blu4runner
11-26-2014, 05:14 AM
There is a new research group called Vasculitis Patient-Powered Research Network that is conducting studies regarding vasculitis. The goal is : The V-PPRN is a network that will inspire, plan, and conduct new vasculitis clinical research studies.
The V-PPRN is poised to:
Drive new vasculitis clinical research studies
Engage patients in new ways:
Directly involve patients in the design and selection of research topics
Significantly increase the number of patients eligible to participate
Enroll a geographically diverse patient population
Broaden the disease spectrum by enrolling patients with many different types of vasculitis
There are some great DR's involved with research in this group. My DR, Peter Merkel, is a co-founder of the group.
I registered and completed the questionnaire it only takes 10-15min and any info that can help with research of this disease is worth considering.
Webpage to register or get info is :https://www.vpprn.org/index.htm
The V-PPRN is poised to:
Drive new vasculitis clinical research studies
Engage patients in new ways:
Directly involve patients in the design and selection of research topics
Significantly increase the number of patients eligible to participate
Enroll a geographically diverse patient population
Broaden the disease spectrum by enrolling patients with many different types of vasculitis
There are some great DR's involved with research in this group. My DR, Peter Merkel, is a co-founder of the group.
I registered and completed the questionnaire it only takes 10-15min and any info that can help with research of this disease is worth considering.
Webpage to register or get info is :https://www.vpprn.org/index.htm