*it happens -- my routine crash

[vdub]

I have probably mentioned this before, but don't remember (my memory or lack of was an unfortunate side-effect of my brain surgery). Anyway, periodically, maybe every 6 to 8 months, I totally crash. Can't even keep my eyes open, so I go to sleep. Sometimes I will sleep a couple days, other times only 20 hrs or so. Yesterday, I slept 24 hrs. There's nothing leading up to it that might be an indicator that it might happen. But when it does hit, I can now recognize it as more than just needing a nap.

Yesterday, I had had a good nights sleep and got up at the normal time. One hour and 2 cups of coffee later, tho, I knew this was going to be one of those days. I went back to bed at about 0800 and stayed there sound asleep (not just resting) for 7 hrs. And, this was after having 2 cups of coffee.

Its kind of strange.... Its like my body telling me "ok we want to do a little maintenance work and install some new patches -- it will take a couple of reboots, so don't wake up until we're done.

[Geoff]

I like your computer analogy Vdub! of course I shouldn't have expected anything else from you!
You are absolutely right to "crash out", as if you had a choice in the matter?
I learnt early on that it was not a "sign of weakness" to give in and troop up to bed, providing I could make the stairs!

Hope those software programmers work double time and get you back 'on line' real soon! Best wishes my friend :hug2:

[mishb]

I hope your circuits are recharged and fully functional soon vdub.

What does your wife do when you sleep the days away?


Take it easy and hopefully the new programme will see you without WG :hug1:

[MikeG-2012]

I thought I was the only one that did that! Mine aren't 24 hours in a stretch, but there are some weekends that I crash and sleep 6 hours with maybe an hour or two up in between. I can totally relate to this, TOTALLY!!

Happy dreams rip-van-vdub! See you when your beard is long! Maybe one of these days we can compare them!! LOL!!

[drz]

Some days I just run out of spoons and need to change my plans and nap a lot to recharge too. I think it is just part of our new "normal".

[Dirty Don]

First time I hit the 'wall', I thought I was relapsing...went to sleep for 12 hours, voila...back to it again. Yes, recharging seems to be part of this game...recognize it, follow it, sleep on it, get going again...it IS the new normal.

[Debbie C]

vdub,have you ever went and got your bloodwork done around this time ? I know we all crash but to sleep that long is a little scary, maybe there is something going on

[renidrag]

I usually do about four hours in middle of the day. Back to bed at eight straight thru. Maybe once a month.
Dale

[Alysia]

since my sweet Phil passed I am sleeping between 10-13 hours a night. too much pain to hold every day. I just want to sleep and to dream about him.
Phil used to have days of sleeping all day. there were days of 2 kinds, as I learned from him: 1. one kind was days of needed rest (even without too much doing before but especially after busy days of "go-go" like he used to call them), days which after he felt much better and it seemed that it was healing sleep. 2. days in which the excessive sleeping meant that something is wrong. like another lung infection coming or flaring.
Debra is right, vdub. you need to check what kind of sleep is it and what it meant. not easy but important. there is also a question if it is connected to any medicine.
I hope that it is just a healing needed sleep. take care and please let us know how are you so far.

[annekat]

It happens to me, too, usually after a period of extra exertion or increased social interaction, but not always. Sometimes an excessive amount of sleep will make me even more tired and wanting more! But I usually just go with it and it eventually evens out to a more "normal" schedule.

[MikeG-2012]

Some days I just run out of spoons and need to change my plans and nap a lot to recharge too. I think it is just part of our new "normal".

And I am doing anything I can to fight this new normal, because, quite frankly it stinks!!

[Debbie C]

I know I have those days, especially now with the cold and gloomy days, that I can curl up on the couch and take a 3 hr nap. But I have never slept a day away. I am just worried vdub and hope you are not having a flare. That car isn't gonna get on the road with out you !!!

[annekat]

I know I have those days, especially now with the cold and gloomy days, that I can curl up on the couch and take a 3 hr nap. But I have never slept a day away. I am just worried vdub and hope you are not having a flare. That car isn't gonna get on the road with out you !!! If he's been working on his car a lot to meet a deadline, that could do it! It happens to me after the busy Christmas season at the farmers market, when I've been working hard to keep enough stock supplied. I can easily sleep Christmas away after that! Seeing a doc would not hurt, I agree, but sounds like vdub recognizes this pattern in himself and can roll with it.

[Randy]

I'm someone who considers himself lucky whey I get 3 or 4 hrs of consecutive sleep in an evening. Can't imagine sleeping for 24hrs.

[vdub]

Hey, I'm awake! :-) I had my blood tested about 2 weeks ago and it was as normal as mine gets. However, part of the test had to be sent to a larger lab. I just now called to have the results faxed to me. It was the testosterone. That could certainly affect sleep. I should have the results in 20 minutes or so. I haven't been eating much either -- that's not all bad, tho. Its kind of gloomy and raining around here. I'm sure that has some effect on things.

[Debbie C]

Good morning vdub ! Glad your reg. blood work came back good keep us posted on the other. Hope all is well with that. How are your eyes doing ?

[vdub]

Eyes are about the same, which I guess is good. At least, they haven't gone downhill. Appt is in about 2 weeks.

[Jaypfei]

The weather has started to get warmer and hubby and I are walking again. Between the walking and staying busy physically and mentally, I find that I'm ok for a few days, then I crash. I'm physically worn out and very tired. My labs are fine, so I know I'm not flaring. I do like your comparison to re-booting. That is exactly how it seems. It's also nice to know that others experience this.

[annekat]

Me, too, Jolinda. I may have plenty of energy to do whatever activity it is, or whatever social interaction or commitment, but it uses up spoons and I need to come home and recharge. It may be a symptom of age, too, but it is different, somehow. It's kind of nice to be able to give ourselves permission to enjoy some extra naps.

[vdub]

It's also nice to know that others experience this.
That is so true. Knowing that others experience the same thing helps separate out what could be nothing more than getting older. I'm 63, but I don't consider that to be all that old. I certainly have the will and desire to do a whole lot more than I'm doing and I have plans to do things and keep buying stuff to execute the plans, but then comes the energy issue and a lot doesn't get done. Or, at least, it is slow in coming. It takes me days now to do something that would have taken just a couple hours 5 years ago in pre-weg days.

[annekat]

I've always been a person who gets things done in a fairly leisurely way and then has to deal with a deadline crunch. A procrastinator, in other words, and good at killing time, savoring the freedom of not always having to do a whole lot on a given day, aside from work commitments and such. So having Wegs is not all that different.... now I just have more of an excuse. Not saying I like it, would like to have had better habits all my life and be able to carry those over into now. It must be especially hard on those driven types among us, such as you, vdub, who have always filled their days with activity and accomplishments and now cannot maintain that level of energy.

[LisaT]

I have days/weeks and sometimes months during which I take very long 'naps' and am still exhausted and ready for bed when my kids go to sleep. On occasion the length of the nap has worried me... But thus far it's been a sign that I've overdone it and am resting up, rather than a worse flare (I'm in that non-acute but non-remission never-never-land).