Acceptance

[owensmom]

Hi. I am a Mom of a 16 year old who was diagnosed 2 years 4 months ago. He is stable right now. First off I am wondering if there are other parents on here with teens with GPA and two any of those teens having a hard time accepting it? Thanks.

[John S]

https://www.youtube.com/watch?v=_89IrMuLNZ8

How is this?

[whatthewhat]

Hey Owensmom,

Our daughter was diagnosed at age 14 also (tomorrow is actually the 4 year anniversary of her diagnosis.) I limit what I say on here, a public forum, but for what it's worth you can tap my username and find my profile and then look at posts I've written to see some more info on her story. On Facebook I'm involved with about 40 families of pediatric-onset Wegeners in a "secret" group - secret if a FB term meaning you can't search for it and no posts or members are seen unless you belong to the group. Our daughter is fairly solid with her diagnosis now, but she definitely has had times that she shoves it to the bottom of her list of things to think on! In the FB group the kids are generally not as stressed about it as their parents, it seems. Such is the nature of kids, and of parents, huh?

Private message me more direct questions if you wish. Also, use the fabulous search engine on here and you can search "pediatric" or "son" or "adolescent" or "teenager" for example, and see posts that might relate.

Hugs from one mom mom to another.

[whatthewhat]

https://m.youtube.com/watch?v=8pUE774l1KU

[Alysia]

https://youtu.be/6jjrZj9a-Ns

Welcome to our family, Owensmom. I am glad your son is stable. Watch this great video. Both girls are doing good. Sending prayers for your son and you.