this is Kim just signed up!

[GreenTara]

hi
my name is Kim

i am 55 yo in seattle wa
just diagnosed in March.

taking prednisone, cytoxan, oxycodone, tylenol,
wired on prednisone, need to rest more and stop cleaning the house! LOL

have supportive husband and 14 yo daughter helping me,
my mom in law is here until May also helping.

huge medical bills and no insurance, after three times in hospital
during March (!)

am grateful they figured out my diagnosis, cos i've been sick for a long time, w/ fatigue
and sinusitis

i'm doing my best to stay optimistic about the chances for remission and wellness.

Kim

[Dirty Don]

Welcome Kim...good place to be with WG! You'll get lots of info, help, and comfort here. Glad you're getting good support...hope your docs are good also, so important. Please ask any and all questions on here that you may have...if someone doesn't know, someone else will. Best to you!

[pberggren1]

Welcome Kim. Thank goodness you have family to help you out.

[mishb]

Hi Kim and welcome to the forum.

You can find lots of information about WG on google but you wont find all the answers that you seek.......unless you are asking the people who live with it everyday.
Yep, that is the talented, funny, wise people on this here forum........well some of them anyway.....only kidding. :flapper:

I'm glad you received a diagnosis........the period between becoming sick and not knowing what is wrong with you can be a very long time. I'm sorry it was a WG diagnosis for you but. at the same time, you must be relieved to finally have a name for the reasons you were feeling so poorly.

I hope medications will see you in remission soon.

[Christina32]

Hi Kim! Welcome, I just joined myself yesterday. Diagnosed just over 3 weeks ago. Family and outside support is a blessing to have. I hope treatment is fast and effective for you. There's lots of info here. Stay positive..... Breathing is a great thing! I look forward to sharing stories - and general weather talk! (i'm south vancouver island) Take care until then...

[Alysia]

Hi Kim, and welcome.
sorry for you that you have WG. :crying: (sorry for myself and for others here...)
but good that you find this forum. it is great.:thumbup:

it is a home for us, weggies. it is calming to know that you can ask here everything, and be less alone with this nasty :sneaky: illness.

[GreenTara]

yikes nasty n sneaky?! tell me more
im feeling better tho so far
tho i want to get my voice back...
i was known as a fine jazz singer. . .

ps i am jealous u r at the ocean! i love ocean best
we have beauty lakes here tho

[GreenTara]

i love Kermit's song:
"its not that easy being green. . .
it can make u stop n wonder why etc"

[Michael Bell]

Welcome to the site. I am a very new member and I have found out more in a few days here than I managed with other sources.Stay strong, fight like hell and I hope you hit remission soon.
Michael

[Alysia]

yikes nasty n sneaky?! tell me more
im feeling better tho so far
tho i want to get my voice back...
i was known as a fine jazz singer. . .

ps i am jealous u r at the ocean! i love ocean best
we have beauty lakes here tho

Hi Kim.
when i registerd to the forum I wrote ambigous location "beyond the ocean". I correct it now in order not to give wrong information. it is the mediterranean. and I love the sea. It helps me breath better.
what did you sing ?
I hope you will get your voice soon.

[mishb]

i love Kermit's song:
"its not that easy being green. . .
it can make u stop n wonder why etc"

Yes, you have just got to love Kermit.

I think Rainbow Connection is his number one song for me..........and one day I will find it :thumbsup:

[drz]

Welcome again to all the newbies that have recently joined us here. It will take us others awhile to figure out your stories and concerns but you all will most likely find some kindred spirits and maybe some one who has an almost identical story. To learn more read a lot and ask questions .

[annekat]

Hi, Kim, and welcome from another Washingtonian! I'm in Olympia. I might send you a private message and find out where you're getting your treatment.... it is assumed that there aren't any true WG specialists in WA state, but if there are any good docs who are capable of treating WG, I'd like to know about them. My doc in Olympia is doing pretty well by me, but he does not have anywhere near the experience with WG that I would like, and I'm not sure all bases are being adequately covered.

I was diagnosed 2 years ago. I'm not a singer, but I like to sing to myself around the house or in the shower, etc., and for at least a year after dx, I could not sing at all! All I got was a croak or a squeak; Kermit is great, but we might not want to sound like him! If it's any help, on good days, I can now sing well enough for my own enjoyment, if not for anyone else's! So there is hope for you. You are still new at Wegs, and there is time for improvement. I'm 60 years old, so we are in the same ball park. BTW, another Kermit song I like is "The Rainbow Connection".

I had lung and sinus involvement and was also treated initially with CTX and prednisone, which began to clear things up a lot within a couple of months. I was eventually switched from CTX to methotrexate and am doing well on that. I also take Bactrim, as many of us do, to prevent a certain pneumonia that we are susceptible to with our suppressed immune systems.

So, if you have to have Wegs, it is great that you found this forum, it is really the best place for a Weggie to be. Feel free to ask any questions, either here or in private messages, and I hope to hear more from you very soon!

[BookNut]

Welcome Kim. I have one doctor who diagnosed WG, but my current pulmonologist says it is not. But, even if Wg is finally ruled out, I plan to stay active on this forum. This group is loving and incredibly helpful. I will want to keep up with all the friends i have made here. They will sympathize with AND encourage you when you are feeling ill, and they are an incredible resource for information about your disease. You will feel very much at home here.

[Jaha]

Kim,

I'm glad you found us so soon, welcome the family. There is so much knowledge here, with all wegs situtations, because every wegs is different. Stay positive and well.

[rif]

Welcome Kim, It sounds like you have great family support. Ask plenty of questions as this is the place to get the right answers.

Rif