eyeopps
03-31-2014, 12:56 AM
Hi All
I have been browsing the site. I am a newbie to forums, having never needed them before, so forgive small errors in posts.
I have just been diagnosed with GPA. It took 6 months to nail it down. That was what I would call an interesting journey!!. Started with what we thought was just bad headaches that progressed to loss of hearing and tinnitus.
Then the, what I call the roving ailments, started. Sore swollen leg for a couple of weeks, sore back for a couple of weeks and so on. The symptoms keep moving. At one stage I joked with my family doc that it must seem like I was going crazy!!
Eventually the ENT sent me to an infectious diseases clinic and within three weeks they had if down to GPA. We are sill in the stage of figuring out if and how much organ damage has already occurred. Had kidney biopsy yesterday and should know results within a couple of weeks.
Currently only on Pred (50mg) and decreasing slowly until we are down to 10mg. Also on Mylan-Risedronate. Further meds will depend on kidney biopsy results. I cannot complain about the doctors. They have all been fantastic. I have not met one that does not seem to really care.
I have to agree with many who have this GPA. The not knowing what was happening to you was far worse than knowing. At l east once you know you can move ahead. I am encouraged by what I have been reading on this site. There is a light at the end of the tunnel!!
Andy
I have been browsing the site. I am a newbie to forums, having never needed them before, so forgive small errors in posts.
I have just been diagnosed with GPA. It took 6 months to nail it down. That was what I would call an interesting journey!!. Started with what we thought was just bad headaches that progressed to loss of hearing and tinnitus.
Then the, what I call the roving ailments, started. Sore swollen leg for a couple of weeks, sore back for a couple of weeks and so on. The symptoms keep moving. At one stage I joked with my family doc that it must seem like I was going crazy!!
Eventually the ENT sent me to an infectious diseases clinic and within three weeks they had if down to GPA. We are sill in the stage of figuring out if and how much organ damage has already occurred. Had kidney biopsy yesterday and should know results within a couple of weeks.
Currently only on Pred (50mg) and decreasing slowly until we are down to 10mg. Also on Mylan-Risedronate. Further meds will depend on kidney biopsy results. I cannot complain about the doctors. They have all been fantastic. I have not met one that does not seem to really care.
I have to agree with many who have this GPA. The not knowing what was happening to you was far worse than knowing. At l east once you know you can move ahead. I am encouraged by what I have been reading on this site. There is a light at the end of the tunnel!!
Andy