txrepub4God
07-31-2015, 07:18 AM
Hi all! I know I'm really new here and not many know that much about me. The basics are, I'm 42, married to my honey for just over a year, I didn't have any children until I married & now have 2 adult daughters and 1 11-year-old girl, my babies have always been my rescue dogs (4 of them), I live in Texas and am currently fighting for Social Security disability. That's a journey and blog all on its own! :) I spent most of my adult life as an administrative assistant, but had gone back to school and was a phlebotomist when my health declined so bad that I had to quit working. I have been fighting the disability gods for my hard-earned money for close to 3 years now, and am currently on my 3rd appeal (saw judge, got denied, now going in front of Appeals Council). My honey is in the Air Force, so he gets deployed from time to time, which is definitely hard on me when I get hospitalized!
I decided to start writing a blog about living life with chronic diseases, as it seems like NO ONE understands just how sick we are when we tell friends or family that we've been diagnosed with a rare disease. If you tell people, "Hey, I was diagnosed with cancer," people immediately understand the seriousness of the situation and how deadly it can be. On the other hand, when you tell people, "Hey, I was just diagnosed with Wegener's, Addison's disease, IgA Nephropathy, thoracic aortic aneurysm, etc.," or any of the other myriad of odd diseases I have, they have absolutely no clue what you're struggling with and how serious it can be. Therefore, I wanted to write a blog for the family and friends of chronic sickies like us, so they can understand where we're coming from. You know, it's hard to explain severe exhaustion to someone that goes, "Oh yeah, by Friday after working all week, I'm so tired I can hardly keep my eyes open!" Ummmmm, no, that's nothing like severe exhaustion....but let me tell you what I mean by that.....THAT kind of blog.
Please feel free to come read up at http://teridinosaur.wordpress.com. My beautiful 93-year-old grandmother gave me the nickname "Teri Dinosaur", so I couldn't think of anything better to use for the blog site. :) She's my hero and my angel....I can't imagine my life without her. My blog is called "Living My Chronic Life". Would love to have you take a read - I'll probably update it about once a week. Thanks so much!
I decided to start writing a blog about living life with chronic diseases, as it seems like NO ONE understands just how sick we are when we tell friends or family that we've been diagnosed with a rare disease. If you tell people, "Hey, I was diagnosed with cancer," people immediately understand the seriousness of the situation and how deadly it can be. On the other hand, when you tell people, "Hey, I was just diagnosed with Wegener's, Addison's disease, IgA Nephropathy, thoracic aortic aneurysm, etc.," or any of the other myriad of odd diseases I have, they have absolutely no clue what you're struggling with and how serious it can be. Therefore, I wanted to write a blog for the family and friends of chronic sickies like us, so they can understand where we're coming from. You know, it's hard to explain severe exhaustion to someone that goes, "Oh yeah, by Friday after working all week, I'm so tired I can hardly keep my eyes open!" Ummmmm, no, that's nothing like severe exhaustion....but let me tell you what I mean by that.....THAT kind of blog.
Please feel free to come read up at http://teridinosaur.wordpress.com. My beautiful 93-year-old grandmother gave me the nickname "Teri Dinosaur", so I couldn't think of anything better to use for the blog site. :) She's my hero and my angel....I can't imagine my life without her. My blog is called "Living My Chronic Life". Would love to have you take a read - I'll probably update it about once a week. Thanks so much!