Hello New to site looking for info

[lincoln imp]

Hi there
Diagnosed wengers for about 3years now been an up and down road back on methertrex again any tips on avoiding the sickness feeling would be great thanks

[mishb]

Hi Lincoln imp and welcome.

Do you mean, how to avoid feeling sick when taking methotrexate, or just with the crappiness that WG brings?

[lincoln imp]

Hi Lincoln imp and welcome.

Do you mean, how to avoid feeling sick when taking methotrexate, or just with the crappiness that WG brings?



yes both hate taking the stuff

[Dirty Don]

Hi Lincoln...I was on MTX in pill form for nearly 4 years, am finally off of it. The best thing for helping out MTX reactions is to split the dose, either morning & nite OR today & tomorrow...either way works & cuts down on the bodily effect. Also, folic acid helps with stomach & hair problems due to MTX reactions. Best to you.

[lincoln imp]

Hi Lincoln...I was on MTX in pill form for nearly 4 years, am finally off of it. The best thing for helping out MTX reactions is to split the dose, either morning & nite OR today & tomorrow...either way works & cuts down on the bodily effect. Also, folic acid helps with stomach & hair problems due to MTX reactions. Best to you.


Thanks Don tried split dose made the feeling prolonged last time was on injections this was ok at first but the feeling got worse after a while now back on all the medication steroids bone protection folic acid I was hoping for something obscure like eating an orange before taking it did the trick. Thanks I will have to put up with it and see how it goes

[vdub]

Putting up with it is about all you can do. Be thankful you are on a low dose. They also give mtx to cancer patients, but in very high doses where it causes hair loss, dizziness, vomiting, etc. I don't know the dose you are on, but I suspect its 30mg/wk or less. Eventually, they will taper it down to a maintenance dose 20mg or less. So, for now, just hang in there.

[mishb]

It's really crazy and I have been taking MTX for 5 years now and only just recently (6 weeks ago) found that if I have 2 paracetomal before going to bed the night of taking MTX, that I don't feel so crappy in the morning. I also will have a small bag on sea salt crisps in the morning (I just too my MTX) and they seem to help ease the headaches.
I wish I had figured this out years ago. Maybe it just works for me because my system is used to MTX now.

[ldayfrantz]

Also new to WG. My mother was diagnosed at the end of May and has complete kidney loss now and is on dialysis 3 days a week. Unfortunately there aren't any doctors really up on this disease in our area. (Southern Indiana) I have researched but still not sure what I should be watching for. She is on prednisone and Cytoxan but now she is swelling really bad around the neck area and the bridge of her nose is looks sunburned and you can see tiny blood vessels coming to the surface. Any advice on what to look for and when I should get excited would definitely help. Thanks in advance.

[Alysia]

Also new to WG. My mother was diagnosed at the end of May and has complete kidney loss now and is on dialysis 3 days a week. Unfortunately there aren't any doctors really up on this disease in our area. (Southern Indiana) I have researched but still not sure what I should be watching for. She is on prednisone and Cytoxan but now she is swelling really bad around the neck area and the bridge of her nose is looks sunburned and you can see tiny blood vessels coming to the surface. Any advice on what to look for and when I should get excited would definitely help. Thanks in advance.

welcome to the forum. I am afraid your post is "lost" here without answers. try to post a new thread on the new members introduction with more details if you can. maybe someone will be able to give you names of wg experts around you. the key is to have a wg expert.

[Lucky]

It's really crazy and I have been taking MTX for 5 years now and only just recently (6 weeks ago) found that if I have 2 paracetomal before going to bed the night of taking MTX, that I don't feel so crappy in the morning. I also will have a small bag on sea salt crisps in the morning (I just too my MTX) and they seem to help ease the headaches.
I wish I had figured this out years ago. Maybe it just works for me because my system is used to MTX now.

Would just like to add some weight to the paracetomal comment. Ive only been on the MTX for 12 months but after abut two months I was a bit over the headaches and the crappy feeing you get , so I started taking two panadol the evening of the MTX. It certainly works for me.
All the best with it.

[forthgolfer]

I've had an interesting time with various meds .After chemo I was on MTX until i ended up in A.E,......then Prednisolone....Azathioprine which sent me back into A.E.now I'm on Ciclosporin 25mg.Ranitidine 150mg....so far so good ...except for the bruising at the slightest knock and my skin is like paper....when I started with this I hated needles....but blood tests every two weeks cured me of that.....I'm not complaining,I just wish I had more energy.....


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