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acker
04-10-2014, 04:32 AM
Wow after reading some of the threads on here, I relise what a lucky guy I am. I live in Luton Bedfordshire England. And one of the best Renal Depts in the country the Lister Hospital Stevenage, is not very far from me. They have specialists in Vasculitis and the care is second to none. Because my case was life threatening when I was taken in, they have me on a Worldwide Vasculitis Study. I carry a card with me at all times, on it I have the phone No's of the Research Nurse and the Renal Ward, so if I see any signs of infection or relapse, I can contact them 24 / 7.

I was just wondering if any other Weggies on this site, are working with such great people. :drool:


Acker :thumbsup:

Dirty Don
04-10-2014, 06:55 AM
I've got Mayo, or they've got me...whatever...great system and docs!

Geoff
04-10-2014, 08:54 AM
Hi Acker,
I've got the support of Addenbrookes in Cambridge to fight my corner. I trust them implicity and owe them my life. We are blessed to have doctors and nurses around the world looking after us.

Alysia
04-11-2014, 04:05 AM
I was just wondering if any other Weggies on this site, are working with such great people. :drool:
Acker :thumbsup:

I am lucky to be in this forum :wink1: great supporting people and experts in wg as well :love:
a decent "compensation" for the lack of any vasculitis docs in Israel....

vdub
04-11-2014, 06:35 AM
Were your ears burning a bit yesterday, Acker? Geoff, freaky, myself, and our spouses all had dinner together and Geoff mentioned he had talked to you. It would have been great if you could have joined us.

There actually is one good thing about GPA and that's the nice people you meet along the way.

freakyschizogirl
04-11-2014, 08:44 AM
And Marta, Sangye and Phil's ears should all be burning too....in a good way

Geoff
04-11-2014, 08:52 AM
And no, its not a new symptom for Weggies to be concerned about!

pberggren1
04-11-2014, 09:21 AM
I also met 2 new Weggies today at the hospital.

acker
04-11-2014, 09:36 PM
Hi Vdub, It sounds you all had a good time at your dinner. Yes I had a great chat with Geoff. Maybe I'll meet some of you at the do near Bedford next month?.
I'll leave you with a saying that my friend Jenny's mum, down in Somerset, always gives when meeting new people. I think it's wonderful " Hello, I hope you're feeling as good as you look" Acker :thumbsup: