VPPRN enrolling patients outside the US now

[blu4runner]

The Vasculitis Clinical Research Consortium (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD EwUWYrD9drBComVvZ9AZsW4LgRSDqoVZnGSnN-2lawPo_4adFxPwvMaCKQJW_iR43k4mZgqiFCP3Zr89ODHmMBnT CvhkXNaDIsyrJZWi7-URYju8ooKVTT4NgeaMJDAI9Csesg0nwXP6Mhe1XYRrPcvPLJlp 6v9lTDrldG2J9Q3MWFDtHJsLumJ-sti8bDdcmgMZKYYSCajTwpA8LuQ9D-2gtl3zmvvzk_npblFDC2_jSmMiQHCBGmHlirJorrJVyTfmw7ZO IGm2T0rCkzpslupSmVLdvn7gbjM9WpOVOG_IcW31y823FfO8Nx 9_79nGQNKZNXmnz8xuzdZjImJPWk%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)and the Vasculitis Foundation (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD OCaGNwbT-eHQb9RtAaSVHwsUIxXT2TRNgJf2B2k_DqmsjDu5ac4Z2FapnIN 9phUwOzzMiiQWG0Z0MA9Uuj839qXaXNVcZ9WvDySpA9SspBuFm DE8abw3uXGz92UemJhheWpb0dndytCWAYE_CRvrXdhWlbGeGXx a9Xb33WUYC-Js9xU8SvRaS6N6nMPT4rBCgDbx2J4NoNs3r3DFgvdlwEp4JV6u 3bd4Pbft-d8pXgh6yQgMtekmp76OF1fHUxxh-qyIn6pKLVXuOw7nyUJ0k76Oe-MB-U7LofqHGx3qJzpYWAVm6G3sRPfhgBIRlZca2XnCF45gpBl%26c %3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d) are excited to introduce the Vasculitis Patient-Powered Research Network (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD PCawtlmHb6Q9j9joXk9c2QzK3gwN_8Yi6LztjGSi-e34WIeLtTHgE9yLJpwWD3-8d49y_jd1w8TfDSS-JiHSYABxoNGKVzry4dp3E0s61SKzq8as8j3kYs_6J2Eds-5Hhjt095-rUnh_LxoqpAow2WfJhHEVuj48qdISxvaOxIDQ4dvwgRzZokxsU lNOHcFxzjgDNYwBPndPukgb6t0x1YioKjLRPr7u1sYC-4JvQvD6mLJWK_ZrTuY7WfuSWKPg8ryqEcZbLUdwgl-8kluDSnUE0FLkFo_8sVTZ4mACaJy8_J-3l7EkKk%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d) (V-PPRN)!

The V-PPRN launched in November 2014 to patients in the United States. The V-PPRN is now expanding internationally and is enrolling patients outside of the United States.



The V-PPRN is a research network with the ability to collect and securely store patients' disease experiences, known as patient-reported data to build robust data for vasculitis research.

We are enrolling patients with vasculitis, parents of a child with vasculitis, and caregivers of adult patients with vasculitis. The V-PPRN is studying the following forms of vasculitis:










Behçet's disease (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunrePW4OkmdbFRChdGXFiWFGljiLxqQcZPormJbYA JX-pL0QcMehvm5z81GL8QRux2CFrQT57GkPCmD9yAGjrVB7fZrxF4 xZsB4qvImchWNdYhjOHdjFpAUdOTfwM0KiIPqTnMWmAfTMjIPf hMn8wXxxoLz7t6vLCMFzB23fRLYfZYgQdfnrvirJsmskI1oeMw lvF9JCmXmvQdYdnWfyFh7yaf5dDAGLOiRu6HR7EyQIpo0Ki3qt QAHB-l0fSwfecAtp3Y_UvG9Q05P7XSxU8QyFvLCi-YuS1BRlJvfAd4hvbyUwSCIuWamS3MEWNzLz_Cqp38ymZxNfF7Q rNf9Nq0079yf0XaJKba4eEl55DSdLmWiuNU0Oh-QQ%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
Henoch-Schonlein purpura (IgA vasculitis) (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunqKXXbcW7E0Zuq5cuwIYwKWnHGRNqJNSL6UzBFIn amzK1iQGckhT5kyxoStxqagRcf8h6z2Yx2d2bVtjNJRRu0nsja J8N88nYwO-NRqaTnVTh6wk8u_8sQVlZFY81KdkS21olqW4Ry3cfCJSHnZTVF OHI4zE-JLtlTnnsf0MHU9j9o_8akTfDvcmvQ7EbjzoN4oGdnBNWoQLZJn KkjXTi7QQuTYSegO6GZDHh4IOq3DIyrWTDdLegfdKDdgB9ktuK TtWtkt4YVbz_gNXNzdejINcwWQwV_SwptYXWcCfBDUTqCjdNoa avM3Ibm_NL16Ze4jXu9Wo7rd81TbuEvXXpM0T3GsA3aSKx3icQ xoKlZwUSu3GXy6YxhVA_3yiNuzfe%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)


Central nervous system vasculitis (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunuQifWIeb6c_-a3d_YC6dot-T0H7kQikopSa5yQwSmBKdzzfm4zUfKqjDWI5mvO192Bz9YktAU PRlX8qJK8H93IIHVheNnlqbvzlwV9H1iWXZE_f0Lquc3I-Dw6619WOg9lriLcQ5T7huzEgNP3j-Bwew00IzUUYdfHXCQwjhKAFQsNm0x7Kk4U6F5eKUgkkhDSGHCJ Jft4dr5LSONwtUs5n3yS9YpNX1AFl7BzkzaUhfNIRbopKgcder jlX8jw8I4H2L0pLu6JH4FC5nPi7jiAR-NwpFaDELdV1OIC_Dy7kMIEG9V9716-4sMOBcAbM5K6-8oNleVVSr3UUC1_AnyT2d-ZcrwRrfh7TC2lSZcYnNwo2pscVW1wthw1totY_M%26c%3dnW5c DI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
Microscopic polyangiitis (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8Xun57avmfjwZB6zGH77FXmahYsbAUWMemeNU7dTis8 4SzhAdS_7aCQbFDj1FnuJw3RlAPiwbvqWW5ZigrDXwCUmRFo5_ DoYETS6_f8XpbbEvVoz_R1-dzZDrC8_l9YcCZpYbGS_7tngF8S18PXUBla-u0AHE30TNljjmNqzvItNRpwGOY2DR4Wfdu4wkAzUKu7wSApnRo Ih1E6B1Ya0c9a9F8O8VmX-esR-JL4wvGD6sd20KVYtT0C9PY47BdJCxPwzncQ9F4PmiKOB0FTR_E VuDz0IZ9yede3TID8NxPLIBlEDvbcKca11XoX_iXz1TbOlZCaS WCnBBMJeMZzDWEf8SIT2EQPpPINzq56qWxNMgJNW48rCqHXfYd YWXSl9tE7n%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)


Cryoglobulinemic vasculitis (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8Xun7lZB7FIqGmiHr33vo4X_h_gQK0epW5vTjpPoaEh-5o_65f9baaWNWL1a7hRnJ_0c4iGssu4KhSKnq9SnmQozsxmO75 IU0pLg-A8LE9_yvZU8EZrro1bsh9o2hBe1gzyfzOSFjKwyIBBqUQ-I0FVAdaQYhiTa2gsNI6tYgv9eGXqJGopgTCkT1Ee2nxp5MgiG9 7SpCSz1PubDOKLIGR4nBqy1qySk3iK4L65PpXCZSyajy3zQuxs E_vMRZpVDjkUCCJUKbUp66ZxMyNUOeGiW78vGyPJMPGuJBpBGd Gy-iBitzeE6TR8QaBRxYCYSiATU8GBkZbWDxEfTg6lnZUXX4-YxX5sP5MU-IGbfi0dkne5xlNzwNzXmwg%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
Polyarteritis nodosa (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8Xun301ahSAatNIKFRzJJM2ATAY1IUJd1tCsCHxcPf5 SX3FYFl7ipzEOdpHMHk9IIyK8n5wyB69rh5THKQCNG8BNea7PC aBb5NqGJVG84Hsjr07n9NZo6Dcx8XUGm7iuXkmsB-M-dF6HPDgZQu2ppK_TP222DerepjHH79NHp0eMIRSP1y6kMt4KJx FWrLa2-iyIqH2puqMPgU2xYjeOLD_aarf8hQHnwsV8XjwRk_3bkGRhb-RcZi0gmi8mH51oTjqaShMsCFNC15TcO6e8Odews1lsyj6mX0CO HcPwzVnHhTgjBKbj1ampAUloVco65NWp9bgyhcZ87RxlDmhy62 hijRuWptwcBme1-cLUCw5aWEbaCzgtfaaXhw%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)


Eosinophilic granulomatosis with polyangiitis (Churg Strauss syndrome) (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunetaJX53ctsAk36ThDVkqhjheouKETvIqdGjKmh3 WDNOtetNyy6Gxb_FhHXdlPkQbHlcwImj_SYd_d3ZbsVwsHaJ6O BBiT3YYNVCTok_YVFi0WI8fZVlziJa-PWWStOqg2Ty2hGreA0uQMqqGT72f7ryyYUtkpC5iRdXMlpOYhk WZITGFKkO8V4c6fxPpxoyL2K4adDvUCpSHphU079i9fAQyMlwu QCQIJFd6ZX0_azLPqWZE4Abq0QUFDAMQ81TT0_m_Ihxk8pGg3K Cyq2b70XyihZQt2uSRzLsF6i_ppxoudkn9fJNAWw_lx2B4V4Wu ZjShqFmfjj1d-qN7EcOGQpgr3cLR6n7q6n8Q9J5QeE0aQbwYFkY_8JvISgEdDeU aQUcu1TObnyxCgY_YMvWPoIn3F4lgcwrghlvI9E0NEJvOHEFGy e5A-g%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
Takayasu's arteritis (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8Xun33EmRw2NWBq9FxALL2yQCeQ2OuRnY4Mvv6eSfIa soBcbo-CbHmq9H2RToiatLv0LnbC5mdap7oH9bAEHq4c_k1qG16eTTynC ZzWS36n7tqwofWmaLbun6Vy3BbLfW32hQp0FUeegbA701Tj0qT zFoGywXsJ3GXJje5c7lwFG5yF_nBCt-q2zatTskyrzQe-y5T7VvDGZa3qIA1z-kixka--NHwcO1fZbpwmmbb-fL6P8igDLmGA-qr-GwgJTHO8GasUqF115GvwawVl7WmzUJfPbDnw5Qn7GDMjEVc7XA O_7XIPsGeO0BetjZphIeoZs8A4hlhz0N9Z18odClCR6Nnse3LN BKYWwqgkPJO4zrfrdgXlDUkQpyA%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)


Giant cell arteritis (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunrumItYax_MUxDnw-Z6a09WslDGUprjZR-aC-nGGQWt91akj-yUcxBl_XOdoLUgZhvvIUTI1m3nYXCRzGiOLzan7k7lDZMi8LQR EZqGEDtnr-eRjHM4KNTIY1jUIKMcguOrOPz5Eu0ifXRwVGGu9Lr1C3xQLxXp yjIYL6DQD2IKwZBJKlOQTNwl00sr1wdFli41f_bkylq8eO6E-UhnvbC4hpqLkS_y1hlHo4RkOLrpjQeHxumkqcnVUO3_Eb2HF16 c1N8twqkdWezGGaZJv5e379OwLRgz0i_R39KCei3WlhwnHk5A0 b79APcrK380XFSL8XcYvjW8oblK0BjerQodZBPWnVlE3-MlC-WgUQmgw_t5qX_a2C8w%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
Urticarial vasculitis (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunVzlVkaIm9pr0f4LLYVdIec_pEwnvBrlrXu4nEZh VbPahbK7ZI7lbeuTFKFfa1lmuo8MDA7Iq75URaZ3W4jZXwHcBn A3aHJ5NMmiDjgQTkYNiRGmU7OLTYWg-BWyM_LMxSKy5oSQPM_ztYf7QkkrlZ-8R7QHAXkJYBrA4wgmi0iEnRgjArYbAKUhYfCqrZoqN4dETaPeA VYmVCG_QZZjiBhBjcTkSzdNb9HiJA0OA1q4ceEH79_smA_aHDp Xo4DjANPFe39G9K67IghTucwFb_lmEy0QGM8rdSsMO3JJ_V2EF yO2_4WAU_SSjxgZMMMimLDRFfnTRc_uqeIKIllQckNVq9pgHBu hOVQ3Fu7wJk5IdIxL01gmQYg%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)


Granulomatosis with polyangiitis (Wegener's) (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD LP0XUbL8XunMHxOQn23bftu1LszIqpj9WblgWwr4Qo0RhkpyEX BU5JyK-1TuLhMfJQK4Clrgj9Zf9tg23bMHEzkp1zy5BwDYTr3NyFE9ZXw QpTEcb4gv8YcHWjHw33EHfw5IaOaqzKIMszXJAaF5KdhsOHOiI FI7HnjLUilPCxf8hgkEakjkaflN_2IiOJVnDL8NZ0DNgirRodt Vamo3hgZqWeB804E3_4UwyYFzej6QDsxo5Z_zMoWgQXR4KigWE-8RsTTGDqpc0GHC4LtUlxX1UOjL6JWufIl8jmO1salHH2oRUr9o baJ6qzHkCbGCj2fnHHybpvWJ7F8rkJpQllItskTLcphqiFHUSt 6lGx3kQPIniGvVG1qGthT_2-7tmiMe48-gymOfn4c_RlKzYHUGeuvcjRXhg%3d%3d%26c%3dnW5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
Other forms of vasculitis













The V-PPRN is a whole new way of finding answers for the questions most important to YOU and other patients living with vasculitis.


We hope you will join us in creating a new vision for vasculitis research by becoming a vasculitis visionary and powering the V-PPRN!

Here is how to join:


Follow this link: www.vpprn.org/webapp/views/consent (http://www.wegeners-granulomatosis.com/forum/redir.aspx?C=zQT-S6aU_U2SDznnvThB5k1kXJt_rNIIWdHAOIeoAjYw_JC1Gvrygj noHdMlGUFDOZSuwD9xbAU.&URL=http%3a%2f%2fr20.rs6.net%2ftn.jsp%3ff%3d00166L gIxVDPWHheUdPwAUGx5ZlDiINS40uY67emjwjn5mIrJPvQCeCD PCawtlmHb6Qc-fZ8qWphIjrWWU6_37oYp9iEqaF00lh-UA-Y03JYF5snYFMUoWr2MUUsaAHb85q4K_Ldcpk1Kmb5rJ2lcqhFA 3IViwIsBDZkH-X6Gev48JfQiBgqXE1Ge1jvGILhJDtyRNA2uk-TNRjgIfjS0rtkfJMGOO0CHKPaYUARgOONPy7vCgLOjeA0z7Ksl JLqu2J3uZpdTuxNkTMjCmvqk9z63JnA5j3m-tKc5TBulVT_4kiXtNse-GG87eAs30oFdh2M1OkJ6XLZPu4ncCoeSJpEkVrN_aXQovxycJz savQfx_Wz2x4dqClgrbFlKHdF5QANa4_GanmgL0%3d%26c%3dn W5cDI9X_-dnll3KZ6VyZnIUiaM-R-0blj0hwqLayhJTefIsVt4AkA%3d%3d%26ch%3dlDabzmR5_E6q 4-h6egSNGEd1WIVpdk6C5dYIypo63-W8Me0vIlTThA%3d%3d)
After you register, answer questions about yourself to complete your MyV-PPRN patient profile.
Check in regularly and make sure your information is up-to-date.

[pwc51]

I have been trying to register but am encountering problems with the system saying my date of birth is invalid! I know I am old, but not that old!!!

[Birdie]

I have been trying to register but am encountering problems with the system saying my date of birth is invalid! I know I am old, but not that old!!!

It worked for me, are you older than 1958? :)

Perhaps you didn't get it entered in the exact format it wants.

[pwc51]

Sadly I am older than 1958! - the system automatically puts the date format when using the calendar. If I type the date incorrectly it will not let me pass the field yet, as soon as I hit Register, it says the date format is wrong! I am wondering if there is an internationalisation problem as the UK format is not the same as the US? I have emailed the team but not had a response as yet.

[Birdie]

Ahhh, that's the difference. I didn't use the calendar thingy, just typed it in.

01/22/1902, in your case :) :) :)

Not certain yet what they're actually up to with this but it seems it's simple data collection concerning patient perspective, how do you feel sorta stuff. General data that researchers can manipulate to compare patient response to treatments. Right away I got an email invite to fill out a follow up, presumably to compare with the original and verify my answers.

[pwc51]

I have registered using a birth date that had a day and year that are interchangeable! Started filling in the forms and then they started giving errors (probably because it kept putting UK phone numbers into the US fields, without me entering them!) - all seems a bit flakey at present! I may get there in the end!

[Psyborg]

I have registered using a birth date that had a day and year that are interchangeable! Started filling in the forms and then they started giving errors (probably because it kept putting UK phone numbers into the US fields, without me entering them!) - all seems a bit flakey at present! I may get there in the end!

So US is generally MDY formatting, I believe European formatting tends toward DMY? ISO is YMD which is what they should use for anything online, but frequently people default to one of the other formats. Not sure if that helps at all LOL

[pwc51]

Completely agree Bob - I'll wait to see if they manage to fix the problem!

[Wegetarian]

Thanks for posting. I guess I'll join. In general I usually don't want my data to be put in any databases, but this might be an exception since its very likely used for my benefit instead of some marketers benefit.


So US is generally MDY formatting, I believe European formatting tends toward DMY? ISO is YMD which is what they should use for anything online, but frequently people default to one of the other formats. Not sure if that helps at all LOL

Oh, I heard they use it in Japan. I like it the best, easy to sort stuff on the computer when you use YMD in the naming.

A helpful pic to highlight the different methods :)

http://i.imgur.com/TKJkOWu.png

[mishb]

The link does not open for me, either does the web page, which for my computer means that it is not a secure locked site. or it's no longer a valid site.
I wont be putting my information on there, if I was able to open it.
Sounds good, but sorry, I'm out

[pwc51]

The team seem to have fixed the issues with the site. Also, certainly now appeared secure to me too.

[Debbie C]

This was mentioned in the VF newsletter so I am sure they would use a secure website. I don't think there should be any issues,Michelle

[mishb]

No.
My laptop at home and my computer at work, wont let me into the site.
Oh well, doesn't matter.