Kathie28
06-21-2016, 02:17 PM
I haven't posted in a while but one thing that always bothers me about my course with Wegners is that I have stayed at a high Sed. rate. After a long treatment with predisone I seemed to reach the best I would ever be which ranged in the 50's and 60's. After blowing up on predisone we made the decision to get me off of it and I no longer take it at all. I think I reached a point of it doing more harm than good. I haven't taken it for close to 2 years. My Sed. rates did not increase when I went off of it and at times have fell a bit more but I continue to typically run in the 40's and 50's. My labs run normal now in every other way but the continued battle with the Sed. rate and slight anemia. Mostly I do really well sometimes the joint difficulties are more difficult than others and I may take some Advil. Most mornings I wake up in good condition and tend to have joint pain later in the day. I wonder if there is anything that would get the inflammation level under control. I take Imuran daily and Methotrexate weekly.
Anyone else face the same battle with the Sed rate? I'm going on 5 years now with this diagnosis or never a normal sed rate.
Maybe as long as I'm doing okay it doesn't matter? Maybe that is just life now.
Anyone else face the same battle with the Sed rate? I'm going on 5 years now with this diagnosis or never a normal sed rate.
Maybe as long as I'm doing okay it doesn't matter? Maybe that is just life now.