Article on invisible illnesses

[Wegetarian]

Thought this was well written and interesting.

Do You Really Want to Know How I am Feeling? - Invisible Illness Awareness Week : Invisible Illness Awareness Week (http://invisibleillnessweek.com/2013/09/08/feeling/)


And while I appreciate the well-intentioned remarks I ask for one thing in return.Don’t ask how I’m doing (with the subtext of bringing up my health) if you’re not willing to hear the truth.
“I’m better, but it takes a lot of work and it hasn’t been easy.” And trust me, I’ll know you aren’t willing to hear the truth because you will get awkward and you will change the topic.

[Alysia]

most people don't really want to hear about an illness that never ends, like ours :sad:

[drz]

Thought this was well written and interesting.

Do You Really Want to Know How I am Feeling? - Invisible Illness Awareness Week : Invisible Illness Awareness Week (http://invisibleillnessweek.com/2013/09/08/feeling/)

This link doesn't work for me. I just get a gator and error message.

[Debbie C]

Didn't work for me either :(

[Wegetarian]

I think they fubared something. The entire domain http://invisibleillnessweek.com/ seems to be pointing to that gator thingy.. Ironically the gator add says they have unmetered bandwith, which I guess is good since I was worried that I killed their site by sending so many wegs there by linking to them :)

Hopefully it will work tomorrow again.

[annekat]

Didn't work for me either :( Me either.

[NikkiNicole]

I was a guest blogger last week or something on that website. Seems like it had good information. I think everyone should read this ...

The Spoon Theory written by Christine Miserandino | But You Dont Look Sick? support for those with invisible illness or chronic illness (http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/)

The spoon theory really speaks about what we go through every day. I try to think of this with everything that I do!

[Wegetarian]

It works for me now. Maybe my internet is better than yours :flapper:

[annekat]

It works for me now. Maybe my internet is better than yours :flapper: Works for me now, too. But too tired to read it right now! maybe tomorrow. Thanks for sharing it.

[gilders]

The Spoon Theory written by Christine Miserandino | But You Dont Look Sick? support for those with invisible illness or chronic illness (http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/)

The spoon theory really speaks about what we go through every day. I try to think of this with everything that I do!

A really good analogy.

I always cope with my level of health because of 1 reason.....I know it will only get worse.
I am constantly thinking "if only I can stay at this level". Even though I can not work, can not walk far, can not play football with my youngest, I'm in constant pain, have no energy (the list goes on and on), I still know that, generally speaking, my health is in a better state today than it will be next year. I know realistically that I will die at a younger age than I should have, had I not got WG. I also know that my early death probably won't be a quick painless one, but a fairly long painful death. How can I possibly be miserable how I feel today, when what I know will happen in the future?

I hope this doesn't come across as too depressive or upsetting. The point I'm trying to make is when you have a serious chronic illness don't constantly look back at how well you used to be and all the things you used to be able to do. Concentrate on what you can still do, as tomorrow you might lose that ability too.

[drz]

I was a guest blogger last week or something on that website. Seems like it had good information. I think everyone should read this ...

The Spoon Theory written by Christine Miserandino | But You Dont Look Sick? support for those with invisible illness or chronic illness (http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/)

The spoon theory really speaks about what we go through every day. I try to think of this with everything that I do!

This has been posted on here before and you will often find references in past posts about "running out of spoons" or giving some one spoons who seems in need of them. It is a good analogy to describe our daily routine.

[pberggren1]

I want to hear about because I love all of you.

[Wegetarian]

I want to hear about because I love all of you.

Dude, what drugs are you? Give us some too!

[Alysia]

Dude, what drugs are you? Give us some too!

it is his kind soul... :love: