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Rini
04-29-2013, 04:50 PM
Hi! i know many of u on hear have made books and Marta had one in the works in the past. What happened? what are the published called? which are coming soon?
Rini
04-29-2013, 07:52 PM
Do we have a youtuber? like weggie blog awareness? maybe i could look into setting something up...
annekat
05-08-2013, 11:31 AM
I've seen videos on you tube of people talking about having wegs. But something that you would set up would be really cool, Rini.
Rini
08-10-2013, 01:29 PM
OK guys it has finnally happened, I got my boyfriends sister and my sister to help me make a media thing for all these kids with disorders that need a good youtube talk show. It is just now being hatched and has a youtube, facebook and twitter page. The teaser trailer airs monday and our goal is to have an episode a week from then. Please check it out and leave coments and pass this on to all those kids people keep asking me about. The idea is to bring people of medical anomalies together to share remidies and stories like we do on hear but more in the teen seen :D please help pass this on, ear is the fb with a lot of the links :https://www.facebook.com/pages/We-Be/189651124543902
mishb
08-10-2013, 04:32 PM
What a great idea.

I can't wait to see the progress of it.

Can us oldies keep looking in from time to time :thumbsup:
Barbara N
08-11-2013, 04:21 AM
I think it seems like a fantastic idea. I don't think I have ever seen anyone as happy and radiant as you come across in your picture. Keep up the good work. these kids need to know they are not alone. All the best, Barbara
annekat
08-11-2013, 02:34 PM
I think it seems like a fantastic idea. I don't think I have ever seen anyone as happy and radiant as you come across in your picture. Keep up the good work. these kids need to know they are not alone. All the best, Barbara Rini's previous picture was very cute, too! You are right. We will just call her Radiant Rini.

And Rini, what you all are doing sounds really great, and I will be sure to check it out!
Rini
08-13-2013, 05:43 AM
Rini's previous picture was very cute, too! You are right. We will just call her Radiant Rini.

And Rini, what you all are doing sounds really great, and I will be sure to check it out!

Awww you guys are so sweet! I have a confession, this was taken on my birthday so i was overly pumped up. You guys are so supportive! Teaser, clean cut - YouTube (http://www.youtube.com/watch?v=5v3yp5zzEkk)
this is a link to the trailer...not my best work but im struggaling with the computer stuff.
This is the Facebook
https://www.facebook.com/pages/We-Be/189651124543902
This is the Pinterest
WeBe Amazing (WithEveryone) on Pinterest (http://pinterest.com/WithEveryone/boards/)
and I THINK Nat made a Twitter but idk anything else about it. Please suggest these resources to those tiny tots you run into!