marta
03-03-2015, 08:19 AM
Hey gang,
Just wanted to share with my Wegener's family what happened on our Fourth Annual PJ Day to raise awareness for Autoimmune Disease.
For those who don't know me, I worked quite hard raising awareness for WG once diagnosed, but then one day I read an article written by Dr. Noel Rose (The Common Thread | AARDA (http://www.aarda.org/autoimmune-information/the-common-thread/)), and at that moment, as tears ran down my face, I realized that this was the only way we would be able to see a cure in our lifetime. Working together with all the other Autoimmune Diseases. Together (and it is one disease) we make up 20% of the population. I changed my focus at that moment, and my life has never been the same. I started a foundation and named it after Dr. Rose's article - Find The Common Thread Foundation. This year a local family lost their mom and wife on February 14 to CNS Bechet's - another type of Vasculitis. She left behind four kids between 8 and 16 years old, and our town rallied on PJ day to raise money and awareness. I just dropped of a $10,000 cheque - all raised on this one day.
Together we are unstoppable.
Here are a couple of links to stuff that went down. I haven't posted the photos on the website yet, but that'll happen this week. I challenge all of you to start something PJ next year.... no matter how small, because the small magically over time turns into something big. Let's change the world for the better, together. I am absolutely certain that we can.
Previously Recorded at Marmot Basin, Jasper #1 | Breakfast Television Edmonton (http://www.btedmonton.ca/videos/4084049306001/)
Previously Recorded at Marmot Basin, Jasper #1 | Breakfast Television Edmonton (http://www.btedmonton.ca/videos/4084049306001/)
and here's our town crier, calling like it is during our record breaking attempt....
https://www.youtube.com/watch?v=yqjjSbcfG-s
You all be well, be strong, and know that you're absolutely not alone.
Marta
Just wanted to share with my Wegener's family what happened on our Fourth Annual PJ Day to raise awareness for Autoimmune Disease.
For those who don't know me, I worked quite hard raising awareness for WG once diagnosed, but then one day I read an article written by Dr. Noel Rose (The Common Thread | AARDA (http://www.aarda.org/autoimmune-information/the-common-thread/)), and at that moment, as tears ran down my face, I realized that this was the only way we would be able to see a cure in our lifetime. Working together with all the other Autoimmune Diseases. Together (and it is one disease) we make up 20% of the population. I changed my focus at that moment, and my life has never been the same. I started a foundation and named it after Dr. Rose's article - Find The Common Thread Foundation. This year a local family lost their mom and wife on February 14 to CNS Bechet's - another type of Vasculitis. She left behind four kids between 8 and 16 years old, and our town rallied on PJ day to raise money and awareness. I just dropped of a $10,000 cheque - all raised on this one day.
Together we are unstoppable.
Here are a couple of links to stuff that went down. I haven't posted the photos on the website yet, but that'll happen this week. I challenge all of you to start something PJ next year.... no matter how small, because the small magically over time turns into something big. Let's change the world for the better, together. I am absolutely certain that we can.
Previously Recorded at Marmot Basin, Jasper #1 | Breakfast Television Edmonton (http://www.btedmonton.ca/videos/4084049306001/)
Previously Recorded at Marmot Basin, Jasper #1 | Breakfast Television Edmonton (http://www.btedmonton.ca/videos/4084049306001/)
and here's our town crier, calling like it is during our record breaking attempt....
https://www.youtube.com/watch?v=yqjjSbcfG-s
You all be well, be strong, and know that you're absolutely not alone.
Marta