Wegs/GPA in one word - a new project

[MikeG-2012]

I am working on a project and I need all of your help.

I am looking for one to two words that have something to do with Wegs/GPA. It could be drug names, symptoms, and other adjectives/nouns that describe any part of this wonderfully horrible disease.

Here's an example list:

Rituxan
Joint Pain
Lesions
Vasculitis
Headaches
Sinus Problems

Get the general picture?

Let the one worders begin!

Oh, just for the sake of this thread's longevity, let''s keep this list until November 4th, OK? I don't want this thread to go on forever!

Thanks everyone!!

[NikkiNicole]

Methotrexate
prednisone
fatigue

[Rose]

ear fullness
night sweats
pred weight
saddle nose
migrating pain
remission
.......thats my contribution. Many, many more out there!!

[annekat]

fatigue
hearing loss
neuropathy
cytoxan
methotrexate
prednisone
necrosis
rash
coughing

[morningsunshine]

aching joints
sinus rinse
infusion
rituximab/rituxan
moon face
ear infection
blood test
chest xray

[me2]

self-allergy
haywire

[MikeG-2012]

these are GREAT keep 'em coming!!

Mike

[annekat]

flare
relapse
bactrim
stenosis
spoons
autoimmune
mucus
vision problems
vertigo
cramps
sinus erosion

[Alysia]

Death. (Sorry. But true)

[Pete]

Urinalysis
sedimentation rate
C-reactive protein
comprehensive metabolic panel
complete blood count
ANCA associated Vasculitis

[vdub]

Brain damage
Liver damage
Lung damage
Kidney damage
Side-effects
Rheumitlogist
Endocrinologist
ENT
Surgery
Biopsy
Sleep
Incurable

[renidrag]

Fear
indescribable
you look good
swollen
bronchoscopy
sadness
loss of esteem
struggle
creatninine

[mishb]

invisible illness
looking well
rare
potentially fatal/life threatening

SUCKS

[annekat]

unpredictability
uncertainty
life threatening
rare
misunderstood
scary
chronic
systemic

[Alias]

"uncertainty" was the first word that came to mind for me, Anne, but maybe "unpredictability" captures it better. I am still adjusting to this new normal of not knowing from day to day whether I will feel ok or have some disease related or medication related spike in symptoms that will step in to change my plans and remind me that this thing is not going to go away. Even though I have (knock on wood) "limited" disease to date, the day to day changes and the month to month worries about lab results keep me constantly off balance.

[KathyB]

vunerability
life threatening
life changing
kidney disease
lung capacity
IgG
IgM
kidney biopsy
no cause
no cure
support forum
vasculitis

My first thoughts after reading everyone's comments. We have also been tremendously blessed by incredible doctors and researchers who have found ways to help us live longer and thrive!

[drz]

phlebotomist ? user, junkie, lover, addict

[jlove]

waiting
watching
side effects
roid rage
good days
bad days

Some of these are two words but I guess I'm going for key phrases here :)

[mrtmeo]

How about acronyms and Latin?
RPGN (Rapidly Progression Glomerulonephritis)
Wegeners Granulomatosis
Edema
GERD
Necrosis
Proteinuria
Hematuria
Polyangiitis
Lung nodules
Ground-glass Opacities
Subglottic Stenosis
Cellcept
Plasma Exchange
IV Immunoglobulins
Epogen

[gilders]

I could create an extremely long list, but I'll keep it very short. I'll keep it to the symptoms that have had the largest adverse effect on my life -

Weakness
Fatigue

[MaxD]

PR3
Infusion
Lung Nodules
Granulomas
Rheumatologist
Steroid myopathy
Glaucoma

[Jaha]

Inflammation
pain
insomnia
anxiety
unpredictable
life changing
loss of self
crazy thoughts
medical bills
nervousness
hope

[Donna-from-Philly]

Sick
Tired
Fear
Faith
Pain
Strength
Struggle

[chris.wg]

There are a lot of good ones so I will keep it to 1 in order to not duplicate.

Constant Monitoring

[Jayne 14]

Saddle nose
Gingivitis
Ear pain
Prednisone
MTX
Septrin
Folic acid
Vitamin d
Weight gain
Fatigue
Frustrating
Life altering
Hair thinning
Love
Support
Family
WILL NOT CHANGE ME : I'm still me 🌟🌟🌟🌟


Sent from my iPad using Tapatalk

[vdub]

I wonder if there's a crossword puzzle app that we could plug these words into? I'm guessing there is...

[Jaypfei]

Saddle nose
Hearing Loss
Lung involvement
Vicious cycle
Ignorant doctors

[vdub]

Thread closed at OP request.....