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rkm001
05-20-2009, 12:03 PM
Hello, everyone! We will finally be taking my Mother to the specialist this Thursday. She is suffering from extreme weakness, blot clot in the leg, and now she has a blood shot eye again and has had a mild bloody nose. She still has no appetite at all.
I am afraid I am putting to much emphasis on seeing the specialist and I'll be let down when we do see him. I just want her better!

Sangye
05-20-2009, 12:52 PM
Make sure you take a list of questions with you. Include symptoms you've noticed, concerns you have and general questions about treatment, prognosis, etc.... The more organized you are, the more answers you'll get. It's a long process for the doc to get all the info s/he needs, so streamline what you can ahead of time.

It's also a good idea to bring a voice recorder and listen later.

I assume they've done proper diagnostic tests to make sure the blood clot hasn't traveled (to lungs, brain, etc...)? A definite question for the specialist.

Best of luck to you. Your mom is lucky to have you helping her--

Jack
05-20-2009, 03:22 PM
Blood shot eyes is another Wegener's symptom. I used to look like something from a horror film! :eek:

(Some say I still do ;) )

Doug
05-25-2009, 08:54 AM
I have one right now that makes me look like Charles Manson on a good day. Blood vessels breaking in my eye is one consequence of WG. The one I have right now happened two days ago. Too much time on the computer? :confused: p.s. you look more like Freddy, though I can't see your hands. Ha!