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View Full Version : Who can recommend the best wegs doctor to see in australia.



woz
09-05-2015, 05:53 PM
I looking for a good Doctor, with Wegs experience, in Australia, for a second opinion, I am willing to travel anywhere in Australia to find such a Doctor, all my blood tests have been good, but my PR3, which was once in the negative level (<2.0 Iu/ml) Oct 2013 has risen to around 12 IU/ml April 2014, and has been anywhere from 8 IU/ml to 15 IU/ml since then, I have maxed out my aza to be on 300mg per day, have even tried a little pred 5mg for 2 months to see if that would bring it down, but my reumy is stumped, and that's why I am looking for a second opinion. I have been in good health, working full time, and besides aches and pains and fatigue, feel reasonable well.

Thanks Woz...

andrew
09-05-2015, 06:15 PM
I see an awesome doc at RPA in Sydney: Professor Stephen Adelstein. Top notch bloke. Several in Sydney are great too. Where are you located?

woz
09-06-2015, 10:37 AM
Many thanks Andrew, I live in northern N.S.W. half an hour inland from Byron Bay, 1 hours from QLD border, a plane takes about 1 hour 40 mins from Ballina airport, to get to Sydney airport, I will definitely look him up.

Regards Woz....

jeniban
09-06-2015, 01:55 PM
Sorry that you are struggling with the disease again. Are any other markers up?
I'm saying this as my PR3 is now 45 but no other markers are up. I have recently seen my specialist and he is not too concerned, just wants to watch and wait.
As for another specialist I have a few friends with WG who see Dr G Majors at the John Hunter Hospital and Newcastle

woz
09-06-2015, 06:06 PM
Thanks for the info jeniban, all my markers have been great , except for my PR3, which seems to hover around 8 to 15, my reumy isn't too worried, she wants to watch and wait, when first diagnosed my PR3 was 60, I would like to get it back to under 2.0 Iu/ml, if possible, but maybe this is as good as it gets, time will tell.

Regards Woz....

jeniban
09-06-2015, 06:40 PM
Feel free to come to our Aussie Facebook site. Loads of great people.

woz
09-07-2015, 07:24 PM
Thanks for the offer Jeniban, but I'm not a facebook person, I have a facebook page (4 friends and thats my wife and 3 kids) but the last time I checked was a couple of years ago.

Regards Woz.....

mishb
09-08-2015, 12:21 AM
Jen, Woz did join the Aussie WG facebook group, but as he said, he is never on :sad:

Woz, is Gold Coast closer for you? The Gold Coast University Hospital

Dr Hanish Bagga at Coffs

There is also Dr James Mackie at the Prince of Wales Hospital in Sydney


I hope some of these help

woz
09-08-2015, 07:02 PM
Thanks for the Info Michelle, I hope you are well, and the weather in Melbourne isn't too dreary,
I was actually born in Warrnambool, and now live half an hours drive from Byron Bay.

Regards Woz....

mishb
09-08-2015, 08:52 PM
Thanks Woz, Melbourne is freezing and wet :crying:

My grandparents came from down Warrnambool way and my brother in law and his family still live there.

I don't know Byron at all, I have only driven through.

I hope you can find a specialist that can help.