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View Full Version : Dr Olsen...Hershey Pa



im so blessed
12-09-2014, 04:55 AM
Anyone go to this doc by chance? Ive been so blessed to have Dr Barbara Ostrov at Hershey since my dx in 2001. She told me at my last app i have to find a new doc so she referred me to this one. After seeing all the fuss about Cleveland clinic i wonder if i should explore that as its just the next state over.

Pete
12-09-2014, 05:10 AM
If you're looking for excellent care for GPA/Wegener's, Cleveland Clinic is worth checking out. I see Dr Alexandra Villa Forte there, and I think she's tops. Others on the forum see Dr Carol Langford, who would be strongly recommended as well.

Before you go, you should prepare a complete history of your experience with the disease. My first appointment with Dr Villa Forte lasted almost two hours. My follow ups (every six months) take 30-45 minutes depending on my issues and questions. I always take a written list of questions and a copy of my latest labs.

Good luck!!

Psyborg
12-09-2014, 10:31 AM
I agree with Pete, but John's Hopkins might be a closer option for you. CC, JH, and Mayo are the top three for Vasculitis.

MaxD
12-11-2014, 08:36 AM
You could also consult with specialists at HUP in Philly, HSS in NYC, or at JHU in Baltimore - these might be closer, and all are in the 16 vasculitis centers in the country. I see Dr Spiera in NYC and he is terrific.

blu4runner
12-12-2014, 06:13 AM
I would recommend my Dr, Peter Merkel, at UPenn hospital in Philadelphia. I drive from VA to Philly to see him. He is very involved in research of GPA. I had sent an email to his staff about possibly have him become my DR and he personally called me on a Saturday evening at 5:00 and agreed to see me on Monday at noon if I could get to Philly. I have no regrets and he has been my GPA dr since then.