Highest CRP rate?

[BarbW]

What has been your highest CRP hs rate?
I am a bit freaked by my 69.8. I am sick with a relentless cough.
Is our inflammation usually that high?
thanks for helping.
Barb

[B_in_Florida]

Honestly, I don't even know what that is..
.... I've had WG for almost 10 years now and I'm pretty sure I have never heard of it. I'm guessing it has something to do with bloodwork, and I haven't had any of that done in a while though.... at $600+ for bloodwork, man, I can't do that often. *shaking_head_emoticon*

[Dirty Don]

Mine's never been that high, but yours is pretty high/abnormal right now. The cough sounds like a bit of a flare/inflammatory reaction. Is it dry or full of mucous? Are you on pred? Best to you.

[Pete]

Normal range for CRP is <10mg/L. So I'd say you have something going on that isn't good. Please find out what your doc's treatment plan is.

[Alias]

CRP is a non-specific marker of inflammation. There are a lot of things that can make it jump around. I've had a couple of big spikes and my doc has given me reassurance that they were probably not of any significance. If you are sick with some kind of bug perhaps that would explain it. Also keep in mind that there are two versions of the test: CRP and high sensitivity CRP. Your results should say something like HSCRP if it's the latter. You might want to email or call your doc's assistant to see if any follow up is recommended based on this lab result.

[mrtmeo]

Are u sure that was your C-Reactive Protein?
It sounds more like a SED Rate value.
The highest I have seen with my mom is 8.2 mg/dl.

[BarbW]

Thanks everyone for replying. It is a comfort. It is 69.8 CRP h.s. My SED rate was 36, which was high for me. My local general practitioner didn't have any slots open, so I went to another doctor. She gave me cough syrup with codeine....which didn't help, and a Ventolin inhaler, which does seem to help. My Wegs doctor emailed me and thinks the spike is an infection or allergic reaction because of the ratio between the CRP and SED. He gave me antibiotics to make sure to deal with it if it is an infection. I see him in three weeks.

I need to find out if it could be caused by Lisinopril, which I was prescribed by my general practitioner about 6 weeks ago. I hear that Lisinopril can cause the relentless coughing I'm having. Also, I am not on Prednisone because it induced type 2 diabetes which I am just now getting under control. It could be that once I came off the Prednisone, I became prone to the Weg's inflammation. There are so many possibilities because there are just so many variables all the darn time.

[morningsunshine]

Hi there,

I went through my blood test results to see how my numbers compared...

When I was first diagnosed in the hospital, my CRP was at 74.1.

7 months later (still not in remission), my latest CRP is 17.1. As someone mentioned above, this is just a marker for general inflammation, so it could be anything. Definitely worth discussing with a doctor in any case.

Good luck!

[B_in_Florida]

How does everyone here know their number? What doctor did you go to who provided the test, was it a Rheumatologist?

[Pete]

My doctors at both Cleveland Clinic and Ohio State enter my results into electronic records (required by federal law). I signed up for access through MyChart at both hospitals. When my doctors have read my results, I get an e-mail from MyChart which prompts me to access the records. I usually have the results within one business day. I can also e-mail my docs with questions, make appointments, and get prescriptions renewed.

[B_in_Florida]

OK, but what kind of doctor is it that orders these tests?

[BarbW]

My rheumy does. I get them monthly. They need those labs. They caught my Prednisone induced diabetes through the labs.

[Pete]

My rheumy (at Cleveland Clinic) actually specifies the labs I have done each month. My PCP (at Ohio State) follows her lead in actually ordering the lab to do the tests. I make sure my rheumy gets a copy of the results.

[mrtmeo]

How does everyone here know their number? What doctor did you go to who provided the test, was it a Rheumatologist?

I make her drs give me a copy of the blood work every lab draw if I don't have access to her records online.

[mrtmeo]

Thanks everyone for replying. It is a comfort. It is 69.8 CRP h.s. My SED rate was 36, which was high for me. My local general practitioner didn't have any slots open, so I went to another doctor. She gave me cough syrup with codeine....which didn't help, and a Ventolin inhaler, which does seem to help. My Wegs doctor emailed me and thinks the spike is an infection or allergic reaction because of the ratio between the CRP and SED. He gave me antibiotics to make sure to deal with it if it is an infection. I see him in three weeks.

I need to find out if it could be caused by Lisinopril, which I was prescribed by my general practitioner about 6 weeks ago. I hear that Lisinopril can cause the relentless coughing I'm having. Also, I am not on Prednisone because it induced type 2 diabetes which I am just now getting under control. It could be that once I came off the Prednisone, I became prone to the Weg's inflammation. There are so many possibilities because there are just so many variables all the darn time.

I have definitely heard that lisinopril can cause coughs.
Here is more info on HS-CRP
hs-CRP: The Test | High-sensitivity C-reactive Protein (http://labtestsonline.org/understanding/analytes/hscrp/tab/test)

[carrottop50]

Yes on the lisinopril. I coughed my head off for months until someone finally figured it was the lisinopril.

[annekat]

OK, but what kind of doctor is it that orders these tests? Any kind of doctor can order these tests, and will, if they think they have a reason. Most WG patients are treated by rheumatologists as their primary WG doc, so they are the ones who end up doing it. My WG doc is not a rheumy, he is a pulmonologist, and he does it. Years ago, a PA (physician's assistant, not a doctor) ordered blood tests for inflammation markers when she thought I might have RA because of my joint pain, which in retrospect, was probably undiagnosed, smoldering WG. By the time the test was done, though, the joint pain had subsided, so the results didn't indicate much in the way of inflammation.

My current WG doc only tests for SED rate, not CRP. My most recent result showed a SED rate of 16, which is normal, and I'm happy about that. When I had a flare in the winter of this year, it was up to 57, and he said that with my initial flare that got me diagnosed, it was over 100.

[psudad]

My highest low-sensitivity CRP was 92 as I was diagnosed in Dec 2013. It dropped pretty quickly down to below 30 and then gradually down below 10 by April -- where it has remained (thankfully).
I also have a rheumatologist at Cleveland Clinic who manages my case and orders the blood tests. But I live 4 hours away and so my local rheumy implements the plan. I make sure my local blood test results are faxed to my Cleveland doc. (Monthly tests at this stage.)

[vdub]

153.35 ---- I was pretty sick!