Best Treatment/Dr?

[NikkiNicole]

The husband and I tossed around the idea of moving while we were on vacation. We are both starting to hate California.
Where is the BEST hospital/doctors? I know anywhere near a Mayo Clinic but anywhere else? That was one of his criteria for moving. It had to be somewhere near a vasculitis specialist.
Thoughts???

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[Dirty Don]

Since you're already 'north', Portland Oregon has a new vasculitis center at OHSU...just a thought. Keep at it kiddo.

[NikkiNicole]

Oregon (especially the Portland area) was a place we were talking about. I will definitely check that out.

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[MikeG-2012]

Cleveland, OH?

John Hopkins is in PA, right?

[NikkiNicole]

Dan was looking at houses in Cleveland the other day. Not sure I want to trade wine country for Cleveland but I just don't know.

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[drz]

The Mayo clinic in MN might be too big of climate change but there are many specialists there and it is a nice smaller size city and often ranks very high in national surveys as good place to live.

[darl-p]

To Nikki:
I think in your prior post you mentioned that you are a Kaiser patient. Yes .. OHSU has a new Vasculitis Center , BUT when I asked Kaiser to refer me there, I was told that they (Kaiser) feel they can do as well for me as OHSU. Kaiser has done very well for me over the past 8 Wegeners years. They are leaving a few doubts in my mind currently. They do respond to requests for second opinions from with-in their own system. If you came to Portland then I would know that they are treating at least two Wegeners patients.

[NikkiNicole]

The Mayo clinic in MN might be too big of climate change but there are many specialists there and it is a nice smaller size city and often ranks very high in national surveys as good place to live.
My great great grandfather has a town in MN named after him. Its a big change but ... Perhaps not off the list.
I also have to find a job in my line of work with comparable wages. I know there's a cost of living change but ... The CA debt comes along with me!


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[NikkiNicole]

To Nikki:
I think in your prior post you mentioned that you are a Kaiser patient. Yes .. OHSU has a new Vasculitis Center , BUT when I asked Kaiser to refer me there, I was told that they (Kaiser) feel they can do as well for me as OHSU. Kaiser has done very well for me over the past 8 Wegeners years. They are leaving a few doubts in my mind currently. They do respond to requests for second opinions from with-in their own system. If you came to Portland then I would know that they are treating at least two Wegeners patients.
Kaiser was a major struggle for a diagnosis and even now ... When I have a simple issue u related (appendicitis, common cold) the docs I see when my GP is out don't know what Wegs is. Or when I've ended up in ER in agony I get that "you're not sick, you must be seeking pain meds" look.
I have a good rheumy now that she's on board with RTX. We ran out of less toxic options.
It would really depend on what my employer would provide wherever I end up.
My first choice is OR. But, who knows?

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[darl-p]

They are always short handed at the 911 Center. Just saying.

[Pete]

Dan was looking at houses in Cleveland the other day. Not sure I want to trade wine country for Cleveland but I just don't know.

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There is wine country in NE Ohio. Some (like California) are pretty good.

Also, you can probably get more house for your money in Ohio.

[mishb]

There is always Melbourne Australia :wink1:

Sorry, I can't offer any other places so I just wanted to say that I am so happy that your other half has put you and a vasculitis hospital at the top of the list.

[blu4runner]

I travel from VA to Philadelphia PA to UPenn Hospital to see Dr Peter Merkel I feel he is a great doctor and vasculitis is his specialty. Best of luck in this decision

[im so blessed]

I travel from VA to Philadelphia PA to UPenn Hospital to see Dr Peter Merkel I feel he is a great doctor and vasculitis is his specialty. Best of luck in this decision
Hey Victor! I called his office yesterday but he is not taking new patients. I know he is one of the best in the gpa world and i really wanted to see him but they only offered someone else. I need a good dr too...so let me know who u find Nikki.

[blu4runner]

Dr Shrieh works with Dr Merkel at UPenn and is a good dr as well

[annekat]

There are some good vasculitis docs in the Seattle area, but I know someone who travels from there to Portland for her care at OHSU, because she really feels in good hands with the doctors there. And there is wine country in both Oregon and Washington. I think you would enjoy the climate in Oregon, especially the mid-to-southern part, and it would not be radically different from northern California. There are enough smaller cities that would likely have jobs in your field. Just off the top of my head, having not passed through Oregon for many years.

[Debbie C]

Nikki, even though I think Cleveland Clinic is great... I would not want to live there. I am sure you would have no problem finding a job, maybe even if it isn't for 911. The less stress the better,maybe look into a career change plus the cost of living in Cali. is probably a lot higher then anywhere else. Good luck with your search

[Gab122]

Have you considered living near Boston? Lots of top GPA docs here. I'm super new but am very impressed with my care so far.