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Trucker 'E'
03-05-2015, 07:44 AM
anybody know of any by Longview,WA or close by?

annekat
03-05-2015, 04:32 PM
anybody know of any by Longview,WA or close by? Do you mean doctors, or do you mean people with Wegener's? I am in Olympia, WA. There must be some in Portland, I remember one on here who's username started with "dari" and you could look him up on the member list and send him a private message. He could probably recommend some doctors, too.

vdub
03-05-2015, 06:07 PM
That would be darl-p...
http://www.wegeners-granulomatosis.com/forum/new-member-introductions/3825-new-oregon.html

annekat
03-06-2015, 01:51 AM
That would be darl-p...
http://www.wegeners-granulomatosis.com/forum/new-member-introductions/3825-new-oregon.html Good one, vdub.... for some reason my Weggie eyes want to see that 'l' as an 'i'.

vdub
03-06-2015, 02:39 AM
HA! I didn't even notice that difference. I just went to the wegs map and zoomed in on Portland, then did a cut and past. I did notice the -p part. There's also someone in Eugene, but that would be even further away from Longview than what you are....

annekat
03-06-2015, 02:50 AM
HA! I didn't even notice that difference. I just went to the wegs map and zoomed in on Portland, then did a cut and past. I did notice the -p part. There's also someone in Eugene, but that would be even further away from Longview than what you are.... I'm kind of surprised we don't hear of more people from Portland or Vancouver, WA, since it is a pretty large metropolitan area. I know there are quite a few Weggies in the Seattle area whom we don't see on the forum, but I meet them on Facebook groups. Then, there are quite a few with other forms of vasculitis, as well.

Dirty Don
03-06-2015, 03:44 AM
OHSU & Pacific University have some docs experienced in WG...and if that doesn't work...there are peeps with AIs all over the place...what!!!! Welcome...I guess. Hope you find what you're looking for. Best to you.

PS: Anne, I'm from Portland, just happened to become an escapee from the rain when I retired! LOL

annekat
03-08-2015, 02:47 PM
OHSU & Pacific University have some docs experienced in WG...and if that doesn't work...there are peeps with AIs all over the place...what!!!! Welcome...I guess. Hope you find what you're looking for. Best to you.

PS: Anne, I'm from Portland, just happened to become an escapee from the rain when I retired! LOL Don, I remember your being from Portland. I lived there for eight years from age 9 through 16. I went to Lincoln High School. My dad was a professor, administrator, and researcher in the pathology department at the University of Oregon Medical School, which later became OHSU. Go Ducks!

Trucker 'E'
03-10-2015, 08:42 AM
yep I live in longview work in Wilsonville and truck all over Oregon, but stay the night in roseberg and somtimes Myrtle Creek and later on in the week I stay in Brookings after my stops in Eureka, CA every week and yes I have WG ever since 2006. It would be nice to meet sombody face to face with simuler problems it does not matter on age but just turned 41 have famlie wife and 4 kids.

Trucker 'E'
03-10-2015, 08:59 AM
oh man did not know of map thanks I bet there are more out there that are the same as me

annekat
03-10-2015, 01:21 PM
oh man did not know of map thanks I bet there are more out there that are the same as me I didn't see anyone on the map in Portland except darl-p, but only those who put themselves on the map are there. Portland is a big enough place there must be others in the area. I just don't remember seeing posts from them. You might find some in S. WA. You could also check the Vasculitis Foundation website to see if they list any face-to-face support groups you'd have access to, or try googling. I belong to a Facebook group for people with vasculitis from NW Washington. There could be one for your area, too. And there are a few other Facebook groups for us.