Havellen
10-29-2014, 09:55 AM
Hi!
I have now had Wegeners for 1 year and 3 months, and I have some questions.
I started my medication when I got it with Mabthera and methotrexate. I was supposed to take a new round of Mabthera, but because of a cold I had some low values of lgG, so the doctor postponed the mabthera to after the summer. I went to the doctor around 9th October to get my checkup to take the Mabthera, but because of some partying around the start of the semester (Something called Fadderuke in Norway) I again had some low values of lgG. The doctor said I should wait a month and take new tests, so I did. The lgG values were good on this test, but when i went to the doctor, I had a new one. I go to the hospital, so it is kinda random which doctor I get. The new doctor said I didn't need the mabthera, but because I have some scarring in my nose (I might say this wrong, I don't know what it directly translates to in english) and some eczema on my hands my doctor said I should up my dosage of methotrexate, from 20 mg to 25 mg to not increase my dosage of steroids. I am on 7.5mg of steroids a day now, and the doctor doesn't want to increase it. She also said I shouldn't take methotrexate, but use Metex-injections instead.
So my questions is:
Is the doctor right for setting me up on injections instead of methotrexate?
Why did she say I shouldn't take the Mabthera?
To clarify, I don't have a flare up, but my nose and eczema has always been this bad.
I have now had Wegeners for 1 year and 3 months, and I have some questions.
I started my medication when I got it with Mabthera and methotrexate. I was supposed to take a new round of Mabthera, but because of a cold I had some low values of lgG, so the doctor postponed the mabthera to after the summer. I went to the doctor around 9th October to get my checkup to take the Mabthera, but because of some partying around the start of the semester (Something called Fadderuke in Norway) I again had some low values of lgG. The doctor said I should wait a month and take new tests, so I did. The lgG values were good on this test, but when i went to the doctor, I had a new one. I go to the hospital, so it is kinda random which doctor I get. The new doctor said I didn't need the mabthera, but because I have some scarring in my nose (I might say this wrong, I don't know what it directly translates to in english) and some eczema on my hands my doctor said I should up my dosage of methotrexate, from 20 mg to 25 mg to not increase my dosage of steroids. I am on 7.5mg of steroids a day now, and the doctor doesn't want to increase it. She also said I shouldn't take methotrexate, but use Metex-injections instead.
So my questions is:
Is the doctor right for setting me up on injections instead of methotrexate?
Why did she say I shouldn't take the Mabthera?
To clarify, I don't have a flare up, but my nose and eczema has always been this bad.