Hello out there!

[Chica]

I'm new to the site but not new to Wegener's! I was diagnosed in 2001 and it's been an interesting few years. I was never very good at talking to others about it, including fellow member of the club, so to speak. But time does strange things and here I am! It's been a struggle. I was wondering if anyone out there had any heart troubles - either from WG or meds?

I was also wondering if anyone happened to see TLC's Mystery Diagnosis last week showing a Wegener's case. WOW- how surreal it was.....

[Marcy]

I just wanted to say that I did see that episode a few months ago. It was very interesting. Just as it is when it is featured on other shows like House.
Marcy

[andrew]

Hey there Chica! not heart troubles here but many have. I think there might be a couple of people on this forum that have heart issues but I'll let them respond.

I've never heard of Mystery Diagnosis but I've heard WG mentioned on House more than once.

[RCOSSIO]

What kind of heart trouble?