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Debbie C
02-25-2014, 04:43 AM
I can't figure this out,I know I have anxiety and lately I have been so depressed that I will just cry at the drop of a hat. But the last few days my body is like shaking all over on the inside. I take my anxiety pills and nothing helps. My dr. gave me sample pills for depression yesterday (haven't taken them yet ) but I don't think that is what is making me shake so bad,I feel like I am going crazy.My heart is pounding away yet the blood pressure is normal. I don't now if this warnits going to the e.r. or not

Alysia
02-25-2014, 04:51 AM
Hi Debra.
I am sorry that you are going through such rough time.
I wonder if what you are feeling inside is phsical or pshchological. each affect the other of course, and sometimes it is hard to differentiate. do you know which came first ?
if it is psychological, like anxiety, depression and the like, you can ususally "detect" the "content" of it or the "cause" of it: like being frightened about something, or sad, or in stress, or angry. restlessness inside can be some anger or even rage that is expressing itself this way.
anyway, allways good let a doc to check you. is the only option for you is ER ? can't you see a doc in a clinic ?
sending you my love and lots of hugs....:hug1:

pberggren1
02-25-2014, 05:47 AM
Hey Deb, is this shaking thing recent? Have you had any changes in meds recently? Do you have a blood pressure machine at home? What is your pulse at?

I'd be leaning to going to the ER if this continues for another day.

Debbie C
02-25-2014, 07:18 AM
Phil,the shaking has been going on for a few days,no changes in meds except the dr. gave me anti-depressants yesterday,that I haven't started yet:crying:I use my mothers blood pressure machine and my pulse is in the 90's which is about norm. for me. I think I am just having a major aniety attack and my meds aren't helping.I have an eye appt. tommorrow then see the kidney dr. Wed. maybe he can suggest something if not I will go to the e.r. just to get a shot of something to calm me down

Dirty Don
02-25-2014, 07:20 AM
I have panic attacks too Deb...took me and the doc a while to figure it out. Turns out I've had it for a very long time, but always worked thru them or ignored them...ah, youth. Now I can sit and think about my attacks and that does NOT help one bit. I am on Lexapro daily with a Xanax backup for immediate needs. I shake too when one is coming or even in full swing...can't stop it. But, heart is fine, BP is fine, rate just goes up until meds take over or I work my way thru it. If it continues 24/7, I'd get to a doc...but if you're having waves of attacks, I'd suggest your pills aren't right or not enough. Hang tough lady.

HopeinTN
02-25-2014, 07:26 AM
I hope you get to feeling better soon. Maybe you need some sunshine and warmer temps. The winter weather can make people feel this way.

Debbie C
02-25-2014, 07:28 AM
I've been taken klonopin daily for years it just seems lately they aren't cutting it anymore. And the shaking is constant,not physical where you can see it just on the inside

Dirty Don
02-25-2014, 11:23 AM
I've been taken klonopin daily for years it just seems lately they aren't cutting it anymore. And the shaking is constant,not physical where you can see it just on the inside

No offense to your prescribing doc, but Klonopin is so outdated. Lexapro or any other SSRI is much more effective with fewer if any side effects (and a bit more expensive) than the older anti depressants. Get it checked!!!

drz
02-25-2014, 12:53 PM
No offense to your prescribing doc, but Klonopin is so outdated. Lexapro or any other SSRI is much more effective with fewer if any side effects (and a bit more expensive) than the older anti depressants. Get it checked!!!

You can build up a tolerance to many drugs so they stop being effective for their purpose. I would guess that probably happened to you so maybe its time to switch drugs.

vdub
02-25-2014, 01:13 PM
Has your doc tested your thyroid by chance?

Debbie C
02-26-2014, 07:36 AM
Hi vdub..my thyroid was checked last year by my ear,nose and thoat dr. ,it seems to be fine. I went to my eye dr. today because my one eye is twitting and real blurry and after an eye test she said my eyes are good and she thinks its my nerves. I called my pcp because the pills he gave me samples to try are $ 287.00 so I'm not getting those. He just called in a script for zoloft for me,so I'll give those a try.
I almost had to leave the eye dr,I felt so horrible ,I almost went to the e.r. but just came home and gonna try to take a nap.
And vdub ,I have been meaning to tell you, I love your pic. You look so happy,it must be having your kids safe and home.
Take care

KimH
02-26-2014, 07:51 AM
Hi Deb, I have had panic attacks too. But just for heck of it google thyroid symptoms. I was shocked to see the list. There also is Hashimotos an autoimmune diseases of the thyroid. Did you have the anti body test for that? I hope that giving you something else to think about does not make you feel worse. I am sorry for that. Have you tried meditation? There is a website called fragrantheart.com where you can listen for free. It does take some time to get the hang of it because the mind does wander. I hope you figure it out and feel better soon.

vdub
02-26-2014, 09:48 AM
And vdub ,I have been meaning to tell you, I love your pic. You look so happy,it must be having your kids safe and home.
Oh, thank you very much....

Yes, having her out of the war zone is nice. It was a tough year. Even though my wife and I both retired from the military, it is very different when your kid is put in harms way. I'm sure I worried more about her than she worried about herself.

Jaha
02-26-2014, 01:08 PM
Deb
I have to agree with Don, on this. We sometimes need achange of medications
for anxiety and panic attacks. I had it before dxed,but has got worse since I have been sick.
I'm sorry you are going thru this, it is not easy to deal with you just feel like you're going to shake apart.
I am on zoloft and zanax, which works for me. I hope you get the help you need. All of us here
Have had some really ridicous shock to bodies and minds.Wishing you the best girl.

debhaz22
02-26-2014, 01:30 PM
hI dEB,
I hope you're feeling better tonight? Call me if you need to talk...ANYTIME!!!
My thyroid was low normal, and less than 3 months later it was 8 times normal; so having yours tested awhile ago...maybe it should be rechecked? Just a thought.
Hang in there, FL is coming soon!:cool1:

greenjeep
02-27-2014, 01:09 AM
Deb,
I was shocked when I read your post. I don't know why, shouldn't be surprised with anything anymore. But you described something that has happened with me for years.
At first I called it panic attacks. Now I'm not so sure. I think it is something to do with hormones or adrenals reaction to long term pred or something. For me it only lasts for a day or two when it's bad, but I can have a mild version for weeks.
Hang in there, I know how terrifying this feels. You cannot escape your brain!!



Sent from my iPhone using Tapatalk

Dirty Don
02-27-2014, 02:44 AM
I think it is something to do with hormones or adrenals reaction to long term pred or something. You cannot escape your brain!!

I've been told and measured...for me, it's a loss of serotonin, thus I take the drugs to keep what serotonin is produced IN the correct areas of the brain. Some days it don't work so good! Hmmmm, I like that statement...we can't escape our brains...LOL, I wish more people would USE their brains since they're stuck with them! LMAO!

Alysia
02-27-2014, 03:19 AM
we can't escape our brains...LOL, I wish more people would USE their brains since they're stuck with them! LMAO!

:biggrin1::lol::lol: reminds me of this one: (my thanks to Phil who posted it today on fb)

https://fbcdn-sphotos-e-a.akamaihd.net/hphotos-ak-ash3/t1/484885_246190892225685_1563351261_n.jpg

Alysia
02-27-2014, 03:20 AM
:back on topic:



how are you today Debra ?

Debbie C
02-27-2014, 12:50 PM
I am feeling a little better,the dr.gave me samples of some anti-depressants called brintellix (never heard of them ) but I asked the pharmacists about them and he said my insurance doesn't cover those and they are are $ 278.00 so the dr. called in a script for 50mg of zoloft. I have to try to wean of the klonopin while doing these.Is 50mg. high..it seems so to me but that's just me and pills again,if it works I don't care if it's 100mg.

Dirty Don
02-27-2014, 02:39 PM
Aside from the price of Brintellix, the side effects are scary! You're starting with an average dose of Zoloft...some go with 25, but most are on 100mg. Like you said, if it works...

Debbie C
02-28-2014, 05:06 AM
Well I think I found out what my problem is .....TESTOSTERONE. My obgyn had me using this cream once a day since my hormone level was low. Well I have been using it for around a month and I mentioned it to my other drs and they told me to stop taking it. I had no idea it was a steroid. I went 3 days not using it and I was having withdrawal systems. I talked to the pharmacists and he said I have to be weaned off of this and can't stop using it. So hopefully I will back to "normal" (ha ! ha ! ) soon.

Alysia
02-28-2014, 05:22 AM
whew.... thanks God. I hope the weanning will be over soon. sometimes our body is so mysterious....

ingemlb
02-28-2014, 11:49 AM
Glad you found the solution! I had that mad shaking for a short period in hospital in one of my melt-down episodes. It felt awful so I can imagine how frightening it can become. Inge

vdub
02-28-2014, 12:12 PM
So many drugs today require a weaning process, such that I would be hesitant to stop any of them cold turkey. A week ago, I decided to quit one of my pain pills without doc consent and I put myself on a 3 wk taper to get off it. Its a neropath pain blocker mostly used for seizures. I'm pretty sure it requires a taper. I was on a real light dose, otherwise, I certainly would have touched base with one of my docs before tapering off.

Debbie C
02-28-2014, 12:53 PM
vdub are you sure you should be getting off that one ?
I have felt horrible all day, the dr. that prescribed this said it was such a low dose I shouldn't be having these symtoms,so if I feel the same in the morning I am going to the e.r. which is a joke because they never know what to do....pretty scary.

ingemlb
02-28-2014, 01:32 PM
So many drugs today require a weaning process
I am currently weaning off Tramadol. Cut the dose down from 100 to 50 mg 4x day. think I will taper down to 3x a day for a few days. Inge

vdub
02-28-2014, 01:34 PM
vdub are you sure you should be getting off that one?
Oh, yeah, it's no problem. The drug is gabapentin. It can be nasty stuff in high doses, but I'm on a very light dose. I don't like to be on a lot of drugs and currently I have about 18, but it had been up to 23 just a couple months ago. I want to have the drugs I need and nothing that I don't need.

100 to 50 mg 4x day
That's what I'm on; 100mg 4x day. Works pretty well, but doesn't totally wipe out the pain. I describe my pain to other people as feeling like the first morning after the first day of football practice where every muscle in your body hurts. And, that's the way I feel with the pain drugs. It's more annoying than it is excruciating. And, it wears you out because the pain is always there.

ingemlb
02-28-2014, 01:40 PM
currently I have about 18, but it had been up to 23 just a couple months ago. I want to have the drugs I need and nothing that I don't need.
Can fully relate. It's so tiring. i had to spend a couple of hours creating a spreadsheet to make sure I take what I need to take when I need it :( Means there are only very short intervals during the day where I could go doze a bit. That alarm keeps ringing. I managed to stretch the night a bit, nothing between 11pm and 6:30am but am constantly looking at how I can alter the stuff I need to do to create bigger gaps in the schedule :( Inge

windchime
03-01-2014, 02:48 AM
Can fully relate. It's so tiring. i had to spend a couple of hours creating a spreadsheet to make sure I take what I need to take when I need it :( Means there are only very short intervals during the day where I could go doze a bit. That alarm keeps ringing. I managed to stretch the night a bit, nothing between 11pm and 6:30am but am constantly looking at how I can alter the stuff I need to do to create bigger gaps in the schedule :( Inge

I've managed to get all my meds down to breakfast and dinner, but then I don't have and 3 or 4 times a day meds. All of mine are once or twice a day. Lucky me. Unless you have stuff that can't be taken with something else you should be able to modify so you don't have to use an alarm to take your meds. BTW did you get out of the hospital? It sounds like it. If so yipee!!!!

ingemlb
03-02-2014, 10:54 PM
Sorry yes Cindy. I came home on Wednesday. Took a bit of settling in. My problem is not just taking meds but the blood sugar tests. I have to take the insulin with breakfast and the prednisolone with lunch. I have some pain meds 8 hourly some 6 hourly. Then there was gelclair for the tongue 3 times a day and eye drops and Eye creams. because I am new to diabetes new to prednisolone and back home on a different diet I need to measure the sugar 4x a day to understand what affects what. Also the diabetic specialist told me to avoid hypos I need to eat snacks between meals which I am not used to so i am cutting down on the meals to allow some to be eaten a couple of hours later. Then now there is 2x a day the nose rinse. Some tablets late at night like 11 so I can sleep to 6am then others an hour before I go to sleep. So when you write it all down it's a humungous list :) I am going to streamline it more. Have already been able to cut out the gelclair as my tongue ulcer is healed. My eyes are less inflamed so I don't need the drops quite so often. Next week I am reducing Tramadol to 2 times a day and see if I can manage the pain. I have dropped the linctus to dilute the phlegm and the nulax as a fruit laxative. I am hoping next week's spreadsheet is more manageable.

Debbie C
03-03-2014, 01:46 AM
Inge,my gosh ,you do have your work cut out for you trying to figure out what to take when. Hopefully with diet you can get the diabetes under control and be able to scratch that from the list also. Take care

windchime
03-03-2014, 03:14 AM
Wow Inge you do have a list. I'm diabetic also and I'm supposed to check my blood 4 times a day too. Usually forget. It is interesting tho to find out what affects your blood sugar and what doesn't. Good luck with your spread sheets, I hope it's smaller next week.

vdub
03-03-2014, 03:44 AM
Dang! That's a horrid list!

I have a lot of drugs, but I have worked very hard to keep them at 4 does per day. I load up a pill-minder once a week. Like you, I have tried to taper off some of the drugs that don't seem to be helping. I'm down to about 16 from a high of 23 and no problems that I can detect.

Good luck with your pill management effort -- such a hassle.....

ingemlb
03-03-2014, 05:42 AM
Thanks Debra I have at least grouped them better. Now that i don't have to do the mouth rinses for the ulcer it's a lot easier as I had to wait an hour to drink or eat after each rinse so that added a whole new dimension to the spreadsheet lol. The diabetic specialist reckons I can get away with 2x a day checking my blood but I got too close to 4 for comfort a few times so I am checking more regularly until I have a better pattern with food I am eating and how it reacts :)
Don you are in a worse way than me! I also find the once a week variety a bit of a bummer as it's easy to either overlook them or swallow them too often :( hence the spreadsheet where I black out those days I can't take them. Mainly the Methodextrate on Wednesday and they want me to take folic acid Saturdays and Sundays. Which is why the idea of moving back home had freaked me out a bit as I realised I needed to be on the ball myself. So the spreadsheet was meant for my husband but then I decided I could actually manage so he has a copy and makes sure I don't forget anything :) But it has not been as horrific as I had imagined. Only makes it difficult to find stretches long enough for another sleep during the day. But from next week it's looking better :)

drz
03-03-2014, 07:08 AM
Sorry yes Cindy. I came home on Wednesday. Took a bit of settling in. My problem is not just taking meds but the blood sugar tests. I have to take the insulin with breakfast and the prednisolone with lunch. I have some pain meds 8 hourly some 6 hourly. Then there was gelclair for the tongue 3 times a day and eye drops and Eye creams. because I am new to diabetes new to prednisolone and back home on a different diet I need to measure the sugar 4x a day to understand what affects what. Also the diabetic specialist told me to avoid hypos I need to eat snacks between meals which I am not used to so i am cutting down on the meals to allow some to be eaten a couple of hours later. Then now there is 2x a day the nose rinse. Some tablets late at night like 11 so I can sleep to 6am then others an hour before I go to sleep. So when you write it all down it's a humungous list :) I am going to streamline it more. Have already been able to cut out the gelclair as my tongue ulcer is healed. My eyes are less inflamed so I don't need the drops quite so often. Next week I am reducing Tramadol to 2 times a day and see if I can manage the pain. I have dropped the linctus to dilute the phlegm and the nulax as a fruit laxative. I am hoping next week's spreadsheet is more manageable.

You have my sympathy and a lot of empathy for your situation. I remember being on high dosages of pred when doing rehab at a nursing home three months after my initial diagnosis and the problems I had in trying to manage the blood sugars when they ran from 400 to 40 most days. The care staff checked my blood sugar hourly many times and often I had to eat snacks to to try avoid or rebound from a low cause by the pred wearing off. Snacks are not all that appealing when you have to force yourself to eat something every hour or two when you aren't hungry. Things did slowly improve as the pred dosage decreased but the weight gain from those days never left me. I know I never could have managed my health care without the 24 hour help of care staff. Is that an option for you?

vdub
03-03-2014, 07:36 AM
I realised I needed to be on the ball myself
Same with me. I do it all myself. Its too complex for others to do particularly where I manage the dosage on several of the drugs depending on how I feel at the moment. Also, I will from time-to-time use different pain killers instead of the normal Tramadol.

When I had my thyroid out last summer, the surgeon gave me permission to manage my own drugs for the 3 day stay in the hospital. The hospital staff had a fit over that, especially when they found out I had hydrocodone in my arsenal of drugs, but I prevailed and managed my own.

ingemlb
03-03-2014, 11:09 AM
I know I never could have managed my health care without the 24 hour help of care staff. Is that an option for you?
thanks drz. They offered respite to me before sending me home but I felt I could cope with my husband's help and wanted to free him from all the driving around. And I think we are managing just took a bit of time to get used to it. Actually now I have my spreadsheet I feel much more confident for many were the occasions I had to correct the nurses in what they were giving me. In a way they change shifts 3 times a day and then rotate the nurses around different wards. Guess they are not geared up for having people stay 5 weeks so some of the staff I would see again but such a huge number of new people and they have to get used to the complicated schedule. In a way with just my husband and I we get to figure it out a lot easier I think. I was just so weak and worn out that I couldn't even fathom looking after all this but ... a few days later I feel stronger and more confident :) Inge.

ingemlb
03-03-2014, 11:15 AM
Same with me. I do it all myself. Its too complex for others to do particularly where I manage the dosage on several of the drugs depending on how I feel at the moment. Also, I will from time-to-time use different pain killers instead of the normal Tramadol.

When I had my thyroid out last summer, the surgeon gave me permission to manage my own drugs for the 3 day stay in the hospital. The hospital staff had a fit over that, especially when they found out I had hydrocodone in my arsenal of drugs, but I prevailed and managed my own.

Yes well I had a funny situation where some things I was able to manage. Some things they couldn't find the drugs and I luckily had some in my handbag. Others they locked away in cupboard. Each time I was dispensed meds there was a to-ing and fro-ing looking all over the place for what I was taking. Luckily some of them they had to sign out of cupboards as well as my chart because I began to forget what I had taken and was worried I was getting double. So I got a writing pad and recorded everything. That worked better.
But you are right, they have a huge issue with patients managing drugs themselves. In the future I probably will manage my own as well, now that I am getting more used to it. At the moment I am still on strict instructions what to take e.g. the amount of pred and not been given "permission" to adjust the dose. But I guess down the track I will be more in charge of it. Because my specialist is only in his clinic on Mondays and Tuesdays I would hate to have to wait a week to get permission to up or down the dose!!! That part of this treatment I have yet to experience and figure out how it will all work.