Geoff
06-08-2009, 05:57 AM
Hello all you fellow travellers,
Just thought I would run this one by you. During my latest visit to the hospital they asked me if I would care to sign up to another trial. Apparently there is some suggestion that WG could be genetic and as such I have been asked to donate my DNA for research purposes. I am not aware of any identification of how we came by this disease and would be interested if any fellow sufferers have had any other information as to its root cause. I have to say that reading thru this forum, I feel as if I have a large splinter in my little finger compared to how the disease has grasped some of you. After being diagnosed just over a year ago, the only real syptoms I have are ringing in my ears and some fatigue, which bearing in mind how busy I am is no real surprise. I do not say this to gloat but rather offer some hope that you can live a pretty normal life and that being diagnosed with WG, whilst we know it to be a life sentence, does not have to be a life in serious decline. Reading this forum has, I have to say, been very uplifting with its stories of ordinary people overcoming serious hurdles in their life. It gives me great hope.
Love to you all.:)
Just thought I would run this one by you. During my latest visit to the hospital they asked me if I would care to sign up to another trial. Apparently there is some suggestion that WG could be genetic and as such I have been asked to donate my DNA for research purposes. I am not aware of any identification of how we came by this disease and would be interested if any fellow sufferers have had any other information as to its root cause. I have to say that reading thru this forum, I feel as if I have a large splinter in my little finger compared to how the disease has grasped some of you. After being diagnosed just over a year ago, the only real syptoms I have are ringing in my ears and some fatigue, which bearing in mind how busy I am is no real surprise. I do not say this to gloat but rather offer some hope that you can live a pretty normal life and that being diagnosed with WG, whilst we know it to be a life sentence, does not have to be a life in serious decline. Reading this forum has, I have to say, been very uplifting with its stories of ordinary people overcoming serious hurdles in their life. It gives me great hope.
Love to you all.:)