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blu4runner
01-13-2016, 05:26 AM
Here is part 2 pf my video recorded at the Vasculitis Symposium in Jacksonville. Thanks to Ed Becker for recording and producing this series!
https://www.youtube.com/watch?v=MXxptkEEgnU&feature=youtu.be

(https://www.youtube.com/watch?v=MXxptkEEgnU&feature=youtu.be)

debra
01-13-2016, 06:38 AM
Blue4runner, cool, thank you. I will check this out. Where's part 1 though? Sorry, still somewhat new to the group, internet world! I was a virgin, so... A lot to learn! Please be patient with me? Debra.

Middlesista
01-13-2016, 07:18 AM
thanks for sharing!

andrew
01-13-2016, 07:58 AM
Great video! Thanks for posting that. Second Debra's question: Where's Part 1? :)

debra
01-13-2016, 08:13 AM
Andrew, hello! Oh good, so you noticed too! Hope you're good Andrew! Deb.

blu4runner
01-13-2016, 09:39 AM
Here is part 1 I posted it several months back. I think these are great for awareness of what we deal with I know when I was first diagnosed I searched for all the information I could get regarding Wegener's
https://www.youtube.com/watch?v=srL4-0zwe8Q

debra
01-13-2016, 09:46 AM
Thank you, blue4runner... I too searched for everything I could find. Wondering if I've seen these, as I haven't looked yet, just marked em. I was waiting on part 1!!! Kidding... Debra.

debra
01-13-2016, 02:16 PM
Blue, and you all, not quite a rhyme, but ok. There's a good short video you can view on the tube, called the Mark Lesko story, its short and one of the best I've seen, although very sad. It features a Wg expert from, vcu? Not sure, sorry.TThe , ignore the extra t, thing I liked, was the medical staff, getting emotionally involved and paying respect to Mark when he left here, this world. There's also a good mystery diagnosis video, also good featuring wegeners... Both these are under five mins, I believe, mystery one is maybe a little longer. Also there are Wg seminars, that have the specialists present, and each one does a presentation... Get lost in the tube, you.... Deb.