Sweating, Not Sleeping

[Poppy64]

Hi Everyone, was wondering if anyone has had a problem with sweating and not sleeping. I wake up almost every morning between 3-4 sweating (not soaking the sheets but head is soaking). Can't go back to sleep. Now, I have started to sweat during the day. I can't take it anymore. Any ideas? Suggestions? Thanks

[Debbie C]

Sorry I can't help you on this one. Have you mentioned it to your doc? Could be the meds or may even be a touch of a virus--flu ??? Don't know but I hope you find the answer and feel better soon. If not you can always come to Ohio..it's freezing here:biggrin1:

[annekat]

Night sweats are a symptom of a Wegener's flare, or one trying to happen. They happened to me right before my initial diagnosis, and again when I had a fairly minor flare about a year and a half later. However, this could be from other things, not the least of which is menopause! Getting them in the daytime as well as at night makes me think of that. If you don't think it's that, and it keeps bothering you, I'd watch for other symptoms and see your doc for a blood test to see if your inflammation markers have gone up.

[windchime]

Hi Everyone, was wondering if anyone has had a problem with sweating and not sleeping. I wake up almost every morning between 3-4 sweating (not soaking the sheets but head is soaking). Can't go back to sleep. Now, I have started to sweat during the day. I can't take it anymore. Any ideas? Suggestions? Thanks

I had night sweats a couple of years ago, mainly the head. Figured out that when I went to sleep hugging a pillow with the covers pulled up tight, it apparently held in the heat and I would wake up about an hour and half later with my pillow soaked. Now I start out with no covers on and add them as needed. It stopped the night sweating for the most part. I had slept that way for some years with no problems, but think that is when this current episode began.

I also sweat profusely during the day mostly from my head. It is very annoying as it really screws up the hairdo (not to sound vain or anything, lol.) My hair gets frizzy. At any rate the current meds seem to make it worse as I have to keep the AC at 72-73 to feel comfortable. I got a med from my Dermatologist that helps somewhat, but has a side effect of dry mouth. I went through menopause sometime ago, but of course it could still be attributed to low estrogen I suppose. If you figure something out let me know as it drives me bonkers at times too.

[annekat]

Interesting about sweating from the head. I can't recall that happening, either with menopause or with Wegs sweats. My sweats have been more concentrated around my shoulders and back, I think. Although maybe accompanied by some lightheadedness.

[Poppy64]

I had night sweats a couple of years ago, mainly the head. Figured out that when I went to sleep hugging a pillow with the covers pulled up tight, it apparently held in the heat and I would wake up about an hour and half later with my pillow soaked. Now I start out with no covers on and add them as needed. It stopped the night sweating for the most part. I had slept that way for some years with no problems, but think that is when this current episode began.

I also sweat profusely during the day mostly from my head. It is very annoying as it really screws up the hairdo (not to sound vain or anything, lol.) My hair gets frizzy. At any rate the current meds seem to make it worse as I have to keep the AC at 72-73 to feel comfortable. I got a med from my Dermatologist that helps somewhat, but has a side effect of dry mouth. I went through menopause sometime ago, but of course it could still be attributed to low estrogen I suppose. If you figure something out let me know as it drives me bonkers at times too.

Yes, it is just my head. I live in Boston where it is 20 degrees right now. I sleep with the window open every night. My husband freezes. I just got down to 10 mg of pred but I don't think it's that because it was happening before that. And I'm with you with the hair. Looks great when I leave the house but when I get to work, ugh!

[Wegetarian]

I was sweating quite a bunch when I was on higher pred doses (60mg or so) and would shower twice a day, granted it was summer but not too hot here in Scandinavia.
Now I'm on 15mg and do sweat a lot easier (my armpits get annoyingly sweaty especially when stressed) and I think I sweat more after going to the gym.

Not really experiencing sweating similar to you though.

[Alysia]

I had night sweat when my wg was very active. sweat was all over.

[crackers]

since my failed attempt to get off pred completely,i got down to 1mg then hit a wall,the night sweats have returned and I'm having trouble sleeping.it was a cold day today here in Liverpool but at one point I had to take my coat off as I was sweating enough to soak my shirt.my rheumy has put me back on 4mgs but if things don't improve i'll have to pay her another visit.
john.

[drz]

I was sweating quite a bunch when I was on higher pred doses (60mg or so) and would shower twice a day, granted it was summer but not too hot here in Scandinavia.
Now I'm on 15mg and do sweat a lot easier (my armpits get annoyingly sweaty especially when stressed) and I think I sweat more after going to the gym.

Not really experiencing sweating similar to you though.

My night sweats with need to change pj's and bedding also happened when i was on high dose of pred. My Wegs was also probably not in remission at that time either and I very likely also had infections at those times that caused Wegs to flare up.

[Pete]

For me, night sweats requiring a change of bed clothes are a symptom of very active GPA. I find I generally sweat more with less active disease than before. I suspect I sweat because my body is over insulated with pred pounds of fat I didn't have before I got sick.

[MikeG-2012]

For me, night sweats requiring a change of bed clothes are a symptom of very active GPA. I find I generally sweat more with less active disease than before. I suspect I sweat because my body is over insulated with pred pounds of fat I didn't have before I got sick.

I'm with Pete with this one. Before my diagnosis, I soaked the sheets every night with the night horrible sweats. Once the disease was less active, the night sweats stopped. I haven't had them since initial treatment--not even during this recent flare up.

MikeG-2012

[annekat]

I'm with Pete with this one. Before my diagnosis, I soaked the sheets every night with the night horrible sweats. Once the disease was less active, the night sweats stopped. I haven't had them since initial treatment--not even during this recent flare up.MikeG-2012 Me, too... very active night sweats right before diagnoses and treatment. Had some with my minor to moderate flare a year ago, but not like the original ones; if anything, they were a helpful sign that I was indeed flaring.

[Auntie TooToo]

OMG! Night sweats more than I can say ... I often wake up having to change clothes and sheets. My hair is so wet that is looks like I just got out of the shower! As for sleeping, that is a luxury that I haven't experienced in literally years! I do good to get 2-3 hours of uninterrupted sleep at night due to the effects of prednisone and/or pain issues from my WG's. I stay so exhausted all the time and long for the days when I use to be able to sleep a good solid 8 hours each night; but that has been a long time. When all else fails, I take multiple long hot baths during the night to help me relax.
Hang in there my Wegie friend ... there is hope at the end of the rainbow!

[OJSRLS]

Although no official WG diagnosis yet have had 3 positive ANCA test since an eye problem in Oct. 2013. I do have sleep issues waking up 3-4 times a night and not being able to get back to sleep. I also sweat terribly when other people beside me are chilled and I awake sometimes with night sweats My usual body temp. is 97.7. So far I have no major symptoms of active Wegener's but from what I've read this could just mean I'm in the early stages. Have to wait and see. I hope all goes well with you.

[annekat]

Although no official WG diagnosis yet have had 3 positive ANCA test since an eye problem in Oct. 2013. I do have sleep issues waking up 3-4 times a night and not being able to get back to sleep. I also sweat terribly when other people beside me are chilled and I awake sometimes with night sweats My usual body temp. is 97.7. So far I have no major symptoms of active Wegener's but from what I've read this could just mean I'm in the early stages. Have to wait and see. I hope all goes well with you. For me, the night sweats did not really appear until things got bad in my lungs right before diagnosis. So, a couple of years of undiagnosed "smoldering" Wegs without the night sweats, unless I had some that I thought were menopausal hot flashes! Having trouble remembering back that far.