Dumpy
10-19-2009, 02:07 PM
Sorry I haven't posted on my "Weg Specialist" visit since I got back but every time I get to the forum I haven't been able to catch up reading all of the other post.
I had my visit with Dr. Fessler in Birmingham, Ala. on Oct. 7th and had a really good vist and a really good report:). We (my wife and I) stayed in the Dr's office for about 2 1/2 hrs. Spent a lot of time going over history of my Wegs with a very good assoicate Dr. then had about a 45 min. meeting with Dr. Fessler. She was very pleased with all of the care that I have been getting from my ENT and Pulmonoligist. She looked at all of my test,scans and treatments and said that everything was right on target. The only thing that she would sugest would to be and additional urine test to check my bladder for possible delayed reaction to the cytoxan causing cancer which she said is very slim but just a good thing to keep a check on.
We really had a good visit. We also talked about when she considered the Wegs to be in remission and she looks at all of the test but what she really uses as a gage is how I feel as much as anything else.
We also talked about the Rituximab which she seems to think will be approved for use within the next 6 months. Which would be a very good thing if there were a flare because it was so much less harmful to the body. I hope for evey Weggie past, present and furure that they approve it. We all need a break today!
Dr. Fessler is a Rhuemy and has a great staff. I would recomend them to anyone with Wegs.
One thing that she did tell me was I was very fortunate to have 2 good Dr's because she had seen a lot of cases where people had not been put on the right meds are had been pulled off of the meds to quick and did a lot of damage before it was corrected. Even though all of my treatment has been good prior to going to Dr. Fessler I am glad that I went. It really gave me a good sense of where I am.
I had my visit with Dr. Fessler in Birmingham, Ala. on Oct. 7th and had a really good vist and a really good report:). We (my wife and I) stayed in the Dr's office for about 2 1/2 hrs. Spent a lot of time going over history of my Wegs with a very good assoicate Dr. then had about a 45 min. meeting with Dr. Fessler. She was very pleased with all of the care that I have been getting from my ENT and Pulmonoligist. She looked at all of my test,scans and treatments and said that everything was right on target. The only thing that she would sugest would to be and additional urine test to check my bladder for possible delayed reaction to the cytoxan causing cancer which she said is very slim but just a good thing to keep a check on.
We really had a good visit. We also talked about when she considered the Wegs to be in remission and she looks at all of the test but what she really uses as a gage is how I feel as much as anything else.
We also talked about the Rituximab which she seems to think will be approved for use within the next 6 months. Which would be a very good thing if there were a flare because it was so much less harmful to the body. I hope for evey Weggie past, present and furure that they approve it. We all need a break today!
Dr. Fessler is a Rhuemy and has a great staff. I would recomend them to anyone with Wegs.
One thing that she did tell me was I was very fortunate to have 2 good Dr's because she had seen a lot of cases where people had not been put on the right meds are had been pulled off of the meds to quick and did a lot of damage before it was corrected. Even though all of my treatment has been good prior to going to Dr. Fessler I am glad that I went. It really gave me a good sense of where I am.