I believe I am Cured

[aussiefella]

Hello all. I don't wish to give people false hope but I need to pass this on. I nearly died last year with a bacteria infected aeortic valve that I believe was induced from the excessive immuno suppressant drugs from treatment for my wegners. I have read countless stuff on the internet that i will not go into now suffice to say I believe I cured myself.

I did 3 things that I believe have made this impact.

Read " A Course in Miracles"
Cut back on all sugar and carbs
And studied Prof Butykeo and the importance of balanced Carbon Dioxide and Oxygen, this man is a genius!

Most people with chronic diseases take in too much oxygen, snore and don't get the proper balance of carbon dioxide, critical for the red blood cells.

I am in splendid health, after my second open heart surgery and severe affects of Wegners, I am now on 2 mil of Prednisolone. I will wean myself off all this also. This is incredible as I have on as much as 75 mil.

Everyday I take Spirulina, Chlorella and Tumeric. All the nutrients we need are in these 3 three wonder foods. ( powdered form )

I also tape my mouth closed every evening to prevent snoring.

I am ecstatic, won my grade in the golf club championships and going strength to strength.

I also have a wonderful wife and son.

Good luck to you all. you CAN beat this.

[renidrag]

I am happy that you have cured yourself. I have not. I have not read " A Couurse in Miracles" although I believe in miracles. I also have cut back on sugar and carbs as a matter of fact almost no sugar. As far as Dr. Butykeo, when I see him on the Vasculitis Foundation website, I will consider his input. As for now, I am waiting to get oxygen therapy so I will be able to breathe. I can not eat the "wonder foods" of which you speak due to DVT and filter in vena cava along with already having a PE. Pulmonary Embolism. So please don't tell me I can cure myself, or give false hope to others.

[mishb]

I think that's wonderful, Aussie fella, and I am so happy that you have found remission from WG.

I'm not sure it is a cure but long term remission is something that we all achieve.

I am also with Dale in that I cannot eat those three miracle substances, and I also wouldn't be able to breathe at all if I taped my mouth shut, because of the internal collapse in my nose making it impossible to breathe through it.

My rheumy once told me that I could be an instant millionaire if I found a cure for remission. I hope that it is true, that you have done so.

I don't believe that you are giving false hope to others but I do believe that everyone's situation is different, such as mine and Dale's, and that sometimes what has worked for someone wont necessarily work for everyone.

Thankyou for sharing your joy and good luck with the final 2mg of pred.

[Swb21188]

Interesting I am glad this appears to have worked for you but I already restrict carbs and sugar and I only started snoring after Wegener's damaged my nose and sinuses. It was one of the first symptoms. This sort is in line with the person who claimed to be a doctor told me if I sat upright (I was standing at the time) I would be able to breath better.

[mishb]

This sort is in line with the person who claimed to be a doctor told me if I sat upright (I was standing at the time) I would be able to breath better.


WHAT THE !!!!! Gosh we have some interesting doctors/quacks

[vdub]

I think it would be optimistic and certainly premature to declare a cure when you are still on pred. I'm glad you are feeling better, but that might be a result of losing weight and getting exercise.

Personally, I don't trust anything I find on the internet, no matter how compelling the argument is, unless there is multiple supporting scientific evidence and reputable experimentation. I totally don't trust anything stated by a doctor (or any other professional) where he also sells the cure. Greed and the lust for money is a powerful incentive to mislead desperate people looking for relief from a desperate situation.

If you really think you have found a cure, then I would contact the Royal Melbourne Hospital vasculitis center and ask to be entered into a study to prove the cure. If they respond to you with keen interest, then you might really be onto something.

There is one other thought... You never did say (even in your original post (http://www.wegeners-granulomatosis.com/forum/new-member-introductions/3285-marhall-protocol-vitamin-d.html)) that you have actually been diagnosed with wegs. A wegs diagnosis is done through exclusion. There is no definitive marker to positively say you do or don't have wegs. Is it possible you had sarcoidosis (http://en.wikipedia.org/wiki/Sarcoidosis), which has similar symptoms as other auto-immune diseases. The interesting thing about sarcoidosis is that "About half of cases resolve without treatment or can be cured within 12–36 months, and most within five years."

[aussiefella]

I am happy that you have cured yourself. I have not. I have not read " A Couurse in Miracles" although I believe in miracles. I also have cut back on sugar and carbs as a matter of fact almost no sugar. As far as Dr. Butykeo, when I see him on the Vasculitis Foundation website, I will consider his input. As for now, I am waiting to get oxygen therapy so I will be able to breathe. I can not eat the "wonder foods" of which you speak due to DVT and filter in vena cava along with already having a PE. Pulmonary Embolism. So please don't tell me I can cure myself, or give false hope to others.

I thought I would pass on my views, I will not be posting again.

[LisaMac]

Just out of curiousity for you folks who have stated that you cannot take Spirulina, Chlporella, and Tumeric. Why? Is this something that is bad for Weggies?

[Alysia]

I thought I would pass on my views, I will not be posting again.

Dear fella,
it is kind and generous of you to share what works for you. it is also decent of others to share how they see it. with total respect for each other. please don't be offended. you are invited to share with us whatever you feel like, even tough some will see it differently then you. I am glad for you that you have being cured. continue to take good care of yourself. God bless you.

[kaysee]

I thought I would pass on my views, I will not be posting again.
Dear fella,
I can sense your excitement from your post and I am happy for you that you believe you are cured. However, most of us on here have tried many many things and we are not cured, not even in remission. Please do not be offended when someone does not share the same excitement and disagrees with you because they are not in the same place as you believe you are. Some may be suspicious because of the use of the word "cure". We have all been told by our doctors and by much research that there is no cure for this dumb disease. But we can receive treatment, and we may go into remission, and live a fairly normal life. At least some of us but surely not all of us. I myself am doing very well right now, but I expect that one day I will die from the complications of this disease. I have accepted that and I'm not expecting a cure, but I will continue doing things that will promote good health.

Please do not feel that you should not post again just because you do not get excited responses from all of us. I hope you will continue to be a part of the forum and let us know more about your diagnosis and treatment.

[LisaMac]

I agree with the ladies, please continue to post about your journey. We wish you the best of luck!

[Ruotsi1]

Not sure about the Spirulina or Chlporella, but I take turmeric daily. I have had chronic left hip pain since diagnosis and the turmeric helps me GREATLY!!

[savedbygrace]

I think its great to talk about natural ways, even if they dont cure us. :) So thanks for getting the conversation started.

I'm just as interested in doing what i can do be healthier, or as healthy as I can potentially be.

Those of you who can't take Spirulina or Tumeric, is there a contraindication or is it b/c of tummy upset?

I use the spices/foods but I don't want to cause problems if there is some reason not to. Let me know!

Also- have there been any good threads on the forum about diets/herbs?

I just signed up this year so I feel like I've probably missed all the great discussions about this topic.

[Pete]

I think its great to talk about natural ways, even if they dont cure us. :) So thanks for getting the conversation started.

I'm just as interested in doing what i can do be healthier, or as healthy as I can potentially be.

Those of you who can't take Spirulina or Tumeric, is there a contraindication or is it b/c of tummy upset?

I use the spices/foods but I don't want to cause problems if there is some reason not to. Let me know!

Also- have there been any good threads on the forum about diets/herbs?

I just signed up this year so I feel like I've probably missed all the great discussions about this topic.

I don't recall a specific discussion of herbs and supplements, but you can search the forum by typing the words into the search box above.

[PattyL]

Hey there..It is always nice to hear what is working for someone else..it could be helpful to others. I have heard also tumeric is good for inflamation

[JeanMarie]

Tumeric can be a problem for those of us on warfarin.

[Pierre42]

Activation of autoimmunity following use of immunostimulatory herbal supplements. - PubMed - NCBI (http://www.ncbi.nlm.nih.gov/pubmed/15210464)

Spirulina will stimulate your immune response, it is seriously toxic to us.

Ditto Echinacea, Goldenseal, Astragalus.

[drz]

Activation of autoimmunity following use of immunostimulatory herbal supplements. - PubMed - NCBI (http://www.ncbi.nlm.nih.gov/pubmed/15210464)

Spirulina will stimulate your immune response, it is seriously toxic to us.

Ditto Echinacea, Goldenseal, Astragalus.

Important for us to know and remember.

[annekat]

Tumeric can be a problem for those of us on warfarin. The literature that comes with Cytoxan also says to avoid turmeric. Still, I used a little curry here and there during that time, in great moderation. I think it is important to know because people may otherwise take supplements of it to reduce inflammation.

[annekat]

Activation of autoimmunity following use of immunostimulatory herbal supplements. - PubMed - NCBI (http://www.ncbi.nlm.nih.gov/pubmed/15210464)

Spirulina will stimulate your immune response, it is seriously toxic to us.

Ditto Echinacea, Goldenseal, Astragalus. I have also heard that Elderberry is an immune stimulant, and thus another one to avoid.

[JeanMarie]

Me too, I still use a little now & then.


The literature that comes with Cytoxan also says to avoid turmeric. Still, I used a little curry here and there during that time, in great moderation. I think it is important to know because people may otherwise take supplements of it to reduce inflammation.

[annekat]

Me too, I still use a little now & then. I think what I read only said to avoid turmeric WHILE USING CTX, not for the same reason as we are talking about but because of some interaction between the two. Which would imply it is OK to use it once off the med. I know turmeric is seen as a good anti-inflammatory and I haven't heard that it is an immune stimulant. Someone could know otherwise, though....

[jakekell]

I am glad this was posted as I was not aware of some of the issues with some of the herbs.