can reduction of pred cause a headache ?

[Alysia]

Hi,
Thanks God for this forum. whew..... I couldn't survive without you...
the last 2 days I have an aweful headaches.
a week ago I had my rtx and with it 120mg steroids in the IV, so I though that this can be an opportunity to try again to reduce my dear pred from 5mg to 4mg. so it is about a week of 4mg.
but then, comes this headach which is felt different and it very strong. so strong that just now I cancelled 2 meetings that I should have done at work, because I can't stand it.
can the reduction of pred cause it ? I don't have other symptoms of reduction so far.
or is it because of the rtx ???
thanks again.

[pberggren1]

Please keep an eye on this sweetie. My gut tells me it is prob the pred reduction as you are very sensitive to pred reductions.

[mishb]

Yep, it will be the pred since you are no longer on MTX. I would drop from 5 to 4.5 and see if that makes a difference.
MTX gives me a headache :sad:

Listen to Dr Phil :biggrin1:

[windchime]

Don't forget the stress of your oh so pleasant meeting. That could also cause a big headache. Feel better. :sad:

[Geoff]

Hi Alysia, 5mg is a barrier for me and i have never got below it. That being said, i would drop by 1/2mg at a time and even go 5mg on alternate days to start with.
Question, have you ever been below 5mg? Since my dx 6 years ago i have failed to get lower. The docs say my Wegs is recalcigent and i now think that i will be on pred forever.
They tell me 5mg is nothing to worry about and i am tending towards that theory!!

[Geoff]

I meant to say that i am usually out of sorts for up to 5 weeks after a RTX IV. Do you have any 'fall out' after treatment?

[Alysia]

Thanks, my friends, for your wise words and support. :thumbup: :wub:
Cindy, thanks for thinking about the impact of yesterday :)
Dr. Phil, I just took 1mg more an hour ago and tomorow I will be back to 5mg. I hope I will not need to up to 7 or 8 :unsure: even for a while.... I will watch it...
Geoff, I was not all the years on pred. at the acute onset I was couple of months on 60 mg. then I reduced gradually to zero and about 4.5 years I was on/ off on various doses, ranging between 30mg to 10mg for short periods. only in the 1.5 last year I am constantly on pred, sometimes more then 5mg. usually 5mg.
I don't know if it can be the impact of the rtx. last time I had pains all over. but not headaches.
p.s. my big son, a soldier, is just got sick now with fever and headaches. I hope I don't have what he has... :w00t:

[KimH]

Your son is a soldier? Oh I so worry about you and the news I hear. How is your headache today?

[Pete]

p.s. my big son, a soldier, is just got sick now with fever and headaches. I hope I don't have what he has... :w00t:

Bazinga!! Watch your symptoms and his. Hope you feel better soon!!

[KimH]

p.s. my big son, a soldier, is just got sick now with fever and headaches. I hope I don't have what he has... :w00t:

Bazinga!! Watch your symptoms and his. Hope you feel better soon!!

Sheldon is that you? Sorry couldn't resist.

[Barbara N]

Hi,
Thanks God for this forum. whew..... I couldn't survive without you...
the last 2 days I have an aweful headaches.
a week ago I had my rtx and with it 120mg steroids in the IV, so I though that this can be an opportunity to try again to reduce my dear pred from 5mg to 4mg. so it is about a week of 4mg.
but then, comes this headach which is felt different and it very strong. so strong that just now I cancelled 2 meetings that I should have done at work, because I can't stand it.
can the reduction of pred cause it ? I don't have other symptoms of reduction so far.
or is it because of the rtx ???
thanks again.
They have also been reducing my Pred and I have been getting terrible headaches.

[Debbie C]

Hi Barbarba,been wondering about u,hope all is going well with your dialysis.
Alysia, believe me the reduction of the pred can cause headaches and other withdrawal symtems...but like Pete said watch you don't get a fever like your son has. I would go back up to 6 for a couple of days then back to 5. Good luck and I hope both you and your son feel better:hug2:

[Barbara N]

Hi Barbarba,been wondering about u,hope all is going well with your dialysis.
Alysia, believe me the reduction of the pred can cause headaches and other withdrawal symtems...but like Pete said watch you don't get a fever like your son has. I would go back up to 6 for a couple of days then back to 5. Good luck and I hope both you and your son feel better:hug2:
Hi Debra, I stopped dialysis on Friday and most of the pills. My doctor is lowering my Pred 2 1/2 mgs every 2 weeks. I am now on 15mgs. I feel so much better and for the first time in months I feel well enough to work my horse and groom her. I know the consequences of what I am doing but it is wonderful feeling so well even if it is for a short time. I had no quaLItY OF LIFE before. The Wegs has destroyed my kidney I now has 0 functioning my heart and now my lungs I feel great and hope il lasts. It was awful just being in bed feeling bad. Now I am out doing things again. I hope you are feeling well. thanks for writing, love Barbara

[Alysia]

It is the pred reduction.
my second day back on 5mg and I am feeling a bit better.
my son is also recovering but I figured it out that the headache started before he came home.
I hope I will not need to take more then 5 mg.
thanks everyone for your advices and caring and good words. I love you all so much :wub:

p.s. I just hope that the headache is not PML after the RTX :scared::scared:

[Alysia]

Hi Debra, I stopped dialysis on Friday and most of the pills. My doctor is lowering my Pred 2 1/2 mgs every 2 weeks. I am now on 15mgs. I feel so much better and for the first time in months I feel well enough to work my horse and groom her. I know the consequences of what I am doing but it is wonderful feeling so well even if it is for a short time. I had no quaLItY OF LIFE before. The Wegs has destroyed my kidney I now has 0 functioning my heart and now my lungs I feel great and hope il lasts. It was awful just being in bed feeling bad. Now I am out doing things again. I hope you are feeling well. thanks for writing, love Barbara

Barbara :love: I am so glad to have you around :hug1:
I missed you and I was worried about you. I am so glad that you are feeling better and already doing some things. I know all the time that you are the toughest and the strongest lady ever :thumbsup:
lots of hugs heading to you, take care and update us how are you.