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GARYfromBOSTON
01-25-2010, 09:22 AM
Exciting news… On Wednesday morning I will be the focus of a lecture by Dr. John H. Stone (my rheumatologist and Wegener’s expert) at Harvard Medical School! He is going to lecture Harvard Medical School students on Vasculitis and Wegener’s Granulomatosis from 10:00 to 10:45 followed by a 15 min Q&A. From 11:00 to 11:30 he’s going to discuss my case. I’ll be there and participate in the Q&A sessions. Dr. Stone said it’s exciting for the class to have a newly diagnosed Wegener’s patient that was treated early and is most probably on the right path to remission. He also said it should be very educational for me. I think the lecture will focus on how they came up with the diagnosis as my case initially threw them for a loop.

Brooke
01-25-2010, 09:53 AM
Too cool! That would be interesting to listen too.

elephant
01-25-2010, 10:24 AM
THAT IS GREAT! Will this be videotaped?

Terri
01-25-2010, 11:24 AM
That IS great! Wish all of us could be there.Keep us posted as to how things go.

Sangye
01-25-2010, 01:29 PM
That's great, Gary! Ask him if they'd tape it for youtube. There are other Wegs videos on youtube that have mistakes or outdated info in them. It'd be great to have one with accurate info.

I'm giggling imagining one of my Wegs doctors doing the same with me. Those students would never get out of the class and no one would have any idea what to recommend. When my current flare was finally diagnosed last summer, he said "There's nothing about you that is black and white. You're all gray."

pberggren1
01-26-2010, 05:08 PM
I disagree. Sangye you are a bright color like yellow not grey!

That is awesome Gary! I wish I could be there but Sangye's idea of a video is also great.

Sangye
01-27-2010, 02:43 AM
LOL-- yellow or gray? I'm looking at my own yellow cockatiel who already thinks I'm his girlfriend.

RCOSSIO
01-28-2010, 03:08 PM
hahahaha....are u graying?

so u have a lovebird...nice to know someone in Maryland has you peg for his chick

Sangye
01-28-2010, 03:11 PM
LOL-- yes, my little birdy boy is in love with me. Sings to me, does little courting dances and drills his beak on the cage bars.

elephant
01-28-2010, 10:34 PM
I have visions of the bird dancing for you Sangye.

GARYfromBOSTON
01-28-2010, 10:38 PM
What an experience! I got to sit in from of 35 future doctors at Harvard Med School, tell my story and field a few questions from them yesterday! Dr. Stone, the guest lecturer, went first and covered vasculitis from a PowerPoint presentation. Then, I shared my story and he covered my case. Very nice experience!

They did not tape the session, but I am getting a soft copy of his PowerPoint for what it's worth. I'll have to delete the pics of his other patients, but the other info and my case will be included :)

Sangye
01-29-2010, 02:36 AM
That's really great, Gary. Thank you for doing it-- makes a strong impression on docs to learn like that. Let's hope those 35 remember it well and teach others. My Wegs doc is a Harvard grad. Who knows-- maybe a future Wegs specialist was sitting there learning from you! Wouldn't that be something?

Doug
01-31-2010, 09:14 AM
Gary- I agree! Too cool! I spent time in a teaching hospital during my treatment, and I thought having all of those interns and specialists and visiting famous doctors, etc., etc. was something (my case is somewhere in the books and on the internet, but I haven't located them....), but your experience would have been very illuminating, I think. Too bad it wasn't videotaped. I imagine there are other times similar events occur that we weggies could benefit from the experience of viewing, but they are held as classes, like this one. The Vasculitis Foundation has conferences that they videotape and offer, yet buying one for personal use limits their value: Too bad these aren't placed on YouTube!

The main thing, though, is a very prestigious medical school got to hear about this disease from an expert doctor and the biggest expert of all, a weggie! I proclaim you famous, Gary!

GARYfromBOSTON
02-08-2010, 01:30 AM
LOL, thanks Doug. I've alway wanted to be famous! I tried to get the powerpoint, but it has patient picture in it. It was a nice experience, the med students even all signed and sent a thank you card!