Paul
09-09-2014, 08:09 PM
Hi I’m Paul and this is my story so far….
A long time ago in a galaxy far beyond the black stump liveda hermit trying to get by with his electrical contracting business. This hermitwas supposed to have asthma but couldn’t seem to stay away from the prednisoneas he could only work when on it.
The hermit tried so many things to get better, specialdiets, special doctors and a very special ingredient….friends with coffee! Thenot so typical hermit found that he could keep on when using the prednisone. Workingand living and doing his favourite thing…Karate. You see this hermit wasactually a pretty typical bloke…not wanting to be sick, he just kept on pushingand pushing and pushing until those times when his body pushed back.
Not really liking pleurisy and suspected Lupus he was ableto check out of the hospital just after Christmas in December 2011. Looking atall the water in the area he found his way home by following a Gecko driving ayellow cab (by the way there really is a secret society of Gecko’s that driveyellow cabs and follow me around the country) through the swirling water andavoiding serious potholes the size of swimming pools. To his little home in thecountry. There with his lovely wife and five kids he managed to sit back and donothing much at all apart from catching the seafood as it migrated across hisdriveway.
The bloke (so not actually a hermit) tried to do a fewthings on a weekly basis but just kept getting so tired, he would not sleep(and cleaned the house nightly) and frequently was up for days at a time. Hesweated like the guy on the really bad deodorant ads, very often at night.Waking to believe that the floods hadn’t actually receded at all. He got soshort of breath that he founded great lasting relationships with his localclinics where they provided him with course after course of his favourite pill.He was such a nice bloke that he actually, single handed, provided for theannuity payments of all the lovely people with the Sudafed company.
Then things went a little worse, he found that if he pushed,then his body pushed back harder. He found walking to be difficult, oftenpainful and training In Karate led to days in bed (without any fun). Realisinghis options were becoming a bit limited the bloke decided to go for an officejob, and actually found one. On that special day of testing and interviews hewasn’t well but managed to succeed. Later on he was informed that he would haveto be relocated in order to be trained in his new job. So he packed his bag,jumped into his car and drove on down south to that most mysterious of places,talked about in hushed whispers, always on the tongue and never ready to bespoken about, National capital, Canberra.
There he was greeted with open arms by a family member witheven more issues than himself, a black sheep (not a cute one) instrumental indivulging secrets of science. There he commenced his studies and missed hisfamily. Fate however had other things in mind, his wife flew down to see himand attend an interview also in the south, a week later he had driven up to hisold home, packed his old truck and drove it back down with the basics on board,oh and some kids as well.
Thereafter some adjustments were made, he went to work andlearned. She went to work and learned and he got quietly sicker. He managed afew months at work before side effects of medications made themselves known byfracturing vertebraes, developing a DVT, Pulmonary Emboli and some occasionalhospital visits (only lasting a few weeks at a time). There lots of fun testswere made and he found out that Vampires are real, but they actually useneedles. Thereafter becoming a seeker of truth he found a GP who would managehis new patient’s neurosis to an acceptable level by actually listening. (Nowthat’s special)
This professional bromance evolved well, with acceptablelevels of intolerance and nice shirts only interrupted by the occasional needfor payment. Until a fateful encounter with a pair of shorts enabled aspecialist to see his legs (such might fine ones at that) where he was told towatch out for that vasculitis. (Oh well just something else right?)
This encounter paved the way forward for his loving GP tosay, you bloody beauty! We may have a winner in the form of a diagnosis. Wherehe did then write and fax a referral to another Dr in that most specialist offields a Rumourtologist. (well it is in Canberra) Requesting that Wegeners beinvestigated most urgently.
And that my friends is where she’s at…again waiting for anappointment for a positive diagnosis and a way forward. So here I leave you,until next time and like my favourite cartoon character I say unto thee mostverily…..”You cannot harm me. My wings are like a shield of steel.”
A long time ago in a galaxy far beyond the black stump liveda hermit trying to get by with his electrical contracting business. This hermitwas supposed to have asthma but couldn’t seem to stay away from the prednisoneas he could only work when on it.
The hermit tried so many things to get better, specialdiets, special doctors and a very special ingredient….friends with coffee! Thenot so typical hermit found that he could keep on when using the prednisone. Workingand living and doing his favourite thing…Karate. You see this hermit wasactually a pretty typical bloke…not wanting to be sick, he just kept on pushingand pushing and pushing until those times when his body pushed back.
Not really liking pleurisy and suspected Lupus he was ableto check out of the hospital just after Christmas in December 2011. Looking atall the water in the area he found his way home by following a Gecko driving ayellow cab (by the way there really is a secret society of Gecko’s that driveyellow cabs and follow me around the country) through the swirling water andavoiding serious potholes the size of swimming pools. To his little home in thecountry. There with his lovely wife and five kids he managed to sit back and donothing much at all apart from catching the seafood as it migrated across hisdriveway.
The bloke (so not actually a hermit) tried to do a fewthings on a weekly basis but just kept getting so tired, he would not sleep(and cleaned the house nightly) and frequently was up for days at a time. Hesweated like the guy on the really bad deodorant ads, very often at night.Waking to believe that the floods hadn’t actually receded at all. He got soshort of breath that he founded great lasting relationships with his localclinics where they provided him with course after course of his favourite pill.He was such a nice bloke that he actually, single handed, provided for theannuity payments of all the lovely people with the Sudafed company.
Then things went a little worse, he found that if he pushed,then his body pushed back harder. He found walking to be difficult, oftenpainful and training In Karate led to days in bed (without any fun). Realisinghis options were becoming a bit limited the bloke decided to go for an officejob, and actually found one. On that special day of testing and interviews hewasn’t well but managed to succeed. Later on he was informed that he would haveto be relocated in order to be trained in his new job. So he packed his bag,jumped into his car and drove on down south to that most mysterious of places,talked about in hushed whispers, always on the tongue and never ready to bespoken about, National capital, Canberra.
There he was greeted with open arms by a family member witheven more issues than himself, a black sheep (not a cute one) instrumental indivulging secrets of science. There he commenced his studies and missed hisfamily. Fate however had other things in mind, his wife flew down to see himand attend an interview also in the south, a week later he had driven up to hisold home, packed his old truck and drove it back down with the basics on board,oh and some kids as well.
Thereafter some adjustments were made, he went to work andlearned. She went to work and learned and he got quietly sicker. He managed afew months at work before side effects of medications made themselves known byfracturing vertebraes, developing a DVT, Pulmonary Emboli and some occasionalhospital visits (only lasting a few weeks at a time). There lots of fun testswere made and he found out that Vampires are real, but they actually useneedles. Thereafter becoming a seeker of truth he found a GP who would managehis new patient’s neurosis to an acceptable level by actually listening. (Nowthat’s special)
This professional bromance evolved well, with acceptablelevels of intolerance and nice shirts only interrupted by the occasional needfor payment. Until a fateful encounter with a pair of shorts enabled aspecialist to see his legs (such might fine ones at that) where he was told towatch out for that vasculitis. (Oh well just something else right?)
This encounter paved the way forward for his loving GP tosay, you bloody beauty! We may have a winner in the form of a diagnosis. Wherehe did then write and fax a referral to another Dr in that most specialist offields a Rumourtologist. (well it is in Canberra) Requesting that Wegeners beinvestigated most urgently.
And that my friends is where she’s at…again waiting for anappointment for a positive diagnosis and a way forward. So here I leave you,until next time and like my favourite cartoon character I say unto thee mostverily…..”You cannot harm me. My wings are like a shield of steel.”