Only metal

[LillysMom]

When our daughter had a torn meniscus in her knee, surgery was done. Within a short period of time what was done was destroyed. Another surgery was done, the doctor was sure it would work this time. Shortly what they did was gone. I have lost track of how many times her knee was operated on. Finally she was referred to another doctor, as her first one admitted he had given up. He just could not believe the CT, he had never see anything like the damage her body had done to his expert surgery! The new doctor discovered by that time she didn't have a knee any more, even though she was still climbing stairs with a cane (in great pain though). He used the word 'jello' to describe it. He did a total knee, titanium joint with metal inside upper and lower bone. So far since 2011 it has seemed OK. However, it has always hurt, and now it beginning to have a lot of pain, so that will be one more thing to get checked.

Metal seems to be the answer for her in healing. She has a metal plate in wrist break, hand break, and I think arm (lost track!). These have done well. Anyone have similar experiences?

LillysMom

"Be gentle with yourself, you are doing the best you can"

[pberggren1]

Poor Lilly.......:sad: She sure has had it rough over the years.

[mishb]

Lilly, stop touching things.
Didn't your mother ever tell you that if you touch it, it will break :crying:

I'm so sorry that you have gone through all of these breaks and all of these surgeries.
How complex our bodies are.
At least the titanium and metal are working........you are the bionic woman (six million dollar woman)

I can't say that I know of anyone that has gone through this before

[Lilly]

Yall are really sweet......I guess it would seem weird to people when it hasn't happened to you in the same way. I truly just kind of try to be careful and hope my clumsiness doesnt turn into a break or fracture! lol :) I even did something really crazy one time. I cant even believe I did this! I was getting out of the back of my Jeep Wrangler, and I stepped out the back, the top was not on, and when I got my leg over, it slipped and my thigh got sliced open on the licence plate! All the way to the muscle!! It was so crazy, but everyone else was freaking out more than me, so I couldnt help but laugh! I had 5 stitches inside my leg, then 22 to close up the outside. I am slowing down a bit now. I have been in the hospital for too many other things and I just need to concentrate on taking good care of myself. But I have been called the Bionic woman Michelle!! lol I wish! If I was the bionic woman, I would be so strong!!! :) Thank yall for listening~

[pberggren1]

Are you on facebook Lilly?

[Lilly]

Yes I am Phil, I do get on there about 3 times a week on my phone just to see what all my friends and family are up to. Do you get on FB a lot?

[Debbie C]

OUCHHH,that had to hurt. I think you are a good canidate to be wrapped in bubble wrap:biggrin1:

[pberggren1]

Yes I am Phil, I do get on there about 3 times a week on my phone just to see what all my friends and family are up to. Do you get on FB a lot?



Yes, I practically live on facebook......lol

[mishb]

Yes, I practically live on facebook......lol

We all seem to live on here and facebook :biggrin1::lol:

[Alysia]

We all seem to live on here and facebook :biggrin1::lol:

same for me :biggrin1:
it is like living in 2 worlds: the "daily" one in which I have to function and be strong and take care of family, house, work, friends etc.
and my weggie world, in which I can be with my "true self", with my needs and fears and fragility. because I know you understand.
it means to live in the deepest sense. the one of being.
thank you my weggie family for being with me. I love you all :love:

[Alysia]

Yes I am Phil, I do get on there about 3 times a week on my phone just to see what all my friends and family are up to. Do you get on FB a lot?
hey Lilly, you are invited to send your address on fb to me (or to another one here) on PM and we will show your friends and relatives how awesome your weggie family is :wink1:
there are also groups there on WG and vasculitis.

[windchime]

hey Lilly, you are invited to send your address on fb to me (or to another one here) on PM and we will show your friends and relatives how awesome your weggie family is :wink1:
there are also groups there on WG and vasculitis.

Is the link to the FB page posted somewhere?

[Alysia]

Is the link to the FB page posted somewhere?

https://www.facebook.com/groups/2254691112/
https://www.facebook.com/groups/167836703314968/
https://www.facebook.com/groups/332547823431093/
https://www.facebook.com/groups/wegenersgranulomatosis/
https://www.facebook.com/groups/180399172072972/

and if you write to me on PM your address I will be delightful to be your friend there too.

[mishb]

https://www.facebook.com/groups/2254691112/
https://www.facebook.com/groups/167836703314968/
https://www.facebook.com/groups/332547823431093/
https://www.facebook.com/groups/wegenersgranulomatosis/
https://www.facebook.com/groups/180399172072972/

and if you write to me on PM your address I will be delightful to be your friend there too.


Me 2 (also) :thumbsup:

[Lilly]

Hi Alysia, I would love to be friends with anyone who would like to on FB....my FB email address is [email protected]. Yall are really great. I cant wait to get to my parents to talk to yall! And just getting caught up on things with everyone. Thanks so much! Im going to give my email address to Phil also. He asked me if I was on FB. Ill talk to u soon!

[Lilly]

Yes I am.....I would love to be friends with anyone who wants to! My FB email address is [email protected]
I will be looking at my FB a few times a week. Hope to see u there! I will FRIEND U! :) Hope all is going well!

[pberggren1]

What is your e-mail address Lilly? My facebook name is Phil Berggren. Send me a friend request.

[Alysia]

Hi Alysia, I would love to be friends with anyone who would like to on FB....my FB email address is [email protected]. Yall are really great. I cant wait to get to my parents to talk to yall! And just getting caught up on things with everyone. Thanks so much! Im going to give my email address to Phil also. He asked me if I was on FB. Ill talk to u soon!
Hi Lilly
when I typed this address it bring me to Lisa... and then I saw that Phil is already there :biggrin1: I sent you a friend request. is that you ? you have beautiful eyes.

[Alysia]

done :thumbsup: