Troubled

[TobinWright]

Hello gents and gals,

I'm not the best writer, so I apologize if this comes out in one large jumbled mess. My mother is in the process of being diagnosed with WG and I don't know what to do.

What I mean is, you always think your parents and the people you love are going to be fit and fiddle forever and then something unexpected happens like this. From what I've read, you guys seems to have a pretty good outlook despite the issues you have from WG. That gives me some hope.

I just recently moved 10 hours away from my mother and it doesn't matter how many stories or medical web pages I read, I still don't know what to expect or how to cope with something I can't be there to help her with.

I guess my question is, what can I do to help her? I feel useless and my heart sinks to the bottom of my stomach when I think about not being by her side. Am I being over dramatic? Should I be as worried as I am? I don't know because the closest thing I know about WG is what I read on some ridiculously over articulate web page.

Anything would be a great help.

Thanks,
Chris

[andrew]

I don't know because the closest thing I know about WG is what I read on some ridiculously over articulate web page.

:) Heh - yeah sometimes less is more.

Welcome to the forum, Chris!

Do you know how the WG is affecting her? Lungs? Kidneys? etc?

The best thing you can do is be informed. You've done the right thing in seeking out others with this disease. It's much easier to chat with people going through it than it is trying to digest mountains of clinical info. The more you're informed, the more you'll be able to help her out, even if it's just lending an ear and listening. You'd be surprised how much it helps talking so someone that understand's what you're going through. Even though most of us look healthy, we still suffer the odd thing that can wear us down.

Are you able to visit your mother at some point?

First thing's first, talk to your Mum and see what the doctor's have told her. Ask her if it's ok that you speak to her doc as well. That might get you more information.

Ask whatever questions you like. We'll have some answers for you I'm sure.