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greenjeep
10-21-2015, 01:10 PM
I haven't been on the forum for a time. I've tried concentrating on living, but I miss the company.
Had a bout with kidney stones a couple of weeks ago. Thought of the forum while in the hospital. Tried to get on but it wanted me to log in and I didn't have the info with me.
The stone made my creatinine rise. I am usually at about 1.4 (suffered kidney damage due to wegs a few years back). In the hospital it got up to 2.5. At discharge it was back down to 1.9. Hoping I get back a few more points!
Has anyone else had similar trouble from stones or infection?


Sent from my iPhone while driving on the freeway, eating salt, and drinking a 78oz soda.

mishb
10-21-2015, 08:23 PM
No wonder you have kidney stones GJ, you are still eating all of that salt and drinking all of that sugar :flapper::lol:

I have heard of many people in fb groups that talk about kidney stones.......Ouch :crying:

I'm glad the stones have now gone and your creatinine levels are reducing again. :hug2:
I have never had troubles with them (touch wood) so I can't give any advice in that area

greenjeep
10-22-2015, 03:16 AM
I guess you're right! I'll switch to beer.


Sent from my iPhone while driving on the freeway, eating salt, and drinking a 78oz soda.

greenjeep
11-07-2015, 10:27 AM
Well, just wanted to update and possibly warn others.
With all of the bloodwork and whatnot this episode kicked up, they found my ANCA was positive.
I have been in remission and on azathioprine for 1.5 yrs. I know ANCA is often a weak indicator for GPA, but we are having to take precautions.
My rhumy hopes it's more of a stress reaction to the kidney stone trauma and surgery, but we will see.
I'll keep you updated on the outcome. Was not expecting kidney stones to kick off a relapse.


Sent from my iPhone while pondering the inevitability of a plurality of intersecting realities.

Debbie C
11-07-2015, 02:43 PM
Do you eat a lot of greens or spinach ? I heard this can cause stones also. I had them when I was about 16....ouch. So I feel for you. Hope everything turns back around for you. Don't be a stranger AND stop texting and driving !:biggrin1:

greenjeep
11-13-2015, 08:12 AM
I would say I eat less greens/spinach than normal. My urologist warned me against salt in any form and to drink more water. Both of these are a challenge for me.


Sent from my iPhone while pondering the inevitability of a plurality of intersecting realities.

Tanya
11-15-2015, 05:21 AM
You need to know which type of stone- some are calcium in which case you would need to limit calcium.

greenjeep
12-01-2015, 04:51 AM
Only problem there is I have osteopenia due to steroids so I'm supposed to take calcium. Vicious cycle.


Sent from my iPhone while pondering the inevitability of a plurality of intersecting realities.

Aneinu
12-01-2015, 08:06 AM
Ouch!
I feel for you.
I have had several bouts of kidney stones (my son has GPA).
By me, stress is an instant stoner.
I can feel 'em comin'.
I sometimes can walk 'em off, or drink 'em off, but when they come, ouch!
Chocolate, nuts, coffee and such are kidney killers - for me at least.

Stay strong and keep up the positive attitude.

debra
12-01-2015, 08:56 AM
Greenjeep,hi! Just wanted to tell u,there are many different forms of calcium,for example carbonate calcium is not good and can contribute to stones,calcium citrate and so many other forms that will break this cycle for u,if the stones are calcium type stones. There is also chelated calcium. I posted yesterday and mentioned a company I used to use,for cheep dependable supplements,but felt weird after,as I don't want people to think I'm a rep,for the company! But today,being cyber Monday,u can get free shipping. U can also research the different forms there. U can veiw the name over at my little home thread,that Alysia helped me with,as I was a long time lurker! I posted it late last night.... Deb. Who was told i also had stones,but oxilate I believe? Who knows!

Aneinu
12-01-2015, 09:24 AM
Mine was oxilate as well

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debra
12-01-2015, 09:40 AM
Greenjeep, hi,I would ditch the carbonate,its also in tums and look into the citrate. I switched,but then stopped all supplements because they need to be broken down in either the liver or the kidneys,and I'm having problems in both,so as to not put further stress in these areas. Till I know what's what,which at this rate,well who knows! Look at the chelated form as well if u can. Deb. Thinking of the untreated stone found almost three years ago,on top of everything else.....