Wegetarian
08-14-2013, 08:57 PM
I've been doing some research online to look at the different medicines available for me. I have found some good resources on better understanding how individual meds work. Drz made a nice post (http://www.wegeners-granulomatosis.com/forum/general-wg-chat/3053-links-good-over-view-what-gpa-how-treated.html) from where I could find some good info.
However if there are any good comparisons of the medicines it would make it easier for me to understand what would be optimal. Of course I'll pay a lot of attention to what my specialist has to say, but I like to be well prepared and also I've read some threads here where the meds might have been sub-optimal for the patient.
For what its worth my condition is very light and it should be isolated only to my nose. So I suppose for instance Cyclophosphamide is out of the question due to the adverse side effects and some less powerful medicine should hopefully be enough.
I guess I'm mostly interested in how well the different medicines treat our condition and alleviate the symptoms (I'd like to cut down my steroid intake) and how long it will take for them to start effecting and when full effect is expected to be reached and if possible to get some estimate on how well they will keep us from getting symptoms again.
Dunno if there already is that kind of comparisons, if not I suppose I could try to post what I find here to at least help the next person out. Obv I'm no medical expert and I'm also just recently diagnosed so I have very limited knowledge about all of this.
However if there are any good comparisons of the medicines it would make it easier for me to understand what would be optimal. Of course I'll pay a lot of attention to what my specialist has to say, but I like to be well prepared and also I've read some threads here where the meds might have been sub-optimal for the patient.
For what its worth my condition is very light and it should be isolated only to my nose. So I suppose for instance Cyclophosphamide is out of the question due to the adverse side effects and some less powerful medicine should hopefully be enough.
I guess I'm mostly interested in how well the different medicines treat our condition and alleviate the symptoms (I'd like to cut down my steroid intake) and how long it will take for them to start effecting and when full effect is expected to be reached and if possible to get some estimate on how well they will keep us from getting symptoms again.
Dunno if there already is that kind of comparisons, if not I suppose I could try to post what I find here to at least help the next person out. Obv I'm no medical expert and I'm also just recently diagnosed so I have very limited knowledge about all of this.