me2
02-22-2013, 02:03 AM
I ran across this site while looking for information on prednisone reduction. The site said that the Marshal Protocol recommended reducing vitamin D intake and sun exposure (I don't have that problem here in Washington State) prior to a prednisone reduction. I am too busy right at this moment to really look into this and I don't know if someone here already has and I missed it. Here is the site that talks about it and has links to other more detailed sites - About the Marshall Protocol (http://bacteriality.com/about-the-mp/)
If someone here has time to follow up on this and report back on how it may or may not be relevant to Wegener's I would be very interested in what others think.
As a side note - after twelve years of battling a severe relapse I seem to be slowly but steadily pulling out of it. I am overwhelmed with the state of my life that I am returning to.
A little worse for wear (from LOTS of drugs and disease) and of course being older- well over 50.
I have lots of friends with age complaints that aren't a lot different from some of mine. I will document more what I have been through and any factors I may suggest that might explain this positive turn of events. I am not out of the woods yet.
I have been in recent weeks following a 'PBS tv doctors' diet advice and I believe it to be helpful but my circumstances are so complicated I cannot report this with any degree of certainty. It may be just co-incidence. My recovery may be purely drug treatment and chance - although my gut, and daily experiences suggest the diet is helpful. The diet is the JJ Virgin Diet.
Yes , that is her name, I know it sounds hokey but she has some very compelling science and massive anecdotal experience to support her position . I will report more here later about my experience with this and experience of several friends with other disorders who seem to be benifitting from this diet. I have not found it hard to follow and I find myself not feeling well when I stray from it - either by a slip up (a conscious one) or an accidental one. The concept is simple- eliminate 7 foods from your diet that JJ has found in her experience to trigger food insensitivity reactions in people
There are many Youtube videos and web site information available for those who don't want to wait for my report that is specific to me being a WG patient.
Kirk
PS -- I still believe there could be natural solutions available to us to help prevent relapse of the disease. I am actively pursing ideas and would love to hear about what others may be working on. One of the ideas I am looking into is quite radical (at least in today's world) but may hold great promise for us Weggies and other autoimmune disorders. I am many weeks away from being able to do my experiment and giving a full report here. It is an idea I talked to Al about by email and he was also looking into it and finding it interesting. Sorry to be so cryptic but when I explain it later you will understand. It may be a blind alley and I do not want to lead anyone down there until I have checked it out myself. (haveing been lead down blind alleys myself by well meaning but ill informed practioners)
I am not a medical professional , nor Batman-like in any way
I wish all of you here in my WG family continued recovery and good health
If someone here has time to follow up on this and report back on how it may or may not be relevant to Wegener's I would be very interested in what others think.
As a side note - after twelve years of battling a severe relapse I seem to be slowly but steadily pulling out of it. I am overwhelmed with the state of my life that I am returning to.
A little worse for wear (from LOTS of drugs and disease) and of course being older- well over 50.
I have lots of friends with age complaints that aren't a lot different from some of mine. I will document more what I have been through and any factors I may suggest that might explain this positive turn of events. I am not out of the woods yet.
I have been in recent weeks following a 'PBS tv doctors' diet advice and I believe it to be helpful but my circumstances are so complicated I cannot report this with any degree of certainty. It may be just co-incidence. My recovery may be purely drug treatment and chance - although my gut, and daily experiences suggest the diet is helpful. The diet is the JJ Virgin Diet.
Yes , that is her name, I know it sounds hokey but she has some very compelling science and massive anecdotal experience to support her position . I will report more here later about my experience with this and experience of several friends with other disorders who seem to be benifitting from this diet. I have not found it hard to follow and I find myself not feeling well when I stray from it - either by a slip up (a conscious one) or an accidental one. The concept is simple- eliminate 7 foods from your diet that JJ has found in her experience to trigger food insensitivity reactions in people
There are many Youtube videos and web site information available for those who don't want to wait for my report that is specific to me being a WG patient.
Kirk
PS -- I still believe there could be natural solutions available to us to help prevent relapse of the disease. I am actively pursing ideas and would love to hear about what others may be working on. One of the ideas I am looking into is quite radical (at least in today's world) but may hold great promise for us Weggies and other autoimmune disorders. I am many weeks away from being able to do my experiment and giving a full report here. It is an idea I talked to Al about by email and he was also looking into it and finding it interesting. Sorry to be so cryptic but when I explain it later you will understand. It may be a blind alley and I do not want to lead anyone down there until I have checked it out myself. (haveing been lead down blind alleys myself by well meaning but ill informed practioners)
I am not a medical professional , nor Batman-like in any way
I wish all of you here in my WG family continued recovery and good health