Feeling shaky

[Gab122]

Hi everyone

Friday my doctor started my prednisone taper from 60 down to 40.

I've been feeling very shaky. It's not visible, I just feel it. As if my blood sugar was too low, but it's normal. Also my blood presume has been normal again.

Have any of you felt shaky when tapering? I've read that tapering prednisone is awful... Maybe I'm starting to understand.

Gab

[Middlesista]

Hi Gab - glad to learn your docs are starting to taper the Prednisone. I went a bit slower than a 20 mg decrease but had been on prednisone for a while. My daughter did notice my hands were shaky but this did pass.

[Dirty Don]

Gab, that's a 1/3 drop in dosage...probably too much this early with the amount you're taking. You'll find, with pred, that the further you reduce, the more conscious one must be of the % of pred dropped moreso than the actual amount, altho it will be low soon. Hang in there, these are the trying times...you'll get there.

[Alias]

My taper was 60, 40, 20, 10, 7.5, 5, 2, 1, 0.

I felt very "shaky" when I was on the higher doses. This subsided quite a bit after I got below 20. I have to think that everybody's response and tolerance to medications is a bit different. My perception was that the tremulous feeling was due to the pred itself, and not caused by lowering the dose. Thankfully, I had no ill effects from the taper and I was very glad to get off the higher doses.

[Gab122]

Thank you middlesista, Don and Tom. It's been six weeks since my diagnosis and the reality of it is sinking in - in a new way.
☹️
It helps so much to have this forum to come to with my questions. And to know you all are in a similar boat as me.
Thank you for sharing your experiences.

[blu4runner]

I am in the middle of my Taper of prednisone as well started at 60 then 2 weeks between each taper 40 now at 30 then 25 20 17.5 15 12.5 10 7.5 5.0 2.5 then off again. I have noticed my hands shaking or trembling but thought it was because of the dose I was taking

Best of luck with the taper once it's complete you will be happy. I was off prednisone completely from 4/15 until August this year when I had a flare

[Gab122]

Blu4runner - I think you might be right about it possibly being the med instead of the fact of its being tapered. The shakiness is much worse in the morning and early afternoon. I think more pred is in my system at that time.

[blm]

I experience the same thing Gab122. Around 3 p.m. I almost feel normal.

[Arleta]

My hands would visibly shake when on the higher doses, and my handwriting was very shaky. It's all pretty normal, I think. It will go away ...just be patient. 😕

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[Gab122]

Thx blm and arleta :)

[Debbie C]

Hi Gab..I am on only 5 mg. of pred and nothing else, but when I tried to taper ,even by taking 4 1/2mg. I was shaky and terrible headaches. Had BAD withdrawal symtems. I have been on this dose for 5 years and my adrenial glands have shut down so my dr. at Cleveland Clinic said I will be on this for life.The lower the dose you are on the slower the taper you need to go. Don't rush it you'll start feeling all the aches and pains. Take care and good luck

[annekat]

I am on 10mg and have been for awhile...the last time I tried to go below 10, I had a moderate flare and had to go back up to 15. Just lately I have noticed my hands shaking and don't know if it is the pred or my anemia or both, or something else. But I think I did have it more when I was on the higher doses.

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[Gab122]

Thank you Debbie and Anne. I'll def go slower with next step down.

[Lilly]

Yes, I get shaky and trembly feeling inside like you said. And its like you, while coming down from higher dose. Once I'm on my 5mg.daily (seems to keep my flare ups down a bit) then I lose the "jitters" :) Take Care! Blessings....Lilly

[Gab122]

Thank you Lilly - the shaky feeling has subsided a bit. Guess my body is used to the 40 mg level now.