IgA Nephropathy

[sue7211]

My son was diagnosed with Wegener's 3 years ago. He has been in remission but last fall he started having more protein and blood in his urine. In Feb. 2013 he had a kidney biopsy which determined that there was no active Wegener's in his kidney but they found IgA deposits. The protein has continued to increase and as of Monday his nephrologist has declared that he does have IgA Nephropathy. My son is so bummed that he will need to start high-dose prednisone again and that he will be entering college for the first time in the fall.

I have been reading a lot and have found several references and case studies about people having both diseases. One place said about 20% with Wegener's also have IgAN. What is your consensus?


Thanks, Sue

[Dirty Don]

Welcome Sue, and to your son also. I don't know the exact numbers, but IgAN would be consistent with WG as about 20% of Weggies have kidney issues, some very severe. Best to you and your son.