Nose pain

[Jayne 14]

I have sinus involvement and blow out some huge massive monsters and have been steaming my face / nose and finding it helpful , just wondered if anyone can suggest anything for the pain : it's leaving me in tears sometimes ???


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[Jaypfei]

I'm real sorry that you're having pain. Is the pain actually in the nose, or is it more like headache? When my disease was active I would get excruciating sinus headaches that rivaled migraines. My ENT at the time gave me a bottle of nasal spray that was basically the stuff that they numb you with before they scope your nose. Other than that he gave me a Rx for Lortab. At night I would use a microwaveable heat pac on my face. I know that's not much help. If your having masses that large and pain, I would definitely see your doctor ASAP. That's usually indicative of disease activity. If your currently being treated, then I would question if your Meds dosage is adequate enough. Certainly everyone is different, but It wouldn't hurt to speak with your doctor.

[Jayne 14]

My MTX is at 20mg now , the most it's been and I seem to be getting the larger masses more since dose increased
It's definitely in my nose the pain , I have a feeling the hole in my nose has increased
I don't currently have an ENT , just my Wegs specialist . I will call his office tomorrow for some advice
Thanks so much


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[MikeG-2012]

My MTX is at 20mg now , the most it's been and I seem to be getting the larger masses more since dose increased
It's definitely in my nose the pain , I have a feeling the hole in my nose has increased
I don't currently have an ENT , just my Wegs specialist . I will call his office tomorrow for some advice
Thanks so much

Jayne, it sounds as though there is disease activity. That is my primary way to tell if I am OK or not--MASSIVE SINUS PAIN. If there is pain in the nose, and you have large crusts spilling out, keep them moist by irrigating as much as you can stand. Part of the pain could be that the crusts you are getting out are ripping off the walls of your nose and sinus and leaving raw tissue. If you keep irrigating them out, it will keep the crusts softer and make the tissue less irritated.

I had good luck with one of the small hand warming electric heating pads. (like this one (http://www.amazon.com/Sunbeam-Cozy-Heating-Purple-Diameter/dp/B00A5WKSTQ/ref=sr_1_2?ie=UTF8&qid=1423169070&sr=8-2&keywords=hand+heating+pads)) I also had three different prescriptions when my headaches were bad. Lortab for the bad days, Tylenol3 when not so bad, and I wanted to do something other than sleep, and tramadol to take during the day (no bad side effects for me).

Do find a good ENT!!! Find one that will scope your nose, remove the crusts from your nose and sinuses and keep your airway open. If the ENT knows anything about this stupid disease, he'll be willing to help you in any way he/she can. If you get an ENT that will not scope your nose and remove the crusts at every visit, or tells you that you need to use a saline nasal spray or tries to just write you a prescription and get you out the door, LEAVE! Shop around until you find one that will. A good ENT will want to see the progression of your nose as the disease regresses as your treatment progresses.

Good luck, and I do hope you get some relief soon! I really, really do know what you are going through!! It is not at all nice!!!!!

[drz]

I have sinus involvement and blow out some huge massive monsters and have been steaming my face / nose and finding it helpful , just wondered if anyone can suggest anything for the pain : it's leaving me in tears sometimes ???


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I found frequent nasal rinses helped remove a lot of the gunk that builds up and causes the pressure and pain. It doesn't do much to stop the bleeding in sinuses but removing the clots frequently does seem to help avoid the build up of bigger ones that are harder to dislodge. I add some baby shampoo and hydrogen peroxide and Alkolol to my rinses to aid in cleaning the passages. It seems to make it easier to breathe too.

[Jayne 14]

I'm not currently rinsing my nose or being scoped ( if that's the word ) but just steaming every now & then .
The stuff I do manage to dislodge is so big I can understand maybe raw tissue comes away too
Thanks guys x


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[drz]

I'm not currently rinsing my nose or being scoped ( if that's the word ) but just steaming every now & then .
The stuff I do manage to dislodge is so big I can understand maybe raw tissue comes away too
Thanks guys x


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I used to rinse before and after the steam treatments and it seemed to make both more effective.

[annekat]

I don't need to steam now, but found it very helpful before sinus rinses, back when I was getting huge monsters, too. And with some mint or other herbs in the steam water, it is very relaxing and pleasant. I can't really imagine doing that and not rinsing afterwards, since it does such a good job of loosening stuff up.

[Jayne 14]

Well my lovely hubbie came home with a Water Pik today so I've just steamed then rinsed !!
Still can feel crusts up my hooter but don't want to go to crazy straight away !



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[Alias]

I second Mike's comments, i.e. that the symptoms you are describing may indicate that there is active disease. I was going through hell with crusting and pain a year ago now, before I was diagnosed. Once I started treatment with prednisone, the crusting and pain and infestation with "monsters" subsided pretty quickly. I also agree that you might want to consider seeing an ENT to address how you should care for your nose. I've mentioned this in a few other threads, but I was lucky enough to find an ENT with a subspecialty in rhinology. She had the tools and expertise to properly (and mostly painlessly) examine me and prescribe effective treatment. In my case, she prescribed rinses with Bactroban, which is an antibiotic, and a steroid, which acts as an anti-inflammatory. She was also able to decongest me and provide a lot of relief when I was still acutely ill. She warned me to not be very aggressive in irrigating the nose; as Mike said, you could risk further damaging the delicate tissues there.

[annekat]

Well my lovely hubbie came home with a Water Pik today so I've just steamed then rinsed !!
Still can feel crusts up my hooter but don't want to go to crazy straight away !



Sent from my iPad using Tapatalk How cool! Did it come with a nasal attachment? If not, I think they can be ordered, though I imagine the regular ones it comes with must do something good, as well. It is on my wish list for some day.

[Jayne 14]

No it didn't have a specific nose tool but the 1s it came with are fine . It takes a bit if getting used to I suppose , done it 2x and not for too long ! The steaming is easier & not as painful !!
The stuff I blow out is so big though : so will continue to do both



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[PJ2010]

I was diagnosed in 2010. I think I'm in remission however these terrible nose monsters are still with me.

I must clear my nasal passages daily or they block up really badly. I find when they are blocked I actually feel unwell. I can't describe how but when I clear them I just feel so much better.

I now clear them in the shower each morning. I find the steam loosens it all and I can blow them out. Strangely, when I go for a ride on my motorbike out the highway I'm easily able to clear my nasal passages. Must be the wind???

Another thought for you to regard. At home I use an air purifier every night. I find that if I'm in a dusty environment the crusting is worse. For a few years now I've been using the air purifier and I find I can breath easier.

[Jayne 14]

I agree totally , when I have a monster stuck it makes me feel so horrible , all I want to do is clear & eliminate them
I also find now I'm steaming regularly I'm far more comfortable
I love it when I actually can feel air going up my nose once I've cleared it !!!



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[annekat]

Strangely, when I go for a ride on my motorbike out the highway I'm easily able to clear my nasal passages. Must be the wind???
I'm wondering if it could be the vibration of the motorbike that is loosening them up?

[MikeG-2012]

Beware, if you are using the waterpik the way it came, you could do more harm than good. Make sure you are not sending that hard burst of wayer, designed to get in between teeth, into your nose!!

A cheap tip for the waterpik is to use the tube and nose thingy from the top of a neilmed bottle. Just cut off one of the ends of the waterpik tips, and force the tube from the bottle end over it. That way, you're not sending that hard stream from the waterpik into the nose. Definitely order the tip from the sinupulse website or from amazon. It will be so much better.

[annekat]

A cheap tip for the waterpik is to use the tube and nose thingy from the top of a neilmed bottle. Just cut off one of the ends of the waterpik tips, and force the tube from the bottle end over it. That way, you're not sending that hard stream from the waterpik into the nose. Definitely order the tip from the sinupulse website or from amazon. It will be so much better. It sort of seems like the correct nasal tip to be used with the Waterpik would fit a little farther up into the nostril, where it might do more good, than the NeilMed nozzle, but either way, it is a good suggestion. I thought I might have heard that Waterpik had started making nasal tips which could be ordered, too. Maybe not. And thanks for the warning about using the tip meant for teeth. If I ever get a Waterpik, I'll just use that for teeth.

[MikeG-2012]

I thought I might have heard that Waterpik had started making nasal tips which could be ordered, too. Maybe not. And thanks for the warning about using the tip meant for teeth. If I ever get a Waterpik, I'll just use that for teeth.

Here's where I got my tips: SinuPulse Website (http://www.sinupulse.com/index.php?p=3_3) This page also tells you what model WaterPik the tips fit.

Or on Amazon: HERE (http://www.amazon.com/Sinupulse-Elite-Replacement-Sinus-Irrigator/dp/B001CWRH2E/ref=sr_1_5?ie=UTF8&qid=1423504130&sr=8-5&keywords=sinupulse+elite+advanced+nasal+sinus+irri gation+system)

I usually wait until I am eligible for free shipping at Amazon, or add one of these to get free shipping.