Alysia
02-09-2016, 12:39 AM
Thank you andrew & vdub for organizing the forum so that friends will be able to find needed info easily.
Also thank you, from the bottom of my heart, for keeping my sweet Phil's thread. I dont want it to remain only for Phil's memory but also in order to help other weggies. The thread contains important info that we earned by sweat & blood (also literally) so I will be honored if this info can help anyone.
I selected the relevant posts: at the bar above each post in the right corner there is the number of the post to which I refer.
So in this thread http://www.wegeners-granulomatosis.com/forum/random-off-topic-discussion/4238-pberggren-memorial-thread.html
There is info about plasma pheresis in the following posts:
103, 105, 107, 109, 116, 117, 129, 130, 132, 138.
There is info about Ivig in posts:
138, 143, 145, 147.
There is also info about Ivig here: http://www.wegeners-granulomatosis.com/forum/medication/4327-ivig-treatment-please-help.html
Btw, There is also great info at the 2 threads of Phil about bronchial stenosis, dillation, pnuemothorax, chest tubes, and lung transplant. I might try later to select the specific posts to an organised post...
Also thank you, from the bottom of my heart, for keeping my sweet Phil's thread. I dont want it to remain only for Phil's memory but also in order to help other weggies. The thread contains important info that we earned by sweat & blood (also literally) so I will be honored if this info can help anyone.
I selected the relevant posts: at the bar above each post in the right corner there is the number of the post to which I refer.
So in this thread http://www.wegeners-granulomatosis.com/forum/random-off-topic-discussion/4238-pberggren-memorial-thread.html
There is info about plasma pheresis in the following posts:
103, 105, 107, 109, 116, 117, 129, 130, 132, 138.
There is info about Ivig in posts:
138, 143, 145, 147.
There is also info about Ivig here: http://www.wegeners-granulomatosis.com/forum/medication/4327-ivig-treatment-please-help.html
Btw, There is also great info at the 2 threads of Phil about bronchial stenosis, dillation, pnuemothorax, chest tubes, and lung transplant. I might try later to select the specific posts to an organised post...