carrottop50
09-13-2014, 07:35 AM
I just need to chat and see what some of you think.... As I am reading around this site I am finding that I am not alone here... I have been sick for years now and the doctors don't seem to have a clue. I have a rheumatologist, a PCP and kidney specialist. I just seen my kidney specialist only once and go back to him on this Wednesday. He is testing me for Wegener's. So I haven't heard yet. I have the blood work results but I don't know what they mean. I have Rheumatoid Arthritis, sjogrens, diabetes and some other things going on... I was put on Methotrexate, plaquenil, folic acid. Then when that seem to fail they added Humira. The kidney specialist stated that the humira I was just starting would help the wegener's if that is what I have. Well the strangest thing happened....after my 2nd shot I started to feel so much better. I have felt so bad for so long I didn't know any life but this one... but the humira kicked in for 5 days 5 wonderful days.... oh I felt so good... I could breath -throat felt normal for the first time in years - no swelling... sinus took in lots of air too... it felt so strange. Even my lungs felt like they could expand more than they have for sometime. The very best thing was I didn't have to take insulin for those 5 days... I have been on insulin for 10 years at 50 units a day. My blood sugars were lower then my hubby's (not diabetic) for those 5 days... The fullness (feels like water) in my ears went away. The inflammation and pain went down to 1/2 of what I was use to. The rash on my arms seem to do better too. I am losing my hair big time. My kidneys are now working as well as they should. The sore inside my nose is still there but it has been there for a long time so that might take a while to heal. The inside of my mouth didn't seem as touchy no sores, The fatigue left my body. I really felt like a new person. Well then by Thursday I was right back to my old sick self. I went to my PCP today and he doesn't have a clue of what is going on ...just that I am complicated. I was in the hospital about 10 years ago with all this stuff and I am afraid I am heading that direction again... I about lost my life that time. My blood sugars were in the 500 and 600's and I couldn't breath... I was spitting up blood. They told me that they didn't have a clue what was wrong but that I was really sick. They dx'ed me with pneumonia and staph infection. I came home on oxygen for about 3 or 4 months then I started to feel better but have never felt well. I guess I don't know how to get the doctors to take me serious and not tell me it is all in my head. I am so very sick of being sick... it is terrible to want the docs to dx me with this disease but I am thinking if they would dx with it... I could get to feel better because they would put me on the right meds. Thanks for reading... I can use any help you can give...
Carrottop
Carrottop