New member (Bek) just joined this website

[Bek Stone]

Hi my name is Rebekah Stone or just Bek. I was diagnosed with WG in 2009. I was 18. It completely turned my life around. The last year of high school (2007) I had a syptoplasty (not quite sure if that's spelt right) and a fess as I've always had sinus problems since I was little and used to use rhinochort spary I also had a diviated septum so this was supposed to fix this but sometimes the op doesn't work and you have to have it done a second time. Before this of in the sept of 2007 I had never had headaches before ever. I wasn't a healthy child as I have scarred lumgs due to really bad asthma and bad kidney function as when I was born my bladder and tubes that attach to your kidneys where the size of an adults and instead of connecting on an angle they faced straight down and worked in the opposite direction so wjen I went to the toilet it would go back up into my bladder, it really hurt, so I had a bilateral uriteric reimplantation when I was 5. So lets just say I wasn't exactly healthy I was still determined to b like everyone else I used to play winger in soccer and was in all 3 choirs at school and played clarinet in 4 bands/orchestra. In 2008 I started studying accounting at UQ and was gettimg extremely bad headaches so my ENT surgeon when in to have the op again in the February of 2009 and thats when they took the biopsy because he said it looked like a bomb had gone off in my face. I had also transfered over to teaching at uni as thats what I really wanted to do as accounting just wasn't for me because I'm kinda a people person. Dr careless my specialist told me to give up uni but I still did 6 months and I only went to 3 of my tutorials as I was in hospital the rest of the time but I still got sixes and sevens. I'm extremely stubbon and I know I shouldve listened but I didn't. I tried methotrexate and it made me sick and did nothing to my levels then imuran and it made me even more sick and still no change then I had 7 months of cyclo and it just made me sick as well and then finally yhey tried me on a mix of myfortic tablets(dailt) and mabthera, was supposed to b 9 monthly but it has to be passed by a board in Australia and they always took months to approve it that my WG always progressed and I was in hospital. I was allowed to start back at uni UQ st lucia last year just doing one subject a semester and because I can't b a primary teacher anymore because of having no immune system and being limited in what I can actually do I'm doing what I always dreamed of doing Ancient history, classical languages (ancient greek and latin), spanish and medieval and british isle history which I absolutely love. Im now getting my mabthera 6 monthly and it is making a big difference im getting closer and closer to remission. I'm able to do alot more as im feeling alot better than before. It has been hard with pain meds as well because I'm allergic to morphine and codine so its been difficult. Also I was a size 10 at 65kg when I was first diagnosed and now im a size 24 at 129kg its very upsetting. And the other thing that really upsets me all my friends are getting married and having kids and because of the state of my kidneys I've always known I would have difficulty having kids and now because of my WG I've been told that my chances of ever having kids is extremely slim so thats really upsetting and I don't have a boyfriend because I personally wouldn't wsnt someone to take that risk because I believe everyone should have the chance to have kids even if they don't want them at that particular time in their life I now its silly but thats how I feel. Anyways thats me the email said to kinda tell my story and thats it long and complicated but Im sure most of you guys have a similar story to tell about your WG.

[Bek Stone]

Oh and I forgot to say I've never ever met anyone who has WG as well. I live in ipswich qld Australia.

[Bek Stone]

Oh and what really upsets me is that I can't play my clarinet anymore because its rather hard to play a woodwind instrument with air coming out ur nose because u have no sinuses lol its very frustrating

[Bek Stone]

And I'm not allowed to work atm as well but I do teach a small sunday school class on sunday kids about 11-17yrs old I take the older class and sometimes I volunteer for meals on wheels when I'm well enough and it doesn't clash with uni and go to a patchwork group with my grandmother twice a month. I do alot of embroidery, cross stitch and quliting.

[morningsunshine]

Hi Bek,

Wow, it sounds like you've had quite a journey. I'm glad to hear that the mabthera is working for you and that you're nearing remission. Fingers crossed that it happens soon!

It sounds like you're really active with volunteer work, which is great! I'm glad you have the opportunity to teach, in at least some capacity.

Welcome to the boards! I've found that everyone here is super helpful and friendly. I've never met anyone with Wegener's either, so it's good to know that there's a whole community of folks here that understand what you're going through.

[gilders]

Welcome Bek.
Judging by the relatively small population of Australia there seems to be a lot of WG patients from Australia on this forum.
I don't think WG itself should put you in a position where you can't/shouldn't have children. Some of the meds such as cyclophosphamide may cause problems. I hope you haven't ruled out children without getting a definitive reason for why you can't.
From diagnosis when I was 17 until I was about 25 I had a job where I would come in to contact with hundreds of customers a day. I was immunosuppressed virtually all the time during that job, so I wouldn't rule out being a teacher if that's the career you'd like.
Being a winger you must have been speedy and fit. I really miss playing soccer with my mates and children. I was also cycling a lot which I used to enjoy. Now I feel like I've ran a marathon after I've got dressed in the morning:sad:
As for not having a boyfriend in case he wants kids, just don't think like that. There was a good chance I couldn't have kids due to cyclo and I found someone to love. She already had 3 boys so I fell doubley lucky - I had children, but I bypassed the nappy changing and sleepless nights stage:thumbsup:. Well perhaps not the sleepless nights - there's always something to keep you up at night worrying about your children no matter what age they are.
Plus think about all the other couples that can't have children such as those with other illnesses or gay couples. They get around it by adoption, fostering, etc.

[annekat]

Bek, glad to see your introductory post..... Michelle, the head Aussie Weggie (after Andrew, the Big Kahuna, of course) will no doubt find you soon and figure out a way for you to be in touch with more Weggies down under. I have no idea what part of Australia you are in without looking at a map. Which reminds me, check out our Weggie members map, link in blue at top of page; that will take you to Andrew, our Chief, who will tell you how the map works and from there you can go to the map and add your "pin" if you like, and see the distribution of members worldwide! I'm glad you have joined us.

[Jayne 14]

Welcome Bek
I also had never met anyone with Wegs before finding this brilliant place
Don't you stop yourself from finding love / a partner / kids . We never know what's round the very next corner we take .
Life is a little harder for us but no less amazing just a little different
Good luck my friend : help is here 24/7 xx


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[Bek Stone]

Thanks everyone for your support the slim chance of having kids upsets me and it kinda has more to do with my kidneys than my WG because of carrying a child etc. But thank you all for everything you've said I really appreciate it because im a big worrier lol and have a tendency to over think alot of things and then I just upset myself if that makes sense and yea I was pretty fit I miss the way I used to look. And teaching was always my 2nd choice of what I wanted to do because theres not many jobs in the ancient history area but seeing as the dr may not let me work full time I can actually do it. :-) its nice ti hear from people who have been thro similar experiences because people say 'oh I know how you feel' but they really don't because they've never experienced anything like WG or similar illnesses its just nice to finally find people who really do understand after so long :-)

[Bek Stone]

And this is why I'm upset with my weight and appearance now this was me the yr before I was diagnosed im in the pink on the left

[miracleshappen08]

Oh, my I can relate with a lot!! Don't ever believe everything the doctor tell you!! I was to NEVER have kids!! I have endometriosis, divide uterus, and WG. I was on treatment for 18 months when I got married and then I got pregnant with my first! 14 months after having her I got pregnant with my second. I have been blessed behind what the doctors every told me was possible!! Yes you have to be careful and listen to your body, but that's the thing you are the only one that knows your body well. Don't EVER EVER give up!!!

[annekat]

Bek, are you on prednisone, too? Most people are but I didn't see it mentioned. I would expect that to cause the weight gain as it does for many. Don't give up hope, now that you are on the Mabthera and it is working, you may get into remission soon and be able to get back to a more normal life, and hopefully get off the pred, too, if you are on it!

I don't quite understand the part about playing the clarinet. I also have no sinuses and my septum and turbinates are gone, too. I don't play an instrument but when I blow into something with my mouth, I don't think air comes out my nose. But I can make it come out my nose when I want to. Maybe I'm missing something here. I know nothing really about playing the clarinet.

[Bek Stone]

Yea sorry I am on pred I forgot to mention that and with my clarinet its kinda hard to explain because you don't just blow you have to blow and bite at the same time and you use alot of your facial muscles I can play afew bars but not a full song because air and a funny kind of sensation happens with my nose its like rolling your tongue like on r's but thro your nose its hard to explain its easier to show it just makes it difficult to breath if that makes any sense at all lol

[Bek Stone]

Oh, my I can relate with a lot!! Don't ever believe everything the doctor tell you!! I was to NEVER have kids!! I have endometriosis, divide uterus, and WG. I was on treatment for 18 months when I got married and then I got pregnant with my first! 14 months after having her I got pregnant with my second. I have been blessed behind what the doctors every told me was possible!! Yes you have to be careful and listen to your body, but that's the thing you are the only one that knows your body well. Don't EVER EVER give up!!!
Thank you sooooo much !!!! This gives me more hope to kniw that someone else was told the same thing and felt the same way I do I've always wanted kids of my own and to know that you have been thro the same thing and been blessed with 2 children makes me so happy. Thank you so much for tell me this :-) it reallt means alot as I've often cried myself asleep over it as I'm sure you understand being told the same thing. I think its wonderful that you've been able to have kids and it give me hope now that maybe one day I might be able to have them too.

[mishb]

Hi Bec and welcome.

Sorry I haven't been on sooner but I had a big day at work yesterday.

Guess what - you no longer have to feel alone ............... and even better is that we are planning a WG catch up in Qld in a few months.
We have recently had a really big one in Melbourne and also in Sydney.

Bek, if you are on facebook, we have a WG/GPA group for Australians and New Zealanders. We would love for you to join there too.
If you are not on facebook, then this is the best place to be. Below is the link to the group.

Emily who is a member on here and also in our Aussie/NZ fb group, had a baby 12 months ago and he is doing wonderfully.

https://www.facebook.com/groups/516643745050360/

[Bek Stone]

Hi Bec and welcome.

Sorry I haven't been on sooner but I had a big day at work yesterday.

Guess what - you no longer have to feel alone ............... and even better is that we are planning a WG catch up in Qld in a few months.
We have recently had a really big one in Melbourne and also in Sydney.

Bek, if you are on facebook, we have a WG/GPA group for Australians and New Zealanders. We would love for you to join there too.
If you are not on facebook, then this is the best place to be. Below is the link to the group.

Emily who is a member on here and also in our Aussie/NZ fb group, had a baby 12 months ago and he is doing wonderfully.

https://www.facebook.com/groups/516643745050360/
Hi michelle

Thanks for the invite I just logged onto fb and joined. It would be great to meet others who have WG and if you do plan on coming to queensland I would definitely be interested in coming. WG being such a rare disease its hard to find people who understand and I've only been on here for afew days and already I feel like I'm among friends and hearing about someone else who has been able to have kids is just wonderful. I already feel happier just being able to talk to people who feel the same way I do and truly understand because they are going thro the same thing its so helpful really it is to know that nonody is judging you on the way you look or anything because they are going thro the same I really am already very grateful that I found this site after so long not being able to say how I really feel because my family get upset and say don't be silly theres no need to feel like that but you all aren't saying that what I'm feeling is silly its nice to not have it all bottled up anymore wnd know that I can talk about how i feel about my WG and everything that goes with it without being judged.

[mishb]

I've already added you on Bek.
All you have to do is start talking. You know us Aussie love a chat or a laugh :thumbsup:

Both this forum and the fb group are my life line and the people with WG are just awesome people :hug3:

[Bek Stone]

I've already added you on Bek.
All you have to do is start talking. You know us Aussie love a chat or a laugh :thumbsup:

Both this forum and the fb group are my life line and the people with WG are just awesome people :hug3:
Haha very true my mum always says I talk to much but a good chat can go a long way to making someones day a whole lot better :-) and I've already found that the support on here in just a few days is amazing and am really enjoying it :-)

[annekat]

Yea sorry I am on pred I forgot to mention that and with my clarinet its kinda hard to explain because you don't just blow you have to blow and bite at the same time and you use alot of your facial muscles I can play afew bars but not a full song because air and a funny kind of sensation happens with my nose its like rolling your tongue like on r's but thro your nose its hard to explain its easier to show it just makes it difficult to breath if that makes any sense at all lol Thanks for that explanation, it makes it more clear. I guess I'd have to try playing the clarinet to see if it would happen to me. My nose, even though the septum is eroded away, feels pretty normal to me as far as breathing, nose blowing, nasal rinses, all that. It would be interesting to see inside of there.

[Bek Stone]

My ENT surgeon has taken pics all the way along as I have a cleanout once a year because even with the rinsed apparently I get a funny smell and I dont know coz I cant smell at all any more ive very paranoid about it. So he has pics of the inside of my nose from my diagnosis to now you can see all that space in there mine is alot better but its still very red raw but when I was first diagnosed it looked the little tumors all thro my sinuses but not so much now

[annekat]

My ENT surgeon has taken pics all the way along as I have a cleanout once a year because even with the rinsed apparently I get a funny smell and I dont know coz I cant smell at all any more ive very paranoid about it. So he has pics of the inside of my nose from my diagnosis to now you can see all that space in there mine is alot better but its still very red raw but when I was first diagnosed it looked the little tumors all thro my sinuses but not so much now I'm guessing since my ENT said the tissues of my nasal cavity are "healed", they are not red and raw. Which I guess is why there is no pain. Well, if mine can heal, I guess yours can, too! I hope so. Also, he said that there is normal, healthy mucus production in there, that I'm doing a good job keeping it clean, and that there is no bad smell. Making me think maybe there was one before. I can't smell, either. With no sinus pockets and my turbinates also gone, there is less mucus produced and less accumulating, but I still need to keep on top of it. It's all still a mystery to me in many ways. Pictures would help.... my guy doesn't do that.

Well, I'm so glad that Michelle has connected with you about Aussie Weggies and that you are enjoying the forum so much. It must be like a breath of fresh air after all that time. I found the forum right before my diagnosis in 2011 and it has been a big part of every day since. Seriously, it has been the only good thing about having Wegs. I can't say enough good about this forum.

[MikeG-2012]

My ENT surgeon has taken pics all the way along as I have a cleanout once a year because even with the rinsed apparently I get a funny smell and I dont know coz I cant smell at all any more ive very paranoid about it. So he has pics of the inside of my nose from my diagnosis to now you can see all that space in there mine is alot better but its still very red raw but when I was first diagnosed it looked the little tumors all thro my sinuses but not so much now

Some ENTs (mine included) have prescribed the little vials of steroids used in nebulizers, and use those in the 8 oz nasal rinse bottles to reduce the inflammation in the sinuses.


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[im so blessed]

Hey Bek! I am a 30person year old female dxed at age 16. Im coming from the other end of things. I remember the sleepless nights worrying about the things u posted earlier about kids and a love. I just want to tell you to take a day at a time. If and when a man falls in love with you thats exactly what he does..falls in love with YOU! For YOU. My husband married me with the assumption we would not have kids cause thats what the docs said. Guess what? I have 2 handsome healthy little boys...i had to fight hard but they are beyond worth it! Dont let the docs discourage you...they dont know your body and what it will do. They usually go by statistics. And to anyone reading who has experienced what the doctors told you im so sorry! Im sure the pain is unimaginable! We all have our fight in life. Remember not to give up. You will be made stronger for it! So hang in there Bek!!! You dont know what may be in store for you down the road! Btw i was within 2 weeks of kidney failure when they found my WG.

[Bek Stone]

Hey Bek! I am a 30person year old female dxed at age 16. Im coming from the other end of things. I remember the sleepless nights worrying about the things u posted earlier about kids and a love. I just want to tell you to take a day at a time. If and when a man falls in love with you thats exactly what he does..falls in love with YOU! For YOU. My husband married me with the assumption we would not have kids cause thats what the docs said. Guess what? I have 2 handsome healthy little boys...i had to fight hard but they are beyond worth it! Dont let the docs discourage you...they dont know your body and what it will do. They usually go by statistics. And to anyone reading who has experienced what the doctors told you im so sorry! Im sure the pain is unimaginable! We all have our fight in life. Remember not to give up. You will be made stronger for it! So hang in there Bek!!! You dont know what may be in store for you down the road! Btw i was within 2 weeks of kidney failure when they found my WG.
Thank you so much its alittle disheartening sometimes but just to know that others have been in the same situation and things have turned out good makes me alot happier thank you very much for what you have said I can't tell you how much it helps. I've been having the best two weeks in a long time finding this group and the aussie and NZ one on Facebook the dr lowering my pred metting two other women that have WG and then get an offer for a little unit of my own signed the papers and paid first two weeks rent straight up and have slowly started moving stuff over after a thorough cleaning they did clean it but with WG I like to do it myself better to b safe than sorry. So overall emotionally I'm feeling alot better. Im excited and nervous at the same time and I haven't been so excited about something since probably b4 I was diagnosed. It's all alittle overwhelming as well lol. It's my first place away from home so I have no idea whats in my glory box itll b like Christmas come early lol. Thank you everyone for your support I really appreciate it. :-)

[Bek Stone]

Some ENTs (mine included) have prescribed the little vials of steroids used in nebulizers, and use those in the 8 oz nasal rinse bottles to reduce the inflammation in the sinuses.


.
Mine tried that but I found I had better results with boiled water and salt its not so much inflamed anymore I just get paranoid about the smell I get from the build up of gunk even tho I wash it out regularly but my ENT seems to think just having an annual clean-out under anesthetic or sooner if it builds up faster he said it kinda unpredictable about when I need it done but as I have no sense of smell at all I don't know when it's starting to smell so I have to rely on others to let me know coz I am so paranoid about it im constantly chewing gum to help. Does anyone else have this issue keeping in mind that I didn't respond to most of the treatment until I had mabthera 2yrs ago when I slowly started to respond and by then my sinuses were completely gone.

[annekat]

I, too, can't smell, and hadn't thought much about the smell of the built up mucus until my ENT told me recently I was doing a good job of cleaning with the saline sinus rinses, and there was no smell. Which made me think there must have been a smell before. Yuck. And I also have no sinuses, they are eroded away, along with my septum and turbinates, and I have a common cavity, as it sounds like you do , too. So without the sinus pockets there to collect mucus and stuff, it could be that there is less to build up and smell bad... wishful thinking, I guess. There is still mucus being manufactured in the nasal cavity, obviously, but it is less than before, and it may be that there is less holding it back from draining on a regular basis. It still requires daily work to clean it out with the saline rinse. The upside of my sinuses having disappeared is that the ENT says all the tissues in my nasal cavity, where the sinuses used to be, are nicely healed, so I have no pain, and with no sinuses for bacteria to collect in and cause infections, I should have no problem with that for the rest of my life. I know others with this sinus destruction are still having pain on a daily basis and I wish and hope that the tissues in their nasal cavities would heal up as well as mine have. As for cleanings out by the ENT, he used to do that and got a lot out, but doesn't see the need for it anymore because there is so much less to clean out. I wish the same for you. I don't really understand why it is different for different people.

[Bek Stone]

I saw my ent today and he said my WG attacked my sinuses really really aggressively and my not responding to treatment didn't help either but the tissue damage in my sinuses is very delicate a just one touch and it starts bleeding its very red raw not as bad but my ent said my case of WG is a complicated and frustrating one coz of my bodys temperamental state and other things I know that he and my rheumy get very frustrated lol my mum told them when I first got sick that ive always been a difficult medical priblem ro doctors lol I mean WG is temperamental by itself let alone add being allergic to nearly everything and fir my body to decide I don't like this treatment im not going to respond to it im just going to ignore it lol haha I hope mine heal like urs eventually but for now ill keep with the rinses and the fess spray and chew gum for my paranoia about the smell that comes and goes he said today that the smell has nothing to do with how much I rinse it, it does help of course, but its more to di with the amount of damage in my sinues and the tissue not being healed. I find the yearly cleanouts help me tho he gets a good look at how the tissue is healing or not and I can breathe a bit better and not so much gunk is stuck in the big open space in my nose lol I really hope the start healing up like urs but I guess im lucky in a sense I only have it localised to my sinuses and don't have it in my lungs or kidneys like some of you guys. But things are starting to look good dropped my pred to 7.5 met some others that hwve WG face to face and finally got my first place away from home and finding this group I haven't felt this good or happy in a long time and loving doing mu ancient greek at uni im really feeling good emotionally atm and not to bad with my WG either :-)

[annekat]

That's interesting, Bek, your comments about the tissues in your nasal cavity, what your ENT said, etc., because it helps me to understand my own case and that there is hope for other people that their tissues will heal like mine did and they'll have an easier time of it. Why mine healed so well, I haven't a clue! I never did have much pain, and have no idea when the erosion started or how fast it progressed. I did have lots of sinus infections for 2.5 years before diagnosis, and lots of crud in there, lots of discomfort, but no real pain. I've never had much problem breathing through my nose even though it is saddled. I do get nosebleeds and blood in mucus when tapering pred or when flaring. I did have lung involvement, and I guess you could say you are lucky you only have it in the one area, but I've always heard the sinuses are the hardest and take the longest to heal and clear up. My lung stuff was taken care of early with treatment and there is still scarring in there and somewhat diminished lung capacity, but they feel normal and don't give me any trouble. The sinus stuff has dragged on and on; even without the pain, it's been annoying, although it is much better lately. And then I have the permanent hearing loss, too, and double vision from the sinuses under my eye sockets eroding and making my eyeball positions unstable. Isn't this just a lovely disease! NOT! I'm glad that in spite of it all you are feeling better and more upbeat these days, having found Weggies to talk to and interests to pursue!

[Bek Stone]

My eye does that to!!! I have the erosion under my eyes to more under the right than the left and it hurts and I get double vision too but only when im trying to look to the side without moving my head I don't have glasses yet but theyre monitoring them as they have actually changed shape! How werid is that have urs? Instead of my eyeballs being shape like soccer balls they more shaped like a football or rugby ball thats super werid lol. And I suppose ur right it has been ages and still not in remission close but not quite. And thanks I am loving this forum and the aus and nz one on fb to :-) its nice to hear everyone else's stories and things that I can relate to :-)

[annekat]

My eye does that to!!! I have the erosion under my eyes to more under the right than the left and it hurts and I get double vision too but only when im trying to look to the side without moving my head I don't have glasses yet but theyre monitoring them as they have actually changed shape! How werid is that have urs? Instead of my eyeballs being shape like soccer balls they more shaped like a football or rugby ball thats super werid lol. And I suppose ur right it has been ages and still not in remission close but not quite. And thanks I am loving this forum and the aus and nz one on fb to :-) its nice to hear everyone else's stories and things that I can relate to :-) Wow, you are the first person I've talked to who has, or has mentioned, the erosion under the eyeballs! Mine is a little different, of course, since everyone's case is different. No one said anything about my eyeballs changing shape. But I could see on the MRI image where one eye looked slightly lower than the other and the doc showed me where the erosion was more pronounced on one side. My double vision is more noticeable when I look straight ahead and at a distance. So not great for driving, although if I lift my head a bit it is better, but then my neck gets tired. There's a certain way to lean my head back against the headrest that helps, too, but that feels awkward. I can always close one eye or wear an eyepatch, both also awkward. As for sideways views, I wear bifocals, and the double vision already happens with those, which is why older people are always pointing their head in different directions to see. I could get special glasses with a prism but the eye doc isn't sure how satisfactory it would be, plus I'm sure they'd be expensive. So mostly I just deal with it, some days it is worse than others, like if my eyes are tired or if I'm having any dizziness or vertigo from my ear problems. There is a thread or two on double vision on here, and this erosion was not mentioned, I don't think, so I'll have to go back and add to that. I've only known about it for a few months, although the problem started a couple of years ago, maybe.

I'm so glad you are enjoying the forum; I'm enjoying you being here! And sometimes I wish I was an Aussie or Kiwi so I could join one of your special Facebook groups! We do have one for Pacific Northwest vasculitis, though, which is nice.

[Jayne 14]

Bek
I have rugby shaped eyes not football shaped - always have had
It's called astigmatism and mine isnt Wegs related
My vision when I'm tired isn't so great but never thought it was connected to our great disease !


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[Bek Stone]

Jayne
Yeah that's it that's what the dr called it I couldn't remember lol but my eyes changed to to that because my eyes have always been perfect before I got WG just thought it was a little werid talk about an unpredictable disease lol

[Jayne 14]

It is weird our disease !!
My doctor was worried mine had gone to my eyes but the C T showed it hadn't , just destroyed my nose & in my gums .
And so far I'm responding well to treatment
I really hope 2015 means good news for us all !!


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[miracleshappen08]

Wow Jayne14!! It is weird and the places that it hits is weird!
I had a ct scan done this past Friday. And I saw the doctor yesterday. The report was bad and nothing we expected!!
I'm glad that you are responding to treatment!!!
It has destroyed my nose and my whole right sinus cavity. It has eaten most of the bone and it has started eating my eye socket. If not stopped it will continue to eat through stuff and start in my brain. I was shocked yesterday!! I'm hoping we can find a treatment to work for it.

[Jayne 14]

I really hope they find a cure rather than remission from this cruel disease
Let's hope, Miracleshappen 08



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