Contacting Dr David Jayne

[Sladey]

Hi guys and girls,

Does anybody have an e-mail address or other method of contact with Dr. David Jayne at Addenbrookes? I have had enough with my local GP who won't refer me to a specialist as he insists that I am fine because my ANCA returned negative, despite my never ending list of symptoms that all fit with WG.

I am local to Addenbrooke's and I have heard nothing but good things about this particular doctor, so I would love to see him or at least talk with him if it's at all possible.

I am getting increasingly desperate and figured that somebody here may be happy to help. I would be eternally grateful.

Many thanks,

Jake

[drz]

The best way if you don't have a referral from another doctor is to call the clinic direct and ask to schedule an appointment with him. They may have a person or department that screens and sets up appointments for new patients.

[Pete]

According to the Vasculitis Foundation's website, you should be able to reach Dr Jayne at 44.1223.586796. Hope this helps.

[gilders]

Hi Jake,
I'm under the care of Dr Jayne and funnily enough it was through this forum that I obtained his contact details. I'll send you a Personal Message with his details.

I'll let you know the process I went through to get an appointment with him.

-I emailed him. His email address will be answered by his secretary. His secretary replied back stating that he would be happy to see me - I just needed to get my GP/other specialist to refer me.

This is where you may struggle. Firstly, I have been diagnosed with Wegener's so he would know that he would actually be seeing a new patient that DEFINITELY has Wegener's (i.e. he probably doesn't have time to see patients that have self-diagnosed themselves as having Wegener's. However accurate your self-diagnosis may be).
Secondly, I still had to get my GP to refer me and as yours seems unwilling, I'm not sure how you could arrange an appointment unless he sees patients privately (non-NHS).

The NHS isn't really set up for you to be able to pick and chose who you want to see, unless your GP requests it. In fact, the chances of actually seeing Dr Jayne even when you have an appointment with him aren't that great. I've only seen him once out of the last 6 appointments. Don't be too alarmed at this though as all the vasculitis team are experts and every patient is discussed with everyone else (including Dr Jayne). I do think you can request to see Dr Jayne, if he is in clinic, when you have your appointment.

[annekat]

Good to see the feedback on this, which should be helpful. Shows the importance of putting Dr. Jayne's name in the title of the thread, to really get the right people's attention.

I guess one suggestion would be to find another GP, or an ENT or pulmonologist or other specialist depending upon your symptoms, and get THEM to give you a referral to Dr. Jayne. Being in the US, I have no idea about how the NHS works, or whether they'd let you switch GPs. But I'd think with your symptoms, if your GP cannot help you with them, he should be willing to refer you to some specialist or other who can, if not to a rheumatologist, and maybe that new person would help you with a referral. Otherwise, maybe you will end up in the ER with a severe WG flare and then someone will be forced to deal with it! This situation is deplorable, not that we don't also have issues in the US with getting good care. I would hope that in the UK system, there would be some avenue for complaining or asking that grievances be addressed. I don't even know how one would go about that here. I guess looking on the web would be my first impulse. Best of luck to you! :smile1: