View Full Version : I have good news to share

05-27-2009, 10:15 AM
I went to see my ENT today and will get my trach out next Tuesday after a picture taking surgery on Monday.

I's so excited! Had to share
Lisa Coffee lover (7 months with trach):D:D:D

05-27-2009, 10:19 AM

05-27-2009, 10:26 AM
And, make sure you smile for that picture!!

05-27-2009, 10:31 AM
can't stop smiling. Now if I could get rid of the pred cheeks?????? One thing at a time

05-27-2009, 11:25 AM
great news lisa.it's coffee time .

05-27-2009, 05:15 PM
We don't often get good news round here. Congratulations! :D

05-28-2009, 01:33 AM
great news congrats.

05-28-2009, 02:07 AM
Fantastic news Lisa!

05-28-2009, 06:31 AM
Lisa- Congratulations!:):):):) + one!

06-01-2009, 10:13 AM
Keeping my fingers and toes crossed

06-02-2009, 05:53 PM
Goodbye trach...Congrats

06-03-2009, 12:53 AM
Hey, it's Tuesday! Is it out yet is it out yet is out yet is it out yet? Well, is it? :D

You gonna give it a funeral?

06-03-2009, 10:08 AM
come on lisa you can't keep us all hanging like this.it's not fair.well is it?

06-03-2009, 01:21 PM
Yeah, we're dangling like your "trach jewelry." (It still makes me giggle that you took something so difficult and made it fun.)

06-05-2009, 09:09 AM
Where are you Lisa? Is everything OK?

06-07-2009, 07:55 AM
Hopefully she's out celebrating being trach-less :)

06-09-2009, 09:26 AM
Hello everyone!

I am so sorry to make you worry! I had the best week of my life this week. Other than the surgery I had on Monday, the rest of the week was awesome! (awesome for a weggie). I got my trach out on Tuesday and could not stop smiling or talking after it's removal. My husband tells me I was still babbling at 2 am. (Pred and happiness can make you sleepless)

As of today, My hole is slowly closing. It would close faster if I did not talk as much, but I can't seem to shut up.

Also this week...my youngest daughter graduated high school on Thursday and we had her very successful grad party for her on Sunday. So you see I have been a bit busy getting ready for company and telling everyone about my new normalcy. (this normalcy I like) By Fall I will be an empty nester withe the exception of my 3 dogs of course.

Of course I use my chatting as a chance to educate people on Wegs and remind them that just because I got my trach out that I am not necessarily in the clear. But for now, I CELEBRATE!

BTW-I met someone at my grad party , who knows someone who was recently diagnosed with WEGS and he is about age 30 and lives here in MN. I gave this someone my cell # and told her to have him call me and I hope to set him up with this website as it has done wonders for me (mentally)
It sounds like his problems are in the respitory tract as well and his lungs are a concern. So I hope to hear from him soon!

Any advice would be welcome to get him on the right track right away. As of now she did not know where he was diagnosed or if by a Wegs specialist or not, so I really hope he calls.

So glad to be back with all of you Friends! I hope not to dosappear for that length of time again.

Still smiling and chatting
Lisa Coffeelover

06-09-2009, 09:31 AM
I am SO happy it went well! Who needs that extra hole in the head, anyway? I can only imagine how chatty that would make you.

Great big smile on my face, too. :)

06-09-2009, 10:53 AM
I am SO happy it went well! Who needs that extra hole in the head, anyway? I can only imagine how chatty that would make you.

Great big smile on my face, too. :)

Me too, Lisa. Reading about rkm001's mom this morning put me in a pensive mood, to be sure. She isn't that old. While the bad news of one doesn't cancel out the good news of another (or vice versa), thank God, losing your life vs. losing your trach aren't equivalents. On the other hand, nine in ten of us survive, and I am happy you are among the nine! You've become a friend and part of the vitality I love about this site! Your story has been the only happy news today! Congratulations and may you continue to heal and return to an even better "new normal" than you have just begun! In the meantime, chat away! :)

06-09-2009, 08:37 PM
Great news that it went so well! I too wouldn't shut up when I got my trach out. I think the nurses sedated me to shut me up :)

06-12-2009, 02:18 PM
Lisa, you talk all you want and we will happily listen, as I am sure your husband and family do to. What joy it must be to feel "normal" again. Enjoy your freedom.
With happiness,

09-10-2014, 05:48 AM
I was diagnosed with Wegener's Granulomatosis 11 years ago. At that time I had involvement with my kidneys and upper airway (sub glottis stenosis). My kidneys improved with treatment but I have continued to have chronic issues with my upper airway. I don't go into remission so I have IV therapy and prednisone therapy 3 to 4 times a year. I took an early retirement due to all the medical issues and treatments I receive. I use to enjoy singing very much and I sang for weddings and funerals in the church choir, etc. Now I no longer sing at any event as my voice has changed so drastically. It's not the end of the world by any means but I feel like a pretty important part of my life that brought a lot of joy has been stolen, taken away so abruptly like a thief in the night! There are so many issues that individuals who don't respond to therapy go through on a daily basis. This whole thing has been life altering but I thank God I still get up everyday and can contribute something to being a part of this global community! I hope to hear from other WG patients and hear their stories we can help support each other and maybe make getting through the daily grind just a little easier for everyone! Thx...Kathy

09-10-2014, 05:53 AM
Oh and I forgot to say congrats to you Lisa for getting your tracheotomy out after such a long ordeal! How great you must feel and you just keep on smiling and let the world know you're alive and happy!