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NikkiNicole
01-22-2014, 04:07 PM
I have several teeny tiny little pinprick sized red dots all over my shoulders and abdomen. It was just a small sprinkle of them but now it's like they are everywhere. They are all spread out and bright bright red. When I went into the dermatologist for the ring worm from hell that won't go away, she brushed them off as nothing. But .... I'm getting more.

Anyone else ever had something like this?? They don't hurt or itch but it seems like I get more of them all the time!

pberggren1
01-22-2014, 04:08 PM
Sounds like it could be a Vasculitic rash, but not sure. I don't think I have every had one so I can't really comment on this.

Dirty Don
01-22-2014, 04:45 PM
Sounds a bit like a WG rash of sorts. Also, if your pred is going up, could be the acne from that. The bright red bothers me, do they itch, bleed? Probably should have a your dermy consider a WG rash first, then if it's less than that, no problem.

NikkiNicole
01-22-2014, 04:53 PM
I don't itch at all. I just have the dots.

drz
01-22-2014, 06:20 PM
Any fever or feeling of being warm in those areas?

Alysia
01-22-2014, 06:52 PM
I am sorry Nikki, that you cant have peace or some "vacation" from the body's suffering... :sad:
did you see pics of wg-rash at fb ? is it similar ? can you attach pic that we can see it ?
I think you should call your doc and ask her.
lots of hugs to you. I hope it will disapear soon.

mishb
01-22-2014, 07:15 PM
I had WG rash on my arms and shins, prior to diagnosis.
It was itchy and hot - kind of like sunburn gets.

I'm not sure on the non-itchy variety.
Have you eaten anything different lately?

Best to get it checked out :unsure:

I agree with Alysia - you need a break

pwc51
01-23-2014, 08:00 AM
When I flare I get a vasculitic rash on my legs, not itchy. My rheumy always checks all my joints for rashes when I see him. The only 'dots' I have had were early on when I had one on the end of each finger and toe! It was slightly unusual that they were photographed by another rheumy for his collection!

Debbie C
01-23-2014, 08:11 AM
Nikki,I get little red dots on my hands and then they will go away after a day or 2. They don't itch either.I sometimes get them when I run my hands under hot water. Maybe you got it from the sun or sweating while walking:confused1:.If it doesn't go away soon definately get it checked out.I guess that want happens in 70 degree weather, I don't remember :sad:

Lilly
01-23-2014, 05:58 PM
Nikki, it's DEFINATELY a form of vasculitis! I got them on the palms of my hands an bottom of my feet. If I closed my hand in a fist, they would feel like little pin pricks and sting a little. I would also get some other places like my legs, but not a lot of them. The first 5-7 years of my wegeners, If I started to get those pinpricks on my hands of feet, it was a definate sign of a flare up. My dr would go up on me prednisone, and they would go away In about 2 wks. Hope this is useful to you. And btw....I don't get them anymore. It seems like the longer I have wegeners , it changes...��

pberggren1
01-23-2014, 08:54 PM
I have had a rash on my hands and arms the past week or so. It comes and goes. Now I see tonight that it is tiny red dots like Nikki describes. I think I might go for labs tomorrow....:sad:

Psyborg
01-24-2014, 01:19 AM
Those dots are like the one time I did have a Vasculitis Rash, though I got something that itched like hives as well in addition to the rash.

NikkiNicole
01-25-2014, 05:26 AM
Most of the spots are on my abdomen. I have a few on my bicep area. The dermatologist said they are a form of freckle. Except, they are BRIGHT red and like someone took a pin and poked me a bunch of times. The ones on my stomach are bigger than the ones on the underside of my bicep.
Still watching.
I haven't talked to my doc about them because, I am trying to take care of her last request which is talking to my boss and telling the boss that the doc wants me on dayshift. I need to know what documentation they need to make that happen.
My stomach is in knots from that.
My eyes have been burning the last couple days, and I started to feel off last night. My throat was phlegmy this morning and what I coughed up was yellow/green. I hope I'm not getting sick.
Hubby's apprentice went home with the flu the other day. Great. I've been avoiding hubby LIKE THE PLAGUE!

annekat
01-25-2014, 05:55 AM
Nikki, I get these on my forearms when I'm a little run down. They are Wegs related. They usually disappear after a few days. I don't consider them a flare, but a warning to take it easy, eat right, get enough sleep, etc, and don't try to taper pred too fast. There are so few of them that I don't worry, but if there were a lot more and they kept coming and coming, as in your case, I'd start worrying. Maybe get bloods done and see what the numbers say. I do hear that people get these on various parts of their bodies, and it sure sounds like a Wegs rash. There's also the possibility that it is something else.... I'll be interested to hear more about what happens with these.

annekat
01-25-2014, 06:02 AM
I would add that I doubt the dermatologist knows anything about Wegs. Your WG doc should be familiar with Wegs rash in all its variations, or be able to find out more from specialists. I hope and pray you are neither flaring nor getting the flu!

Also, I've noticed the dots take longer to go away on more tender areas of skin. I may have a very few on my breast that don't go away. And yes, they are bright red. I figure your abdomen and underside of your biceps would be more tender skin than, for example, the tops of the forearms, and would take longer to go away. But that doesn't explain that they keep increasing.

Debbie C
01-25-2014, 02:13 PM
I remember when I went to the e.r becauce I had had a terrible case of a vasculitisis rash on by legs. I googled it and I looked just like the picture...this were purple dots all over my legs. The e.r. doc said I had poison ivy.I told him to go google it but he didn't. Gave me a script which I threw away...so by point is like what Anne said...don't take the word of your derm. if he doesn't know wg. God, I hope you are not getting the flu now. If you still have those sick days maybe you should use some while all this grud is going around....Take care

skipper
01-31-2014, 12:07 PM
Yes, I had them when Wegners was active but not a huge number. I still get one or two on hands and legs. It looks like bleeding under the skin but doesn't turn into a bruise and I know I didn't injure myself where they are. I showed nephrologist and he just wanted me to monitor them and let him know if I had more. He acted as though it was a normal condition and I didn't ask more. It appears you have a lot and should have your doctor check them but I don't think it's anything to worry about.

jola57
02-01-2014, 03:27 PM
Nikki, Anne and Debra are so right, if he is not a wegs specialist, don't listen. I have two different "rashes", wegs one and "old age" one. Wegs is usually on my lower legs, and looks red/purplish, like getting your finger stuck in a door and the blood swells. The other are red pin point raised bumps. In couple of weeks they turn dark brown and become just one in a series of age spots. They are all over my body. What you have is most likely a wegs rash which many have had. I would explain to your dermatologist that he needs to brush up on his wegs because he will have to have good knowledge of what are the symptoms of wegs to prescribe the correct medicine. Without good knowledge he can do more harm than good.