stone in our poor water ?

The endocrinologist called me and said that it is prob a result of the pred ...

Dr. : how long are you going to take it ?

Me : all my life ?

So he wants me to repeat the urine test a month later and then to come for a check. The good news are that my parathyroid is ok.

[Alysia]

An update: I repeated the test of calcium in urine taken during 24 hours, a month later. Now it came extremely higher: 429. So, not good.

I went to see my endocrinologist. He doesnt know what it means. He said to stop the calcium pills for a month and repeat the test. He said it might be because of the calcium pills. He said it can also be the result of the steroids. Then he started to scratch his head and checked a lot in the computer and said something like wondering if it can be WG related. He didnt want to explain what he suspected.

He sent me to do ultrasound of the kidneys which I did today. My creatinine is fine. He said that the risk of high calcium in urine is kidneys' stones.

Does anyone here had/ have such high calcium in urine/ 24 hours collection ?

Does anyone here have any WG involvement which is related to this findings ?

Any thoughts are welcome.

I will see my wg dr. next month so I hope he will have some answers.

[Alysia]

I went to see my wg dr. I told him about the endocrinologist's question, and if the high calcium in the urine might be related to wg. He said that it is not related to taking steroids. He explained to me that the kidneys are consisted from glomerulus and tubules. Creatinine checks only the glomerulus so although my creatinine is ok, it is a possibility that wg affects my kidneys' tubules. Even if it does, he is not concerened about it.
I will check again the calcium in the urine next week, after not taking the calcium pills almost a month now.

I have weired pains, in my legs and pelvis and I wonder if it might be because I stopped the calcium pills ?

[Aneinu]

Sorry to hear that. Hope things become clearer and you begin to feel better.

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[mishb]

Now that you have stopped your calcium tablets, you should have a bone density scan, to see how the bones are coping.

Hopefully your leg and pelvis pains, don't last very long, and they are just getting used to the idea of no added calcium

[Alysia]

Now that you have stopped your calcium tablets, you should have a bone density scan, to see how the bones are coping.

Hopefully your leg and pelvis pains, don't last very long, and they are just getting used to the idea of no added calcium

Thanks Michelle, you are very kind ❤

I only stopped the calcium pills until doing the test to see if it might be their impact. I will do the test next week.

The pains are almost gone. I checked also in my colitis group and in turned out some have those pains when the stomach is too crazy (mine was for couple of days).

I tend to think that everyrhing is WG related... but it is not.

[mishb]

Thanks Michelle, you are very kind ❤

I only stopped the calcium pills until doing the test to see if it might be their impact. I will do the test next week.

The pains are almost gone. I checked also in my colitis group and in turned out some have those pains when the stomach is too crazy (mine was for couple of days).

I tend to think that everyrhing is WG related... but it is not.


I think we all tend to blame WG first
Hopefully next weeks test will be all clear

[Alysia]

An update: the calcium in my urine of 24 hours collection has continued to be extremly high, now it came back 432. The norm is no more then 250.

My endocrinologist said that the high calcium in urine might be the result of being on both pred and budezon (steroids for my colitis) together.

The dr. Suggested that I will stop taking calcium pills. I take 500 or 600mg daily. He said that I might get kidneys stones as a result of this high calcium in urine.

On the other hand, I have ostheopenia and it became worse compared to the bone density test from 2 years ago. Not sure what to do about all these.

What I keep on doing is a daily walk of 30 minutes every day. I hope it can help my poor bones.

Any advices are more then welcome, especially how do you keep your bones strong.

[JBee]

Hi Alysia
I heard an endocrinologist being interviewed on the radio this morning and she seemed to be discussing your issues. She was talking about the parathyroid glands which sit behind the thyroid. When they are overactive they can take too much calcium from the bones and redirect it into your blood. This can cause kidney stones, stomach pains and pains in your joints as well as decreased bone density.
Perhaps this is worth following up with your doctors. Hope you feel better soon.

[mishb]

I know that some of the specialists here in Melbourne are starting to reduce the useage of calcium tablets.
I no longer take them, but my sister in law who has Addisons Disease, has been told to stop taking them, and my Aunty who has cancer, has been told to stop taking them

I hope you get some answers soon, and keep up with the walking

[Alysia]

Hi Alysia
I heard an endocrinologist being interviewed on the radio this morning and she seemed to be discussing your issues. She was talking about the parathyroid glands which sit behind the thyroid. When they are overactive they can take too much calcium from the bones and redirect it into your blood. This can cause kidney stones, stomach pains and pains in your joints as well as decreased bone density.
Perhaps this is worth following up with your doctors. Hope you feel better soon.

Thank you. After reading your comnent I checked with my dr. My parathyroid was checked and is ok

[Alysia]

I know that some of the specialists here in Melbourne are starting to reduce the useage of calcium tablets.
I no longer take them, but my sister in law who has Addisons Disease, has been told to stop taking them, and my Aunty who has cancer, has been told to stop taking them

I hope you get some answers soon, and keep up with the walking

Thank you. I wonder, if you stop taking the calcium pills how do you get enough calcium ? The endocrinologist said I need 1000mg per day. That's A LOT.
I've stopped the calcium pills for one month to check again the calcium in my urine.

[mishb]

Thank you. I wonder, if you stop taking the calcium pills how do you get enough calcium ? The endocrinologist said I need 1000mg per day. That's A LOT.
I've stopped the calcium pills for one month to check again the calcium in my urine.

I'm really not sure, because I don't eat dairy, and as you know, we (you and I) have a lot of foods in common that we cannot eat.
I do eat broccoli and I do eat cabbage, which are both sources of calcium. I really don't eat any of the others sources, like sardines etc

I do have a dexa bone density scan every two years, and so far, so good, which really surprises me because I haven't really had dairy since I was a teenager.
It's not that I have any allergies to dairy, it's just that I am not fond of milk or milk products.........except for chocolate. Maybe that's the answer :wink1:
Oh and the occasional ice-cream cone - very occasional

I hope this settle down for you, very soon

[Alysia]

I'm really not sure, because I don't eat dairy, and as you know, we (you and I) have a lot of foods in common that we cannot eat.
I do eat broccoli and I do eat cabbage, which are both sources of calcium. I really don't eat any of the others sources, like sardines etc

I do have a dexa bone density scan every two years, and so far, so good, which really surprises me because I haven't really had dairy since I was a teenager.
It's not that I have any allergies to dairy, it's just that I am not fond of milk or milk products.........except for chocolate. Maybe that's the answer :wink1:
Oh and the occasional ice-cream cone - very occasional

I hope this settle down for you, very soon

Maybe your bones are strong because of the many stairways (how many ? I forgot) that you climbe daily on your way to work and back :thumbsup:

[mishb]

Maybe your bones are strong because of the many stairways (how many ? I forgot) that you climbe daily on your way to work and back :thumbsup:

Oh dear, my poor old knees certainly don't like the stairs anymore, but the entrances and exits we need to take at the train stations, there is no other option.
Well there is an option, I could take the lift, but that is on the opposite side of where I need to go.
Therefore, 5 days a week I need to go up or down, 120 steps sometimes more.

I'm not really sure as to what the answer is.

I hope you have had better blood results now