RussW
06-10-2014, 06:40 AM
Hi All,
I've been a lurker here for a few years now. This forum has helped me through some very hard time... Thank you all for provided a forum like this!
I was diagnosed with WG about 2 years ago, it took 9 months to find out what was wrong with me. I finally got the diagnoses in the Mayo in Phoenix. I've been in remission for just about a year now. I did the prednisone and Bacterium for 2 years and now off both meds. So far I've had 6 RTX in fusions that may have saved my life. I have saddle nose scared lungs long term tubes in both ears. 2 sinus surgery and also they put in new tear ducts in both eyes.
I just had my 3 month lab work done and the CD20 B-cells are at 2.3% of a total lymphocytes and 0.5% of all the nucleated in the sample. When I first was diagnoses and very sick they were at 9% and after the first 4 RTX infusions they dropped to .3%, they don't know when or at what percentage the B-cell will flare up and start their rampage again. So they want me to do 2 more rounds of RTX. I don't know anything about these numbers... Does anyone know the normal range of the CD20 B-cells? Thank you!
I've been a lurker here for a few years now. This forum has helped me through some very hard time... Thank you all for provided a forum like this!
I was diagnosed with WG about 2 years ago, it took 9 months to find out what was wrong with me. I finally got the diagnoses in the Mayo in Phoenix. I've been in remission for just about a year now. I did the prednisone and Bacterium for 2 years and now off both meds. So far I've had 6 RTX in fusions that may have saved my life. I have saddle nose scared lungs long term tubes in both ears. 2 sinus surgery and also they put in new tear ducts in both eyes.
I just had my 3 month lab work done and the CD20 B-cells are at 2.3% of a total lymphocytes and 0.5% of all the nucleated in the sample. When I first was diagnoses and very sick they were at 9% and after the first 4 RTX infusions they dropped to .3%, they don't know when or at what percentage the B-cell will flare up and start their rampage again. So they want me to do 2 more rounds of RTX. I don't know anything about these numbers... Does anyone know the normal range of the CD20 B-cells? Thank you!